Bone Mets

[Diana_Long]

today I was confirmed as stage IV. A recent CT scan had showed lumbar spine metastasis. Two weeks ago I was startled on Faslodex injections, while awaiting PET scan, which is Monday. After it, she will know where to biopsy, which will determine treatment plan. CA27.29 marker jumped from under 28 to 380.

has 2nd Faslodex injection today.

bone pain was the only side effect from prior infection. Onco said it likely is Faslodex working, which was positive news.

She shared case with UCSF cancer board, who confirmed possible treatment options. Now I’m on hold until PET and biopsy results.

[Diana_Long]

Also, I was very anemic and had two transfusions, which oncologist said I may need more.

[AvidBooklover]

When was your original breast cancer diagnosis? Bone in just one place? My orig cancer was 7 years before my one bone met, which was 4 years ago. The biopsy will help. I have been on Ibrance, Faslodex and Xgeva for four years now.

[Diana_Long in reply to AvidBooklover]

late 2017. Finished treatment January 2019. February enrolled in Monarch E trial and took abemiciclib (spelling?) for two years. June 2023, found mets

Monday I have a PET scan which will tell more.

[love2golfwell]

I'm sorry you are going through this. I hope and pray that that Faslodex continues to work for you or that your doctor will come up with an even better treatment plan. This is a great site for support, advice and information. Sending hugs.

[13plus]

I’m sorry to hear you’ve joined the club but this is a great group of people here to support you . Good luck with the biopsy and treatments!

[SeattleMom]

Welcome to this great group of women who share their treatments, side effects, and encouragement with each other. You have found a great source of information and empathy. I was diagnosed with spinal mets nearly six years ago. Hang in there!

Love and prayers, Linda in Seattle XXOO

[Cowgirl1951]

Hi Diana, Wishing you the best. I went 12 years before my metastasis. Then 8 yrs on Aromasin and Zometa IV before progression. Now I am on Kisqali 400mg and Faslodex. Iam looking forward to at least another 8 yrs on this.Kay

[DianaTrapani in reply to Cowgirl1951]

hi Cowgirl,

Thanks for the encouragement! I’m on Faslodex and tomorrow I begin ribociclib. The PET scan showed Mets in many bones, upper humerus, sternum, ribs, hips, spine, and femur. Ugh. I’m having a hard time emotionally adjusting to the new diagnosis and unknown.

Praying the treatment works.

[Caab in reply to Cowgirl1951]

Hi, Cowgirl, It sounds as if you are doing well with your treatments and your words are encouraging! Have you had many side effects on Kisqali? My Onc suggested that my next line of treatment will be to add K. to Faslodex injections. I am on Fasolex alone right now...MBC to bones and liver. Any thoughts? I am a bit nervous about it...Peace and Love, C

[Cowgirl1951 in reply to Caab]

Hi Caab, My white blood counts do drop and I suffer with fatigue after my 3rd week. I am on my 9th round of Kisqali and now on 400mg. I take it after dinner. On my 6th round I switched to the 5/2 schedule. 5 days on , 2 days off. When I get to the end of week 3 instead of 2 days off I have to take an additional 3 days off (total 5). I plan nothing for days 2, 3, 4, 5. I just rest because my WBC drops and I have extreme fatigue and don't feel like moving. Then I start over. I try to go shag dancing twice a week. I am a lucky lady. Original dx 2001. It's been 10 years since my first bone mets (pelvic, femur, spine, sternum). I do have the ESR1 mutation. Elacestrant will most likely be my next line of treatment. Hugs, Kay

[michelangelina]

Hi Diana, Sorry to hear about your diagnosis, but there is much to be hopeful about. I have been stage IV with bone mets for 5 years now, still on my first line of treatment (Ibrance/Letrozole). UCSF is a great place--I know a few people with cancer that get their treatment there. I am with Stanford.