Posts - SHARE Metastatic Breast Cancer | HealthUnlocked

SHARE Metastatic Breast Cancer

6,607 members • 8,142 posts

All posts for November 2022

PIQRAY update

Great news. Had another Pet Scan today. Last one was end of June. I am still NEAD. I am officially 2 years MBC. Been on Piqray and fluvesterant since...

Great news. Had another Pet Scan today. Last one was end of June. I am still N...

Kaylab

•1 year ago

18 Replies

IBrance alternative dosing schedule : (5 on 2 off) another trial in the works

To those who are following the news about the alternative dosing schedule (5 days on and 2 days off) for IBrance : not only is this schedule effective for...

To those who are following the news about the alternative dosing schedule (5 day...

Dragonfly2

•1 year ago

29 Replies

A beautiful Buddhist prayer

Dear ladies and gentlemen: I got an email this morning with this beautiful prayer and wanted to share it with all of you. Sending hugs. Here is a Buddhist...

Dear ladies and gentlemen: I got an email this morning with this beautiful pray...

love2golfwell

•1 year ago

10 Replies

Want to take advantage of all our features? Just log in!

how long does Ibrance stay in your system?

I saw the answer somewhere here but can’t find it again. Can someone help me?

HbbM

•1 year ago

5 Replies

Holidays

I'm wishing you all (even those in other countries) a very Happy Thanksgiving!🥧🦃🌽 or whatever your favorite foods are. I give thanks I found you. Anyone...

I'm wishing you all (even those in other countries) a very Happy Thanksgiving!🥧...

OneLump22

•1 year ago

9 Replies

PET scans

I’ve been doing well on a combination of 125 mg palbociciclib, letrazole and monthly denosumab for 12 cycles after 11 rounds of weekly paclitaxal chemo. I...

I’ve been doing well on a combination of 125 mg palbociciclib, letrazole and mo...

bikebabe

•1 year ago

28 Replies

From Oncology 2022 Nov 11: "Acupuncture Reduces Aromatase Inhibitor-Related Joint Pain"

Although this study used early breast cancer patients, I assume the findings would also apply to MBC patients... Importance : "Aromatase...

Although this study used early breast cancer patients, I assume the findings wou...

Hazelgreen

•1 year ago

14 Replies

A beautiful speech

I know not everyone one here may share the same religious beliefs but I wanted to post this speech that was given by Pope Francis a few days ago. I really...

I know not everyone one here may share the same religious beliefs but I wanted t...

love2golfwell

•1 year ago

18 Replies

As deafening as this

“She Lied” my body lets me know when I’ve had too much sugar by kindly presenting bumps on the surface of my face my body sounds the alarm bells when...

“She Lied” my body lets me know when I’ve had too much sugar by kindly pre...

SunShineEveryDay

•1 year ago

16 Replies

letrizole/verzenio combo hair loss

my hair is beginning to thin. I’ve been on this regimen for 8 months and I’m just beginning to notice more shedding. My question is, does the hair loss slow...

my hair is beginning to thin. I’ve been on this regimen for 8 months and I’m jus...

CatLady2022

•1 year ago

15 Replies

ALT/SGPT

Any idea why this test went for 34 to 103 ? I had blood work done yesterday and my doctor didn’t say anything about this. This test is usually in the low to...

Any idea why this test went for 34 to 103 ? I had blood work done yesterday and ...

Sharon0122

•1 year ago

5 Replies

Fatigue with Ibrance

Dear all, My mom has a metastatic breast cancer . She is suffering from extreme fatigue. Do you have any ideas that can help? plus she is diabetic but under...

Dear all, My mom has a metastatic breast cancer . She is suffering from extreme...

Ramona-1973

•1 year ago

40 Replies

ugh!! Another Ibrance side effect…. Dry nose

it’s only the left side but it’s so dry it bleeds a little sometimes and now I think it’s creating a sore inside my nostril. Doesn’t look like it’s a super...

it’s only the left side but it’s so dry it bleeds a little sometimes and now I t...

HbbM

•1 year ago

13 Replies

Organization for Lobular Breast Cancer Information

I think there have been some posts about a Facebook group or organization that deals with Lobular Breast Cancer since it is different than other types of...

I think there have been some posts about a Facebook group or organization that d...

love2golfwell

•1 year ago

4 Replies

Xeloda

Ibrance not working ... now Xeloda ... what should I know? thanks

susiemarmite

•1 year ago

7 Replies

Mukherjee's "The Laws of Medicine" (2015)

Best521 strongly recommended Dr. Mukherjee's latest book, "The Song of the Cell". I looked up the reference, and ended up ordering all four of his books. I...

Best521 strongly recommended Dr. Mukherjee's latest book, "The Song of the Cell"...

Hazelgreen

•1 year ago

7 Replies

Thrivers are Beautiful People

I am on Letrozole and Ibrance 100mgLast 2 months getting water eyes Like having to dab a tissue to stop The tear...tried clear eye drops It's bother some...

I am on Letrozole and Ibrance 100mgLast 2 months getting water eyes Like havin...

Hidden

•1 year ago

28 Replies

New liver mets

I was just prescribed Aromasin and Affinitor. Has anyone taken these drugs? Any comments or advice? Will I lose more or all hair?

I was just prescribed Aromasin and Affinitor. Has anyone taken these drugs? A...

Shafight

•1 year ago

12 Replies

Compression Sleeves Reduce Arm Swelling After Breast Cancer Surgery

This article may be too late for most of us. I had lymphedema for a short while in 2006 after surgery removed many lymph nodes in my right arm....

This article may be too late for most of us. I had lymphedema for a short while...

Hazelgreen

•1 year ago

21 Replies

Elevated markers

I’ve had metastatic disease for four years after a single tumor in sternum. I’ve been NED since then on Ibrance and Letrozole. On my most recent labs,...

I’ve had metastatic disease for four years after a single tumor in sternum. I’v...

Mermaiden

•1 year ago

6 Replies

More cancerous nodes…swollen arm

I’m wondering if anyone has had this problem. A couple of months ago my PET scan showed activity in multiple lymph nodes in my arm pit and neck area. At the...

I’m wondering if anyone has had this problem. A couple of months ago my PET sca...

caw517

•1 year ago

12 Replies

ILC: Double Mastectomy positive margins complete breast tissue removed

My wife was diagnosed with Invasive Lobular Carcinoma in April. HR/PR positive (95%) Ki67-12%, HER2 1+ Negative. Oncotype test indicated or confirmed IV chemo...

My wife was diagnosed with Invasive Lobular Carcinoma in April. HR/PR positive ...

ba5083

•2 years ago

10 Replies

ELEVATED LABS AFTER SURGERY

I was diagnosed with MBC in the liver in March of 2019 and have been on Faslodex only since that time with stable scans and lab work. I fell 10/1 and fractured...

I was diagnosed with MBC in the liver in March of 2019 and have been on Faslodex...

cpidacks

•2 years ago

5 Replies

verzenio

I am just on Verzenio alone, Does anyone have there hair coming slow . I have been on Verzenio since April and it seems slow growing, Does anyone else have...

I am just on Verzenio alone, Does anyone have there hair coming slow . I have be...

Iwouldlike2knowmore

•2 years ago

18 Replies

low platelets and haemoglobin - treatment off

howdy! Quick question. I’m on gemcitabine - I/v chemo. My latest bloods show haemoglobin and platelets too low to treat. Again. So I’m back in the wings,...

howdy! Quick question. I’m on gemcitabine - I/v chemo. My latest bloods show ...

Gorgeousness

•2 years ago

2 Replies

Thank you for your support!

Many thanks for your prayers and well wishes. Both PET and spinal MRI is unchanged and I can continue the same treatment. Moreover my next PET scan is...

Many thanks for your prayers and well wishes. Both PET and spinal MRI is unchang...

Tolife_18

•2 years ago

14 Replies

Mets spread to liver

I’ve been treated for 18mo for Mets to my bones. My last Pet scan showed they are now in my liver. I’m really scared. How will my treatment change? I...

I’ve been treated for 18mo for Mets to my bones. My last Pet scan showed they a...

Shafight

•2 years ago

14 Replies

No Blood Markers…

I have been diagnosed with non-metastatic Breast Cancer 3 times since 2005 (2 rounds of radiation + tamoxifen and then a bilateral mastectomy in 2016). My...

I have been diagnosed with non-metastatic Breast Cancer 3 times since 2005 (2 ro...

PlutosNose

•2 years ago

25 Replies

HER2-low status may not affect survival outcomes of patients with MBC receiving palbociclib plus ET as frontline therapy.

A retrospective study was conducted with "252 consecutive HR+/HER2- MBC patients who received first-line ET plus palbociclib at six Italian Oncology...

A retrospective study was conducted with "252 consecutive HR+/HER2- MBC patients...

Hazelgreen

•2 years ago

6 Replies

LIPS VERY PAINFUL, PEELING, RAW, BLEEDING

ON LETROZOLE 2.5, AND I-BRANCE 100 AND MY LIPS ARE VERY PAINFUL, RAW, BLEEDING, AND VERY VERY SORE, DIFFICULT TO EAT, I HAVE TRIED COUNTLESS OVER THE...

ON LETROZOLE 2.5, AND I-BRANCE 100 AND MY LIPS ARE VERY PAINFUL, RAW, BLEEDING,...

25047

•2 years ago

10 Replies

Posts - SHARE Metastatic Breast Cancer | HealthUnlocked

SHARE Metastatic Breast Cancer

All posts for November 2022

PIQRAY update

IBrance alternative dosing schedule : (5 on 2 off) another trial in the works

A beautiful Buddhist prayer

how long does Ibrance stay in your system?

Holidays

PET scans

From Oncology 2022 Nov 11: "Acupuncture Reduces Aromatase Inhibitor-Related Joint Pain"

A beautiful speech

As deafening as this

letrizole/verzenio combo hair loss

ALT/SGPT

Fatigue with Ibrance

ugh!! Another Ibrance side effect…. Dry nose

Organization for Lobular Breast Cancer Information

Xeloda

Mukherjee's "The Laws of Medicine" (2015)

Thrivers are Beautiful People

New liver mets

Compression Sleeves Reduce Arm Swelling After Breast Cancer Surgery

Elevated markers

More cancerous nodes…swollen arm

ILC: Double Mastectomy positive margins complete breast tissue removed

ELEVATED LABS AFTER SURGERY

verzenio

low platelets and haemoglobin - treatment off

Thank you for your support!

Mets spread to liver

No Blood Markers…

HER2-low status may not affect survival outcomes of patients with MBC receiving palbociclib plus ET as frontline therapy.

LIPS VERY PAINFUL, PEELING, RAW, BLEEDING

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