Organization for Lobular Breast Cancer Information

[love2golfwell]

I think there have been some posts about a Facebook group or organization that deals with Lobular Breast Cancer since it is different than other types of breast cancer and can be sneakier. Can anyone share where to find this? Thanks so much.

[valentinecalico]

Hi - the main organization in the US is the Lobular Breast Cancer Alliance (lobularbreastcancer.org/ . That maybe what you are thinking of? There are also Facebook groups for early stage and metastatic lobular - can't seem to find them right now but will keep looking. This European FB group is a wealth of information: Lobular Breast Cancer Europe - ILC Awareness and Support. There also is a research-based FB site: Lobular Breast Cancer (ILC) invasive lobular carcinoma (science & support). If you search any of these on FB they should pop up - you may need to answer some questions to be allowed to join. Others may post the ones I'm thinking of but can't find. Hope this helps. 💘

[love2golfwell in reply to valentinecalico]

Thank you so much for sharing this information. I will check it out. Sending hugs.

[valentinecalico in reply to love2golfwell]

Here is one of the other FB groups that I couldn't remember yesterday: "Support for People with Metastatic Lobular Breast Cancer". Good luck!

[love2golfwell]

Thank you so much!