MBC and primary endometrium cancer - SHARE Metastatic ...

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MBC and primary endometrium cancer

Cureforever profile image
26 Replies

Hi my wonderful fellow fighters,

My latest pet Ct revealed the endometrium thickness I just got a biopsy back and am in shock It’s a primary endometrium cancer I am nervous and depressed Please help Anyone had this ?

Love,

Marina

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Cureforever profile image
Cureforever
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26 Replies
NPmary profile image
NPmary

I am sorry and sad to hear this. Let us know how you are doing. Wish you the best. ❤

Cureforever profile image
Cureforever in reply to NPmary

Thank you very much

Eliactida1955 profile image
Eliactida1955 in reply to Cureforever

So sorry Marina. How thick was the uterus ? I had a biopsy rears ago and it was considered borderline but never had anything removed. What is the doctor recommending? Hope you are not in pain. 🙏✝️

Cureforever profile image
Cureforever in reply to Eliactida1955

thank you for your reply It was 3.7 to 3 cm They told me that this is the endometrial primary cancer

Pbsoup profile image
Pbsoup

Oh Marina I am so sorry! Is there a plan for treating it? Does the. Xeloda you’re currently on help? Is there surgery to remove it as it’s a primary cancer?

Cureforever profile image
Cureforever in reply to Pbsoup

Thank you for your reply. They told me that it is a primary endometrial cancer and the stage will be known only after the surgery. I am so scared

mariootsi profile image
mariootsi in reply to Cureforever

We are here for you. You have our support and prayers!

Cureforever profile image
Cureforever in reply to mariootsi

Thank you very much

mariootsi profile image
mariootsi

Oh Marina I'm so sorry! But, I'm sure your onc will have a plan! Let us know please. Sending hugs!

Guitarbella profile image
Guitarbella

Dear Marina, so sorry to hear your news. Please let us know how things go. Sending love & hugs xxx

Cureforever profile image
Cureforever in reply to Guitarbella

Thank you very much

Mary115 profile image
Mary115

I had primary endometrial cancer twelve years before having primary breast cancer. I had surgery and it turned out to be stage one. It was an easier surgery than breast cancer and required no more than surgery. I am hoping for similar results for you, while knowing that it is soo hard to deal with one more thing along with m.b.c. (((((Cureforever))))

Cureforever profile image
Cureforever in reply to Mary115

Thank you Mary for your reply. I hope for early stage but I am shaking. How was your cancer diagnosed. Mine showed an uptake on pet ct and then thickened endometrium on ct and sono. The biopsy came back confirming that it was cancer. I have no symptoms. Did you have some? Do you have mbc?

Cureforever profile image
Cureforever in reply to Mary115

Hi Mary. Thank you so much for your reply. I just read my biopsy and it said that it’s a cerous carcinoma which is aggressive. Pet ct did not show lymph notes. It showed thickened endometrium but I am still very scared. Please help.

Mary115 profile image
Mary115 in reply to Cureforever

It is understandable that you are scared. I receive help through SHARE and have a wonderful volunteer who helps using phone calls and/or personal emails. sharecancersupport.org/ Hopefully you will find their support helpful . To answer your questions: My endo cancer was discovered using an MRI. I had post menopausal discharge that then later developed into some bleeding. We were very scared about what stage it would be because I had been to the primary twice who did pap smears which did not (and does not) detect endometrial cancer. I was then told by a Doctor to "Ignore a little post menapausal bleeding. I was 65 yrs old. I insisted on seeing a well known gynecologist, and as over a year with symptoms had passed, we were concerned that the stage would be higher. We were surprised that it was only stage one.

As for the question if I have MBC. I am unsure. I had my gall bladder out recently and am waiting for the results of a biopsy which is standard procedure. I know cancer of the gallbladder is rare. My onco has also ordered a PET scan which is coming up. I cannot take biosphanate infusions and I have aromatase inhibitor induced muscular-skeletal symptoms and can no longer take aromosin or its equivalent. My breast cancer was aggressive so that I need to be watched. I find great support from a therapy group of five participants which keeps me grounded, and a cancer writing group, and SHARE.

I hope you can find all the support and resources you need and so rightly deserve, and that you may feel a calming grounding come to you and yours as you face this next challenge. Feeling for and with you.

Cureforever profile image
Cureforever in reply to Mary115

Thank you Mary for your detailed message. What kind of endometrium cancer did you have? I got scared when the biopsy showed serous carcinoma which is aggressive. This was the first time the pet ct showed it. I hope it’s found early but….I did Pap smear in September. I did not know that it can reveal endometrium cancer. I thought only cervical. I am very scared. Thank you very much for your support

Cureforever profile image
Cureforever in reply to Mary115

Hi Mary again. When did you have endo cancer? Were you getting additional treatment? What was your kind. I have a serous carcinoma which I read is aggressive. Thank you

Marina

PJBinMI profile image
PJBinMI

My grandmother was treated for endometrial cancer in the 1950's when she was in her 70's. She lived to be 102! All I know about endometrial cancer.

Cureforever profile image
Cureforever in reply to PJBinMI

Thank you so much. I hope for early stage but I am shaking. The biopsy showed that it’s an aggressive type

OneLump22 profile image
OneLump22

My prayers are with you. Stay positive. I know it's hard (believe me! I get it).

Cureforever profile image
Cureforever in reply to OneLump22

Thank you very much

Mary115 profile image
Mary115

I do not know what type of cancer it was other than endometrial. I think it was stage one but aggressive. I am ten years free. Perhaps, you might get more helpful information and support from SHARE sharecancersupport.org/ which has specific support people and groups which deal with uterine cancer. Endometrial cancer is sometimes called uterine cancer . Since it was my first time around with cancer I was very scared. I feel for you in your scaredness. I get it. In addition to SHARE , I found that the American Cancer Society's hot line helped me once with trepidation: Contact Phone 800.227.2345 Their information page on endometrial cancer is:cancer.org/cancer/endometri...

Hoping these resources help as well as the care for you that is here.

Cureforever profile image
Cureforever in reply to Mary115

Thank you Mary for all your support and information. How do you know that it was aggressive. You do not remember how was it called? You said that you lived with it for about a year while it was bleeding. Mine is not bleeding. Did the ct and/or pet ct show anything or only thickened endometrium.

Mary115 profile image
Mary115 in reply to Cureforever

Sorry, I do not recall more particulars that will help you.. The references I suggested should be able to provide you with people who have gone through it and have more information. They helped me at a time when I needed it. However, I am Sending care your way and hope you find those who can assist.

Cureforever profile image
Cureforever in reply to Mary115

Thank you so much.

Mary115 profile image
Mary115 in reply to Cureforever

Your welcome, And just hoping so much for you, and will continue to do so. Please keep us here, posted as to how you are doing.. Sending care.

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