SBRT FOR BONE METS

[DDIL1]

Anyone have any radiotherapy or any type of radiation to kill bone Mets?

Also, any surgery or radiation for axillary lymph nodes.

[USIrishcolleen]

Hello DDIL1,

I had one lymph node under my right arm along with a 5 cm tumor, and both were biopsied and k own to be cancerous. I had the axillary lymph node biopsy and dissection, along with a right partial mastectomy. They also did the “rerouting” (forgot the name?) of the lymph vessels in that area. The surgery was a piece of cake and recovery was easy too. I did not need a single pain killer, just Tylenol.

When my surgery incisions healed I had 15 radiation treatments to the whole right breast and another three treatments to the tumor bed. I was prepared with some really good creams, so my breast was not too bad. It felt like a BAD sunburn towards the end of the treatments.

I hope this helps. Stay strong.

Colleen

[DDIL1 in reply to USIrishcolleen]

Did it kill the cancer in the lymph? Was this pre Metastatic?

[USIrishcolleen in reply to DDIL1]

Hello DDIL1,

It turns out that I thought that I was metastatic (because I had a cancerous lymph node) but I am not. I had the wrong definition of metastatic. I stay on this site because I learn from each one of the ladies, something that may assist me one day.

I hope that I helped with your question.

Best,

Colleen

[USIrishcolleen]

Forgot to mention that they took a total of 18 lymph nodes, and thankfully there was only cancer in the one that they knew had cancer, because they biopsied it.

[Beryl71]

I had both radiation and surgery on lymph nodes and a segmentectomy on my right breast when I had my primary tumour, but that was many years ago. It was called axillary clearance. It left me with lymphodema which , fortunately I now have under control. I also had chemo for six months and tamoxifen for ten years. However I was diagnosed with MBC in 2020, 26 years later, but had all those years of respite so feel pretty lucky. X

[wendle3007]

I've had RT on one of my vertebrae when an MRI scan showed the cancer was growing around the cord. That was in December and I was told the effects aren't immediate so I'll be asking about this when I see Oncologist later this month. When I had RT on the breast area I was told they wouldn't include the axillary nodes because it can cause lymphedema ( I had 19 nodes removed in surgery) they did the main tumour area and the nodes in the collar area.

[DDIL1 in reply to wendle3007]

Did the nodes get removed and take the cancerous ones out?

[wendle3007 in reply to DDIL1]

Yes. 19 removed, 13 of which were cancerous.

[DDIL1 in reply to wendle3007]

Was the nodes on your armpit? Are you MBC?

[wendle3007 in reply to DDIL1]

Yes those nodes were in arm pit (axillar). Yes I have mets on spine and pelvis, as I said big met on spine was given RT.

[8576]

I had radiation back in 2013, when I was first diagnosed to the left hip bone. The tumour was deemed to big to remove. Then in 2020I had radiation to the left breast to try and kill another tumour in the left breast, (the original cancer) but it broke through the skin. I had the entire breast and lymph nodes removed. Surgery was also a piece of cake with little pain and healed within a week to 10 days.

The hip has been stable ever since and the cancer never returned to the breast area. Unfortunately it had already spread to my lungs. Although, it is slow growing and has caused me little problems. So I wait.

Meanwhile I am on Verzenio and Tamoxifen after many meds failed. The doctor agreed to one more round and it was successful. In my second round.

Hope this helps.

Cheers, June S.

[DDIL1 in reply to 8576]

I’m Metastatic so they won’t do a mastectomy but if I can remove the infected lymph that is a seeder I would think it would be helpful. Glad your meds are now working!

[8576 in reply to DDIL1]

I am metastatic as well. The breast went to the left hip. They removed it because it was breaking through the skin but it is worth it to have it removed anyhow. Get a second opinion.Mine was different but I understood it could be removed before that but wouldn't cure me of cancer. Understood but just got rid of it anyhow and it has never returned to that area. It was gone to both my lungs anyhow but I wonder if had been removed earlier if it would have spread to my lungs. Just a thought.

Cheers, June S.

[Justme153]

So I had an axillary disection and mastectomy left side. 35 days of radiation. The last week of radiation I had blistering it didn't hurt just looked terrible. I think it took about a week or a little longer after treatment stopped to clear up. I had a latisamis flap done ( not sure of spelling) . I am not sure if it is the flap procedure the axillary removal or the radical mastectomy ( the tumor was large they had to take part of the pectoral muscle to get clean margins ). But I get cramping like Charlie horse on that side some times fairly bad others not so bad. My left side from center of back around to center in front feels like I have some sort of wide strap on that has been pulled super tight. I say its uncomfortable not painful.

[Rubyln15 in reply to Justme153]

Hello Justme153, When I first found my cancer it was in left breast and lymph nodes under armpit. I chose to have double mastectomy and removal of lymph nodes in left arm. I had cancer in two lymph nodes. I had surgery on entire chest with reconstruction. My body feels as if I have a tank top on at all times. This was tight feeling at first but now after 13 years it comfortable but there.

[love2golfwell]

I have had SBRT to two bone lesions, one on my ischium and one on the sacrum. The treatments were each 5 sessions and took about 15 to 20 minutes each. They were painless and I was able to resume normal activities afterwards. My scans have been stable since I had these treatments so I believe they worked. Best wishes to you.

[DDIL1 in reply to love2golfwell]

So did it kill those lesions?

[love2golfwell in reply to DDIL1]

The one on the sacrum has never shown up again and the one on the ischium is not active and is considered healed. I never experienced pain from either one. The only reason they even found them is that my tumor marker was slightly elevated after 7 1/2 years of being cancer free and my oncologist knew something must be going on even though I had no symptoms of anything. After some scans, the one on the ischium was found. I did not doing anything right away as we were relocating to another state. When I moved a month later, my new oncologist had me get radiation for that lesion. Sometime in between my scans in Illinois and my scans in Florida a new lesion grew on the sacrum so I went back for radiation on that one. My scans since then have shown no new evidence of disease, so the radiation obviously did something.

[DDIL1]

I have 3 bone Mets and 3 lymph nodes in armpit. Very close to ogliometastatic. I want to radiate bone Mets and kill that cancer do something about the lymph nodes.

[NPmary]

Radiation for metastatic bone cancer is for pain relief it does work it lessened my pain . Aiming for lower doses that will still be effective can reduce side effects. Radiation will not cure bone mets.Wish you the best ❤🌺❤

[Hidden in reply to NPmary]

It does not cure its, but it feels great to know if ZAP the hell out of it! There no downside.

[KimberlyB40]

I had radiation on my lower back to help with pain. Where my mets are located they had to go from the front to reach it so I only lasted 3 treatments before not being able to handle the side effects. They had to go through my intestines

[DDIL1]

I saw this article ncbi.nlm.nih.gov/pmc/articl...

[Hidden]

Hi There, I had radiation for my sacrum and T-12 MBC, it was a complete success. 10 weeks after radiation, my PET showed a resolution of the previously seen metabolic activity and no new lesions. I highly recommended. Other than a little bit tired, I had no side effects from radiation. I have also been on Ibrance, Letrozole and Zometa for 5 months. Good luck!

[DDIL1 in reply to Hidden]

Thank you. My onc referred me to a radiology oncologist and I’m consulting with a dr at Dana Farber. I want to explore my options!

[Hidden in reply to DDIL1]

Great. I also found my radiation oncologist to be super detailed oriented, showed me actual Per Scan pictures and layes over the treatment. She was so much better than my actual oncologist, leas rushed and very accurate about side effects. Also, it is unlikely the cancer will return to the same place after radiation. 🤞good luck!

[DDIL1 in reply to Hidden]

Thank you that’s very helpful for me to know!