MBC is so frustrating

[Debbigbang]

My liver is still growing, quickly, which isn't the norm for invasive ductal carcinoma. I am now off fulvestrant and will be going on xeloda try to get these tumors to shrink tomorrow after blood work gets back.

My onocologyst wants to do a biopsy of my liver tumors to see if they are my primary's type her2-. They could be another type 🤷‍♀️.

That is the frustrating part, this not knowing why this is happening.

I am hoping that once I start taking xeloda tomorrow these tumors will shrink or get rid of them. Other than this annoying liver there is no other tumors 🤷‍♀️.

My question...give me some good stories about xeloda 🥰

Deb ❤🙏

[ChrisVict]

It does work so keep the the faith

[Debbigbang in reply to ChrisVict]

Yup faith and hefty amount of sense of humour going through this. I am pretty sure this disease need those to get through the frustrating days 100%.

[Hopeful4Cure in reply to ChrisVict]

How are you doing ChrisVict on Xeloda? Hope you are doing well still..Blessings

[life8888]

I had liver spots show up in my PET while on ibrance+faslodex+lupron. Liver ultrasound didn't show anything. Switched to xeloda only, and the spots were gone in the next PET. Also a pulmonary effusion and spot in a lymph node disappeared. So be hopeful! Be sure to have zofran or some anti-nausea meds + ginger chews/tea around, because the nausea can really kick in. Also hand-foot syndrome builds up over time.

[Debbigbang in reply to life8888]

Thank you so much for your response. I appreciate your advice. I have raw ginger on hand to put in hot water. My onocologyst told me about the hands and feet and the dry skin and did give me nausea medication.

I just know this will work to shrink this mass.

Thank you again ❤

[Silver126 in reply to Debbigbang]

After four months on Xeloda I never experienced nausea or severe hand foot syndrome, just thinner skin on fingertips. I can say I feel much better than on Ribociclib + letrozole. My hair too looks so much better! I wish you the same🤗♥️

[purplelikep]

I was originally thought to be Her2- when I was stage 3c. Was finally able to get a liver biopsy a year into being metastatic as I didn't respond great to Verzenio or Afinitor (both with Faslodex) and we recently found out i'm now Her2+. We think that's why I haven't done well with the previous two drugs. Here's to hoping the upcoming Her2 treatments do work well for me.

[Debbigbang in reply to purplelikep]

I know treatments for her2- and her2+are a bit different. Glad they have you sorted !!! Now you can get the right meds 🥰

Deb ❤🙏

[Hopeful4Cure]

Just checking in to see how you are doing on Xeloda? I am starting my 3rd cycle and wanted to make sure we are all doing ok.