Posts - SHARE Metastatic Breast Cancer | HealthUnlocked

SHARE Metastatic Breast Cancer

6,687 members • 8,227 posts

All posts for October 2019

Overachiever?

So I had written awhile ago that my tumor markers went up and I had a cat scan showing a large pelvic mass. I’m 2 weeks out from surgery today as it turned...

So I had written awhile ago that my tumor markers went up and I had a cat scan s...

Stage4Gir

•5 years ago

27 Replies

New articles regarding Progress in the Cancer Space. NEVER lose hope.

This is along the lines of what we have been hearing about. But I am not a medical professional and don’t understand the medical mechanisms. Here are two...

This is along the lines of what we have been hearing about. But I am not a medi...

KC1025

•5 years ago

Be the first to reply

Afinitor 10mg and exemestane 25mg update

Thank you to everyone who responded to my previous post and gave me loads of really useful information. It real made me feel that the situation wasn't as...

Thank you to everyone who responded to my previous post and gave me loads of rea...

Julie2233

•5 years ago

6 Replies

Want to take advantage of all our features? Just log in!

Med change....again

Hello warriors, Mom has been on Ibrance with letrozole, then Faslodex, now Xeloda and is being switched to Piqray. Has anyone taken Piqray? Share your...

Hello warriors, Mom has been on Ibrance with letrozole, then Faslodex, now Xelod...

Hidden

•5 years ago

4 Replies

How Strong Are You?

Given all the posts & the many things we have been through, are going through, or will go through, I found this picture helped me realize so much about myself....

Given all the posts & the many things we have been through, are going through, o...

hopenowandtomorrow

•5 years ago

9 Replies

Afinator and Exemestane

Results from PET scan yesterday shows 2 of 3 tumors have grown and uptake is brighter. Oncologist has taken me off ibrance and faslodex after 18 months....

Results from PET scan yesterday shows 2 of 3 tumors have grown and uptake is bri...

Lovemylakie

•5 years ago

10 Replies

Low Hgb!!!

Enough is enough!! 7.1 yesterday!! On Afinitor and examethane!!! 15-3 still increasing!!! Running out of oral options- do not have the receptors for the new...

Enough is enough!! 7.1 yesterday!! On Afinitor and examethane!!! 15-3 still incr...

MMMP

•5 years ago

3 Replies

Ibrance Fatigue help

This is my first time ever posting anything like this, but I am looking to the breast cancer community for advice. I am on letrozole and ibrance and seem to...

This is my first time ever posting anything like this, but I am looking to the b...

Fight2016

•5 years ago

22 Replies

Tumor markers

My ca 27 29 went from 1600 in September to 2300 on 9/10 Calling onc to see what that means doesn’t sound good to me my wbc was still good has anyone had a...

My ca 27 29 went from 1600 in September to 2300 on 9/10 Calling onc to see w...

library2019

•5 years ago

10 Replies

Tooth Issues

Is anyone on Ibrance and an Inhibitor having tooth issues? Suddenly several teeth hurt - being a retired Dental Assistant, I have always been very careful...

Is anyone on Ibrance and an Inhibitor having tooth issues? Suddenly several tee...

Survivornow

•5 years ago

16 Replies

Scan results

Mixed results yesterday Bones lung nodules stable Liver met smaller after SABR radiation BUT a tiny new liver met has shown up on mri but not visible on ct...

Mixed results yesterday Bones lung nodules stable Liver met smaller after SABR ...

Barbteeth

•5 years ago

62 Replies

Implant and reduction/lift surgery while on Ibrance

I have Mets to bones’ ER PR positive HER negative. My oncologist wants to keep me on Ibrance even though I’m having my implant exchange on the mastectomy side...

I have Mets to bones’ ER PR positive HER negative. My oncologist wants to keep m...

Sunny2020

•5 years ago

4 Replies

Sharing the News

First of all, I am so grateful for finding this forum...what a God send! All of the questions I have about this diagnosis are answered or addressed somewhere...

First of all, I am so grateful for finding this forum...what a God send! All of ...

Iwasborntodothis

•5 years ago

26 Replies

Reply

My right arm hurt and like you said, not from working out. I got an X-ray because I thought I’d better check it. However it was not broke. Also like you said;...

My right arm hurt and like you said, not from working out. I got an X-ray becau...

rpeacock

•5 years ago

Be the first to reply

Ibrance/Letro works! Good news on scan.

Friends, good news on my scan from Friday! "Very little disease" It describes the little disease, but I've come a long way from where the metestasis started...

Friends, good news on my scan from Friday! "Very little disease" It describes t...

Hidden

•5 years ago

43 Replies

Radiation for pain

I'm scheduled to get radiation on my breast to help with pain. My breast was already radiated fifteen years ago when I first had breast cancer. Normally you...

I'm scheduled to get radiation on my breast to help with pain. My breast was al...

flatrock17

•5 years ago

1 Reply

Question about imaging and biopsies

I was diagnosed in May with Stage IV de novo breast cancer to my GI tract after two different endoscopies showed cancer in two places in my stomach from the...

I was diagnosed in May with Stage IV de novo breast cancer to my GI tract after ...

Hidden

•5 years ago

12 Replies

Arm hurts

Has anyone have their arm hurt like if they worked out but you haven’t ? This pain comes and goes I’m starting to get worried 😟

Has anyone have their arm hurt like if they worked out but you haven’t ? This pa...

Katherinelopez

•5 years ago

4 Replies

Sigh!

Managed to land myself in the hospital for two nights due to multiple blood clots in both lungs so I guess my new treatment is on hold for now. I did manage to...

Managed to land myself in the hospital for two nights due to multiple blood clot...

Topaz_77

•5 years ago

17 Replies

List of Herbs and Supplements, effects, interactions and risk

Just wanted to share this site for those interested. I know adding in 'extra' modalities is a hot topic and I came across this today....

Just wanted to share this site for those interested. I know adding in 'extra' mo...

Baseface

•5 years ago

8 Replies

FYI re October 13 and MBC awareness

Friends — according to this link, only 7% of research dollars go to MBC. We rightly are frustrated about the lack of MBC awareness and education during “pink...

Friends — according to this link, only 7% of research dollars go to MBC. We righ...

Hidden

•5 years ago

8 Replies

NEW PODCAST “Making the breast of it”

Hello! I just wanted to let you all know about two local young women who have MBC from the Philadelphia area and have started this podcast. Both in their late...

Hello! I just wanted to let you all know about two local young women who have MB...

KC1025

•5 years ago

6 Replies

Secondary sisters

Just read in the Times today about two 31 yr old ladies with mbc who have set up a support group called secondary sisters I don’t seem to be able to access it...

Just read in the Times today about two 31 yr old ladies with mbc who have set up...

Barbteeth

•5 years ago

3 Replies

Itchy Scalp

My head gets a burning itch but only at night. I get severe night sweats and I thought maybe it was the sweating causing it but now I’m finding I’m waking up...

My head gets a burning itch but only at night. I get severe night sweats and I t...

Hidden

•5 years ago

7 Replies

Good news on scans!

Hi Everyone, I have really been enjoying reading your supportive posts and updates. This is such a great community. I had scans last month as a follow-up to...

Hi Everyone, I have really been enjoying reading your supportive posts and updat...

CincinnatiExperience

•5 years ago

34 Replies

Botox with MBC?

Before my Stage IV diagnoses in April 2019, I was getting Botox injections between my eye brows 2-3x per year. This reduced the lines between my eyebrows. I...

Before my Stage IV diagnoses in April 2019, I was getting Botox injections betwe...

hopenowandtomorrow

•5 years ago

24 Replies

Thanks for the info on Zometa

Thanks for the information on Zometa. I will let you all know how it goes after I start in two weeks. Gwennie

Thanks for the information on Zometa. I will let you all know how it goes after ...

Gwennie123

•5 years ago

3 Replies

Faslodex??

CROSS POSTING Hi all, I’m at the Susan Komen Conference In NY this weekend. I had a long talk with a doctor who specializes in bone Mets and he told me that...

CROSS POSTING Hi all, I’m at the Susan Komen Conference In NY this weekend. I h...

Lisa11171

•5 years ago

17 Replies

Zometa

Hi all I’ve been on Ibrance exgeva faslodex for the past year. My onc want me to start zometa next month. What sort of side effects can I expect? Thanks for...

Hi all I’ve been on Ibrance exgeva faslodex for the past year. My onc want me to...

Gwennie123

•5 years ago

13 Replies

Should I bother buying something big?

Diagnosed MBC June 2018 after 2 previous BC diagnoses. My numbers are good (so far) and I remain on Ibrance. I’m 63 and retired now. My supportive husband...

Diagnosed MBC June 2018 after 2 previous BC diagnoses. My numbers are good (so f...

Hidden

•5 years ago

31 Replies

Posts - SHARE Metastatic Breast Cancer | HealthUnlocked

SHARE Metastatic Breast Cancer

All posts for October 2019

Overachiever?

New articles regarding Progress in the Cancer Space. NEVER lose hope.

Afinitor 10mg and exemestane 25mg update

Med change....again

How Strong Are You?

Afinator and Exemestane

Low Hgb!!!

Ibrance Fatigue help

Tumor markers

Tooth Issues

Scan results

Implant and reduction/lift surgery while on Ibrance

Sharing the News

Reply

Ibrance/Letro works! Good news on scan.

Radiation for pain

Question about imaging and biopsies

Arm hurts

Sigh!

List of Herbs and Supplements, effects, interactions and risk

FYI re October 13 and MBC awareness

NEW PODCAST “Making the breast of it”

Secondary sisters

Itchy Scalp

Good news on scans!

Botox with MBC?

Thanks for the info on Zometa

Faslodex??

Zometa

Should I bother buying something big?

Search posts

Pinned Posts

Latest poll

Has this community positively impacted your breast cancer journey? If yes, please describe how in the replies below

Topics

Archive