Good news on scans!

[CincinnatiExperience]

Hi Everyone,

I have really been enjoying reading your supportive posts and updates. This is such a great community.

I had scans last month as a follow-up to scans in late May when I was originally diagnosed with metastatic disease. This is a recurrence from my original diagnosis in 2002 when I had chemo, radiation, and surgery to resolve my original diagnosis of Inflammatory Breast Cancer. The scans all show resolution of any "spots" or decrease in size. There are only a couple of new spots, but they are now measuring them in mm rather than cm. All good news! Involvement is in bones, liver, lymph nodes, and lungs, but everywhere it is looking much better.

I am currently on Verzenio (150 mg. twice a day), Faslodex and Zoladex, (monthly). They seem to be working!

Anne (in Cincinnati, Ohio, USA)

[Barbteeth]

That’s very encouraging...pleased for you

I get my scan results tomorrow and I’m scared...had SABR radiotherapy for a liver lesion that had progressed so I’m very worried...most of my lesions are bones plus a few pleural nodules

Like you mine came back after many years..24 yrs...it was an awful shock as you know!

All the best

Barb xx

[Teddielottie in reply to Barbteeth]

Will be thinking of you tomorrow Barb ! ...Keep busy today ...go see a nice movie ( Have you seen Downton Abbey yet ? ) or get out for some fresh air while the weather’s good . x

[Barbteeth in reply to Teddielottie]

Been for a swim which made me feel better

Don’t fancy Downton Abbey but went to see ‘Judy’ last night..brilliant..I cried!!

Barb xx

[Teddielottie in reply to Barbteeth]

Glad you are feeling a bit better after a swim ! I would like to see “ Judy” too ...husband wants to see “ The Joker” but looks a bit too scary for me , but daughter has seen it at uni and said it’s an excellent film ?!! x

[Barbteeth in reply to Teddielottie]

We’re going to see ‘the joker’ probably on Friday

I love scary stuff!!

Have you seen the new Tarantino film ‘once upon a time in Hollywood ‘...that’s brilliant especially with the bonus of Brad Pitt in it!!!

Barb xx

[MyMiracle13 in reply to Barbteeth]

Will keep you in my prayers Barb. Have you got your energy back?

[Barbteeth in reply to MyMiracle13]

Yes I’m definitely feeling a bit more like the old Barb

Thanks

Barb xx

[nstonerocks in reply to Barbteeth]

Barb

Please let us know ASAP how it went. Sending a big virtual hug

[Barbteeth in reply to nstonerocks]

Oh thanks Nancy

Barb xx

[hopenowandtomorrow in reply to Barbteeth]

Praying for you Barb! Looking forward to hearing your scan results. 💐🌈🌞💕🙏🤗

[Hidden in reply to Barbteeth]

Hi Barb,

I hope you get some good news tomorrow. Please let us all know if you feel up to sharing. I'll be thinking of you.

Sophie x

[mariootsi in reply to Barbteeth]

Sending hugs for good results tomorrow. Please let us know.

[Marieleb in reply to Barbteeth]

All the best for your results today.Thinking of you

[Tam-56 in reply to Barbteeth]

Barb

Fingers crossed for good results from Radiotherapy 🤞

[Valisa in reply to Barbteeth]

Wishing you all the best on your results today. I hope the radiotherapy has made for some promising results. 🤗

Lisa

[Barbteeth in reply to Valisa]

Hi Lisa

I do hope so as I’ve had to put up with hideous side effects for 3 months...hope it was worth it!!!

I’m so worried this time I’m even taking my hubby with me which I almost never do!

Barb xx

[Teddielottie]

So glad to hear your good news ... start planning that holiday ! x

[MyMiracle13]

Happy for you that your meds are working!

[nstonerocks]

💕so happy your treatment is working and that you found this site.

[Hidden]

Congratulations! That is great news yo hear!❤️

[hopenowandtomorrow]

Great news Anne! Thank you for sharing! ❤️🙏❤️

[Maludagui]

Good news 🌺🎀 thanks GOD🙏

[Hidden]

Hi Anne,

That is very good news! You seem to be responding very well to treatment. Let's hope you continue in like manner for many more years to come. Thanks so much for sharing your good news.

Sophie

[kearnan]

How are you handling the 150 mg. of Verzenio. After stopping the Ibrance, my onco put me on that 2x a day. Omg. I could not handle the severe bouts of diarrhea and felt housebound and felt awful. I stopped it on my own after a week thinking I am not going to take something that makes me unable to leave my house. She lowered it to 100 mg. and I have the stomach pain and again the severe diarrhea and again I stopped after a week. She then gave me the lowest dosage and that was the trick. I do not get as fatigued as I did on Ibrance which was awful for me. I know how I am going to feel every day basically. With Ibrance, I never knew until I woke up. And on the lower dosage, I am more able to manage between the diarrhea and constipation so I have feel much better on the lowest dose.

I know we are all different, just wondering how the side effects of the 150 mgs. were for you. i could not handle it.

[CincinnatiExperience in reply to kearnan]

Hi,

Thanks for the response. I am doing OK on the Verzenio. It does cause wicked diarrhea, but I have been chronic with the opposite for years, so this is almost something of a relief! Mine usually occurs in the evening, so it is tolerable. It started a couple of weeks after the treatment began. I use one dose of Loperamide Hydrochloride immediately, and that always does the trick. It's funny---the Verzenio people actually sent a box of it with my start-up kit! As long as you can get this inconvenience on a schedule, it is easier to handle.

Now, to you and all others----PLEASE do not stop taking any medicine without first consulting with your doc. Would you rather see progression of your disease (or worse)? I think not. Most onc docs will get back to you, or at least have a nurse get back to you, fairly quickly. Call them first to discuss.

Anne

[MacroMom]

So happy for you! Thanks for sharing your good news - it's encouraging for all of us.

[Zebra2018]

Fantastic! So happy for you.

God bless you

[mariootsi]

Congratulations! Thanks for sharing your good news!

[Marieleb]

Excellent news.

[Tam-56]

Welcome to this group Ann! I’m glad you are doing so well on this combination of meds. ❤️

[Valisa]

Great news! I wish you continued stability and response to your meds. Glad you found this site. It has been very helpful and informative for me.

[Rhwright12]

Congrats on the shrinking scan! ❤️🎊❤️

[Hidden]

Fantastic news! Congratulations!!

[RLN-overcomer]

Yesssssssssssssssss, and Yayyyyyyyyyyyyyyy C-E-L-E-B-R-A-T-E with your family, and friends. Good by cancer you are being evicted from this temple. XoXoXo God's continued blessings.