FYI re October 13 and MBC awareness

Friends — according to this link, only 7% of research dollars go to MBC. We rightly are frustrated about the lack of MBC awareness and education during “pink October.” I plan to post this to my social media on 10/13 which is MBC awareness day

mbcn.org/october-13-nationa...

[nstonerocks]

You are brave. I’m still sorta in the closet. You go, girl! October is not my favorite month🤭

[Hidden in reply to nstonerocks]

I’m “in the closet” too except for a few friends. I’m not blabbing it all over but using Facebook etc to encourage awareness. I learned the first two times around that not everyone is equipped to handle this news. Right now, I look fine and I want to avoid the look

[nstonerocks in reply to Hidden]

I blabbed. I’m sorry I did. But I haven’t done anything public. I still have a hard time otherwise I’d do some advocacy. I applaud you.

[AvidBooklover]

I have told very few people. That said, it makes me crazy about how little funding goes to MBC. I said this 7 years ago when I had orig diagnosis and never thought I too would have it. I was diagnosed in Oct and it was insane to see pink everywhere saying get screened. I had been screened for years! I have many friends who have had breast cancer and they would flip out if they knew I was MBC. And I often wonder who else has it and stays silent. Say Stage IV and people want to plan your funeral!

[diamags]

We all deal with this diagnosis differently, as we are all different. I told everybody! I have no regrets. I only had one person who kept sending me condolence cards, but even she gave up -- I don't seem to be going anywhere! I'm grateful for that. But the other side of the coin is that when it's scan time, I tell people that I'm nervous about it, and they understand. In addition, very few people understand that there's a difference between stage I and stage IV. Many, many people think there's a cure -- a little chemo and we're all good to go -- I thank the pink ribbon people for that. They lump all stages together as it's in their best interest, it is a non-profit business and saying that everybody is living long lives is good for business. So, I take it upon myself to educate the unknowing as to the reality that we stage IV people live. I don't go dramatic on it, but I do let them know about scanxiety and the aches and pains of my meds. These are the reality. At this point, it's just another thing in my life and that's how they see it.

[illini9]

October is tough - I too try and do some awareness work on social media and will use this article.

One thing I found this year that I think is incredible is the Moore Fight Moore Strong campaign to "lightupMBC which is an effort to light up landmarks in the Metavivor Metastatic ribbon colors of green, pink, and teal.

moorefightmoorestrong.com

It's a great awareness campaign and helps offset some of the pink that happens that isn't helpful.

💗Auckland, New Zealand: Sky Tower (*pink only due to lighting limitations - October 1st - October 6th

💚Anchorage, AK: JL Tower (*green/teal only) - Sunday, October 13th

💗Atlanta, GA: King & Queen Buildings - Sunday, October 13th

💙Baltimore, MD: City Hall - Friday, October 11th - Monday, October 14th

💗Branson, MO: Branson Missouri Ferris Wheel - Friday, October 11th - Sunday, October 13th

💚Boston, MA: Zakim Bridge - Sunday, October 13th

💗Buffalo, NY to Ontario Canada: Peace Bridge - Sunday, October 13th

💙Calgary, Canada: Calgary Tower - Sunday, October 13th

💚Camden, NJ: Benjamin Franklin Bridge (*teal only) - Sunday, October 13th

💗Charlotte, North Carolina: Wells Fargo Duke Energy Center – Tuesday, October 8th

💙Chicago, Illinois: The Wrigley Building - Friday, October 11th

💚Cleveland, OH: Rock & Roll Hall of Fame - Sunday, October 13th

💙Dallas, TX: Omni Hotel - Sunday, October 13th

💚Dallas, TX: 1999 Mckinney Ave Building in Dallas, TX.

💗Dover, Delaware: The Legislative Building – Friday, October 11th – Sunday, October 13th

💚Duluth, MN: The Enger Tower - Saturday, October 12th

💗Fort Erie, Ontario: Peace Bridge - Sunday, October 13th

💙Fort Wayne, Indiana: Dr. Martin Luther King Jr Memorial Bridge - Sunday, October 13th

💚Gilbert, AZ: Gilbert Water Tower - Saturday, October 12th-Monday, October 14th

💗Grand Rapids, Michigan: McKay Tower - Friday, October 11th-Sunday, October 13th

💚 Green Bay, WI: The Green Bay Bridge - Sunday, October 16th.

💙Halifax, Nova Scotia: City Hall – Sunday, October 13th

💗Harrisburg, PA: The Capital Building - Sunday, October 13th

💚Harrisburg, PA: The Market Street Bridge - Sunday, October 13th

💗Harrisburg, PA: The Walnut Street Bridge - Sunday, October 13th

💙Honolulu, HI: Aloha Tower - Sunday, October 13th

💗Houston, TX: Montrose Bridges and City Hall - Sunday, October 13th

💙Jacksonville, Florida: Mayo Clinic Campus - Sunday, October 13th

💗 Jamestown RI: Sakonnet River Bridge - Saturday, October 12th (*teal only) Note: May not be able to light due to lighting malfunction

💚Kansas City, MO: KC Power & Light - Sunday, October 13th

💙Kilkenny, Ireland: Kilkenny Castle - Sunday, October 12th and 13th (*teal only)

💗Kittery, Maine: Memorial Bridge – Sunday, October 13th

💗Kittery, Maine: Portsmouth Naval Shipyard Cranes – Sunday, October 13th

💙Lexington, KY: Helix Garage - Sunday, October 13th

💚Little Rock, AR: Union Plaza Building (*green/teal only) - Sunday, October 13th

💗Los Angeles, CA: LAX Airport Pylons - Sunday, October 13th

💗Los Angeles, CA: The US Bank Tower - Sunday, October 13th

💙Manhattan, Kansas: Flint Hills Discovery Center - Sunday, October 13th

💚Miami Florida: The Miami Towers - Sunday, October 13th

💗Minneapolis, MN: I-35W Bridge - Sunday, October 13th

💗Minneapolis, MN: The Lowry Avenue Bridge - Sunday, October 13th

💙Mobile, Alabama: RSA Building - Sunday, October 13th

💚Montgomery, Alabama: RSA Building - Sunday, October 13th

💗Nashville, TN: Korean War Veterans Memorial Bridge - Sunday, October 13th

💗National Harbor, MD: Capital Wheel - Thursday, October 10th (for Stage IV Stampede)

💙New Orleans, LA: Mercedes-Benz Superdome - Sunday, October 13th

💗Niagara Falls, NY to Ontario Canada: Niagara Falls – Saturday, October 12th (Time: 10:00pm-10:15pm)

💙Oklahoma City, OK: Skydance Bridge - Sunday, October 13th

💚Omaha, NE: WoodmenLife Tower - Sunday, October 13th

💗Philadelphia, PA:Benjamin Franklin Bridge (*teal only) - Sunday, October 13th

💚 Philadelphia, PA: CIRA Centre (*teal only) - Sunday, October 13th

💗 Philadelphia, PA: FMC Tower (*teal only) - Sunday, October 13th

💙Phoenix, Arizona: Mayo Clinic Campus - Sunday, October 13th

💗Pittsburgh, PA: The Gulf Tower - Sunday, October 13th

💚Pittsburgh, PA: The BNY Mellon - Sunday, October 13th

💙Pittsburgh, PA: The Highmark - Sunday, October 13th

💙Pittsburgh, PA: The Koppers Building - Sunday, October 13th

💗Pittsburgh, PA: Homestead Grays Bridge - Sunday, October 13th (*teal only)

💗Pittsburgh, PA: One Oxford Center Building - Sunday, October 13th

💙Pittsburgh, PA: The Rivers Casino will light their ballroom chandelier - Sunday, October 13th (*teal only)

💚Portland, ME: City Hall - Sunday, October 13th

💗Portland, Oregon: Morrison Bridge - Sunday, October 13th (Note: May not be able to light due to lighting malfunction)

💙Portsmouth, NH: Memorial Bridge – Sunday, October 13th

💚Poughkeepsie, NY: Mid Hudson Bridge (*green/teal only) – Saturday, October 12th

💗Richmond, Virginia: Science Museum of Virginia - Sunday, October 13th (*green/teal only)

💙Rochester, Minnesota: Mayo Clinic Campus - Sunday, October 13th

💚Saint Louis, MO: Planetarium - Sunday, October 13th

💗Salt Lake City, UT: Huntsman’s Cancer Institute - Sunday, October 13th

💗San Diego, CA: San Diego Convention Center - October 13th (*teal only)

💙Seattle, WA: SR 520 Bridge - Thursday, October 10th - Monday, October 14th

💗Seattle, WA: Columbia Center - Sunday, October 13th

💙Sussex County, DE: Cullen Bridge - Sunday, October 13th (*green/pink only)

💚Sydney, Australia: Town Hall – Sunday, October 13th (*teal only)

💗Toronto, Canada: CN Tower – Saturday, October 12th

💙Yonkers, NY: Yonkers Clock Tower - Sunday, October 13th

💚Vancouver, British Columbia: BC Place - October 26th

💗Vancouver, British Columbia: The Sails of Light - October 13th (*green/teal only)

[mariootsi]

Had no idea the level of funding was that low.

[RLN-overcomer]

Greetings: Sister/warrior I heard similar information a few years back, that mentioned that the majority of the money donated to eradicate this disease does not go to actual women/men warriors facing this disease. This is a travesty. Women. and yessssss men warriors are suffering everyday through this disease and have to undergo painful medical surgeries, painful treatments, and medications that have adverse painful side effects. They/we deserve better. There will always be greedy people whose agenda is to line their pockets with money. I know there are some well meaning great people/organizations out there fighting to destroy this disease. For the most part I can't put my trust in human beings, but I do put my trust in God to guide me to the right people on this journey. Thank you for keeping us updated on where these donations are really going. Enjoy this beautiful day.