Posts - SHARE Metastatic Breast Cancer | HealthUnlocked

SHARE Metastatic Breast Cancer

6,607 members • 8,142 posts

All posts for April 2019

Fight Song

Hi Ladies, Last week when I was discourage my good friend sent me this link to a song that I think applies to all of us. Its worth listening to and I even...

Hi Ladies, Last week when I was discourage my good friend sent me this link to a...

Kimr2081

•5 years ago

8 Replies

🤭Sex???🤭

Hi🌺 It's a bit of a shameful subject. Sex after radiotherapy and chemo for me is very painful. The dryness of the mucous membranes is extreme. I could not...

Hi🌺 It's a bit of a shameful subject. Sex after radiotherapy and chemo for me i...

Maludagui

•5 years ago

30 Replies

The Berkeley Institute

Has anyone come across this treatment? The main clinic is in California... https://berkeley-institute.com

Has anyone come across this treatment? The main clinic is in California... https...

Toomanyquestions

•5 years ago

27 Replies

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Happy Easter

Happy Easter and Happy Passover to my sister warriors. Hope you all get to enjoy the day.💕💕💕 Love Frances

Happy Easter and Happy Passover to my sister warriors. Hope you all get to enjoy...

Francesca10

•5 years ago

5 Replies

Happy Easter

Enjoy this beautiful day with friends and family. Happy Easter and God bless!

kduck

•5 years ago

1 Reply

Upper respiratory infection

I have been battling bronchitis for about three weeks. I know that many viruses can cause this but I am wondering if it could be a side effect of ibrance. I...

I have been battling bronchitis for about three weeks. I know that many viruses ...

Epinto

•5 years ago

12 Replies

Discouraged

Hi Ladies... first of all, I am in awe of the strength you all have and the help you give each other. You are all AMAZING! Question... do you ever get...

Hi Ladies... first of all, I am in awe of the strength you all have and the hel...

RLMB

•5 years ago

19 Replies

Mri results perplexing

So I went to see radiation oncologist today for mri results. He tells me decreased activity t4-9 but new spots t12 and L2. Talk about confusion.! I asked him...

So I went to see radiation oncologist today for mri results. He tells me decreas...

Francesca10

•5 years ago

4 Replies

Ibrance copay in USA

So what have you ladies found in changes of Medicare 2019 and copays??

blms

•5 years ago

62 Replies

THANK YOU!!

I just wanted to say thank you to each and everyone of you who responded. Your encouragement, insite and advice has really lifted me up. Here's to a new day...

I just wanted to say thank you to each and everyone of you who responded. Your ...

Kimr2081

•5 years ago

7 Replies

Seeking opinions....

I’ve been on Ibrance/letrozole combo for 1 year now. I started on 125 mg, but dropped to 100 mg after the first cycle. For my last 2 cycles (March and...

I’ve been on Ibrance/letrozole combo for 1 year now. I started on 125 mg, but dr...

Onie54

•5 years ago

57 Replies

Updated Insider's Guide to Metastatic Breast Cancer

Greetings! I'm Anne Loeser, the author of the book and .pdf and am so glad you found this resource! That said, the version on the Metastasis Research site was...

Greetings! I'm Anne Loeser, the author of the book and .pdf and am so glad you ...

Bestbird

•5 years ago

24 Replies

Cycle 1 of ibrance a success!

A great way to start Holy Week-WBC’s remain stable. 15-3 came down to 441 from 578. Will wait 1 more week than restart 2nd cycle at 100mg. Thanks for all the...

A great way to start Holy Week-WBC’s remain stable. 15-3 came down to 441 from 5...

MMMP

•5 years ago

7 Replies

Discouraged

I know so many of you post about measuring tumor markers and I know a lot of onc's don't rely on them but my doctor does take them and for the second month in...

I know so many of you post about measuring tumor markers and I know a lot of onc...

Kimr2081

•5 years ago

73 Replies

Pet scan results

Got my results ... the Letrozole has stopped working after 10 months. And the cancer in my bones has increased - a lot (twice as much In most bones). I was...

Got my results ... the Letrozole has stopped working after 10 months. And the c...

Terilyn12

•5 years ago

34 Replies

Can we drink fresh fruit juices

Hi ladies, I am new to these group but i find people here are very supportive and share out our experiences throughout our cancer journey. Me too, no...

Hi ladies, I am new to these group but i find people here are very supportive a...

Joy_ma

•5 years ago

13 Replies

good news on markers

After just 2 months on Letrozole markers down from about 140 to 80. I am also taking Carnivora, Graviola, turkey tail mushrooms, and some raw aprocit pits....

After just 2 months on Letrozole markers down from about 140 to 80. I am also ta...

Arkait

•5 years ago

10 Replies

Mucositis after chemo

Any one suffered from Mucositis / mouth ulcer as a result of chemo ? What need to be done to make the patient eat or overcome the pain while eating? Suggestion...

Any one suffered from Mucositis / mouth ulcer as a result of chemo ? What need t...

Caring_hubby

•5 years ago

3 Replies

Hair loss

Hi all I am on month seven of Ibrance Faslodex and Xgeva. Starting to lose my hair. I first noticed it was thinning and now see pieces of hair all over. Any...

Hi all I am on month seven of Ibrance Faslodex and Xgeva. Starting to lose my...

Gwennie123

•5 years ago

14 Replies

PET SCANZ

Today is my delayed PET Scan - late by a month because of flu and secondary infections. Still coughing and congested, but I've been off meds for a month...

Today is my delayed PET Scan - late by a month because of flu and secondary infe...

Survivornow

•5 years ago

9 Replies

So thankful to God

I had a PET Scan yesterday and was so worried before I got the results. I had convinced myself that things were worse because I have been experiencing so much...

I had a PET Scan yesterday and was so worried before I got the results. I had c...

Oakhillbull

•5 years ago

31 Replies

Pet scan results Thursday

Anxious but so hopeful ♥️ .... the waiting is so hard

Terilyn12

•5 years ago

9 Replies

Ibrance and letrazole

Hi ladies I’ve mentioned before about my tumour markers going up This could mean Ibrance/letrazole combo failing However how is it possible to know which has...

Hi ladies I’ve mentioned before about my tumour markers going up This could mea...

Barbteeth

•5 years ago

67 Replies

Ibrance changed to Faslodex

Mom was just changed from Ibrance to faslodex. Last scan showed a couple of very small but new spots in bones but it still hasn’t spread anywhere else....

Mom was just changed from Ibrance to faslodex. Last scan showed a couple of ver...

Hidden

•5 years ago

18 Replies

Found MBC Insider's Guide Book Free Online!

Was off to order it and found this; not sure if complete work as just found it! God bless you and heal us all in Jesus name, amen!...

Was off to order it and found this; not sure if complete work as just found it! ...

Godbeforme

•5 years ago

20 Replies

Is anyone else bones, lungs and liver?

How are you feeling?

Toomanyquestions

•5 years ago

26 Replies

Faslodex

Hi ladies I so appreciate the wonderful information and encouragement from this site I have a new question :for those of you who are using faslodex wondering...

Hi ladies I so appreciate the wonderful information and encouragement from this ...

marleneb56

•5 years ago

9 Replies

Best Book for MBC Info

My friend and fellow MBC’er Anne Loeser has been compiling on electronic format every bit of useful medical information about MBC including references. She had...

My friend and fellow MBC’er Anne Loeser has been compiling on electronic format ...

1998withStage4

•5 years ago

9 Replies

Holiday insurance

I remember reading a discussion about holiday insurance on here last year and someone suggestiong a company that gave reasonable rates for those of us with...

I remember reading a discussion about holiday insurance on here last year and so...

Julie2233

•5 years ago

5 Replies

The artist

I don’t know how many of you believe in signs or omens or what ever you want to call them but I do. I go to the hospital every Monday for my blood draw and the...

I don’t know how many of you believe in signs or omens or what ever you want to ...

The-artist

•5 years ago

48 Replies

Posts - SHARE Metastatic Breast Cancer | HealthUnlocked

SHARE Metastatic Breast Cancer

All posts for April 2019

Fight Song

🤭Sex???🤭

The Berkeley Institute

Happy Easter

Happy Easter

Upper respiratory infection

Discouraged

Mri results perplexing

Ibrance copay in USA

THANK YOU!!

Seeking opinions....

Updated Insider's Guide to Metastatic Breast Cancer

Cycle 1 of ibrance a success!

Discouraged

Pet scan results

Can we drink fresh fruit juices

good news on markers

Mucositis after chemo

Hair loss

PET SCANZ

So thankful to God

Pet scan results Thursday

Ibrance and letrazole

Ibrance changed to Faslodex

Found MBC Insider's Guide Book Free Online!

Is anyone else bones, lungs and liver?

Faslodex

Best Book for MBC Info

Holiday insurance

The artist

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