So I went to see radiation oncologist today for mri results. He tells me decreased activity t4-9 but new spots t12 and L2. Talk about confusion.! I asked him how can there be healing n new disease- the two do not mix. He really could not give me an answer that I am comfortable with. Bottom line is wait and repeat in 4 months-if I have pain can do radiation sooner.
Part of me is saying screw this and just let it be but the other part is I want to understand what is going on. I never had mri of lumbar also and I don’t know if maybe it was there but just didn’t show up on pet scan in November. He said they are very small. So another damn unknown.
Did I say how much I hate this disease.?!
I am not down or up now- I don’t like not having clarity.
Hope your day is better sister warriors💕
Love
Frances
Written by
Francesca10
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I know. We need definite answers to our issues so we can try to deal with them.
I think we have to have faith in our onc' s ability to sort things out somehow!
I pray you receive answers and appropriate treatment.
Love,
Marianne
Hi Frances,
I can understand your frustration. You deserve to know what is actually going on and to receive answers, not some wishy-washy response you are not happy with. What I can't understand is how there could be activity that did not show up in your PET CT scan, but has shown up on the MRI. The PET CT scan is supposed to be more precise and show a clearer picture of what is going on. I hope you are able to get some answers soon.
It is hard at times, we don't always get the answers we hope for. I like it clear cut too, with this we probably will not always have it clear cut. Hang in there.
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