good news on markers

[Arkait]

After just 2 months on Letrozole markers down from about 140 to 80.

I am also taking Carnivora, Graviola, turkey tail mushrooms, and some

raw aprocit pits. Recently gave up decaf with cream and honey for green tea

and phasing out sugar (slowly) treats.

I need a heart operation, and the fluid in my bad (*cancer) lung has gone down

to a daily average of 290ml from a start of 400ml, so that is good news.

I hope the heart surgeon will consider me worth the effort/risk, despite my

cancer, as otherwise I am headed for congestive heart failure, on top of

my mbc Please pray for me on b oth fronts, dead ladies.

Mary

[Arkait]

Meant to say deaR Ladies,k sorry bad typo !!!

[Barbteeth in reply to Arkait]

Good new’s about your markers dropping...it’s odd how we take no notice when they go up and say they’re not important but celebrate when they go down!!

That typo error!!!...yes definitely want to be a “dear” lady not a dead one...how funny in s bizarre way

All the best

Barb xx

[Rotagirl]

Hi Arkait, I have been on letrozole/ibrance and xgeva for 9 months. So far so good. I have breathlessness and after an echocardiogram they have found I have a 'mild aortic valve regurgitation' but heart works well so nothing to be done about it.....yet? Good luck with your heart op......is it a valve problem? Fay

[Arkait in reply to Rotagirl]

Hi, Rotagirl. Yes it is a mitral valve with severe regurgitation. I've had an aortic valve replacement since 2011, works

great. They are improving these operations all the time. Your aortic valve not serious enough, yet, to require replacement,

It may be years before that

Now I need the mitral valve fixed asap, as I can't walk but one

block, before I have to rest, and sometimes even sit down. Hard to get the recommended exercise, this way,

I have a scheduled meeting with heart surgeon May 30th Hope he agrees I am able to have the operation . Or

a candidate for the risk Otherwise I am going to get congestive heart failure, which I consider a nightmare.

[Godbeforme]

dear Jesus, please hear our prayers and heal sweet Mary, it's in your mighty name I ask these things, you took those stripes on your back to purchase our healing and we thank you Lord, amen. <3 xo

[mariootsi]

Mary,

Sending prayers your way! How did you come to your supplement choices?

I wish you well with your heart operation. I will be thinking of you and praying for successful results! As if having mbc isn't enough! Geez!

Love, Marianne

My last palliative doc appt. She reali zed that I have a heart murmur. Thursday I have to have an echo cardiagram.

I had one in 2013 and it was normal! Hope this result is the same!

[Arkait in reply to mariootsi]

Supplement choices after much reading up, Still planning go add more as i discover them,

Hit "it" with all can.....

Heart murmur will be more defined after echo cardiogram, Let me know how that comes out.

Thanks for your kind support. Mary

[mariootsi in reply to Arkait]

I will let you know Mary.

[Stage4Gir]

Arkait,

I am still new to this site and sometimes have trouble navigating or am reading old posts instead of current ones. I came across your old posts and we sound very similar in not wanting meds. I too had never taken anything but Advil and didn’t want the Lettozole/Ibrance convo when first diagnosed with MBC. I started on lettozole but after only a couple months it spread to my ovaries so now on Ibrance too. The side effects have not been as bad as I feared although this is just my first month on Ibrance. I go for another pet scan on Tuesday so I’ll see if there are any changes.

The real reason for my post is that I too would much rather use alternative treatments and while I know they are not as researched or approved as pharma meds I do feel there are some benefits. I also think there is more to this cancer stuff than physical and if you haven’t already I highly recommend reading Radical Remissions to anyone on this site.

xx

[Arkait in reply to Stage4Gir]

Hi, Stage4Gir,

I avoided Letrozole for 5 and a half years, although I had surgery (two Mastectomies 2013 and 20 15)

and one round of radiation (right side only, as I have an artificial aortic heart valve which can't be radiated safely)

All went went until Dec 2018 when I became very short of breath and it was finally discovered I had cancerous pleural

effusion in my right lung. So I am now stage IV Metastatic breast cancer, and agreed to start Letrozole. in FEb 2019 But I have also

started researching and adding supplements (mostly herbal) I take Carnivora, Graviola, turkey tail mushroom capsules,

and also trying something called Stem Cell Restore. I also nibble a bit on apricot pits (3 or 4 some days)--which is laetril.

My markers have been going down I have another CAT scan and blood work coming up next week. However, about six

days ago my extreme fatigue seemed to go away (legs were so heavy and tired feeling that I could hardly walk), and

my oxygen level has returned to a normal 96 or 97from 93 or 94.. I also am less short of breath than I was. I have no idea what's

happening, but the amount of fluid we are withdrawing from my affected right lung is also dropping ! (from 450ml to 275 jml every

other day). So I am

hopeful the Cat scan and blood work next week will relay good internal news. It could be temporary response to

Letrozole, or it could be one of the supplements. No idea. I tend to think it might be the stem cell restore or one of

the supplements ! Will let you all know how my tests come out . When I first got the permanent PleurX catheter, I

had discomfort at night, sleeping with it, an I would take 2 aspirin or an Advil around 2AM in order to get back to

sleep. But that's history. I am sleeping comfortably, despite the catheter.