Discouraged

[RLMB]

Hi Ladies... first of all, I am in awe of the strength you all have and the help you give each other. You are all AMAZING!

Question... do you ever get used to setbacks? Does scan anxiety ever get better?

[MyMiracle13]

I don’t think we can ever be free from scanxiety. We just learn to ride it out until the next one. In the meantime, we live life as best we can. And when a setback happens, we just hope that the next set of meds will work better and longer than the last one. The days prior to my scan appointment are bad but the days waiting for the results are worse. I just pray and pray and pray.

Maria

[mariootsi]

For me the most difficu lt part of this mbc nonsense is scanxiety.

I don't think it ever goes away but I am trying to lessen the terror through meditation, excercise, praying, tapping and of course xanax.

I still get panicked with every scan and blood test!

I try to stay positive( so hard)!

I just feel that I don't have control over the results!

I'm a person who has usually been able to resolve problem s in my life. I have always felt that if I think about an issue, I can affect it and solve it.

This mbc situation seems like a crap shoot! No rhyme or reason to what transpires day to day!

[Barbteeth in reply to mariootsi]

Hi

You’ve hit the nail in the head!!!

It’s definitely the not being in control bit...I feel totally helpless and sometimes feel like running away from hospitals..home..everybody I know etc...which is crazy talk but it’s spoilt my life

Barb xx

[mariootsi in reply to Barbteeth]

Me too Barb! This morning I woke up in a panic and wanted to run away from everything

[Barbteeth in reply to mariootsi]

It’s the only situation I’ve felt like that..apart from being in labour!!.. but there’s an end to that!!.. this is for ever..ugh

Barb xx

[mariootsi in reply to Barbteeth]

I know! Unfortunately.

[nstonerocks]

Really is key to trust your oncologist. As one who prefers not to know all the clinical and research data, my oncologist is my pilot. I ask questions, of course, but I trust her clinical expertise, which really frees me up to struggle with my emotions and day to day issues.

[Barbteeth in reply to nstonerocks]

Hi

I wish I was as trusting in the medical profession as you are...I’m afraid I’m always suspicious of everything and have to check it out myself..well as much as I can...this can have negative results though as I read conflicting studies/opinions which makes it worse

I guess mbc is still a mystery to the medics which is why there’s no cure yet...after all the years of research it seems far away still and I wish the cure was round the corner or at least some better drugs to extend our lives for a long time

Barb xx

[nstonerocks in reply to Barbteeth]

Everyone has different needs and different ways to deal with this. I can’t handle a lot of research. It triggers my anxiety especially when the news isn’t good. Last nite I was watching a tv show and don’t you know one of the female lead characters was told her cancer had spread to her lungs and liver. I had to change channels. Anyway, Happy Easter. It’s sunny here. I have a week off from work. Planning a little trip to visit friends. Finalizing my trip to Scotland and London this summer!!! And you’ve got a royal baby coming soon!!!

[Barbteeth in reply to nstonerocks]

Oh I’m the same if something like that comes on tv..can’t watch

We’re having a heatwave in UK..my daughter who lives in London is up for the weekend..we all went riding yesterday (borrowed a horse for Miranda from a friend) and we’re off for afternoon tea shortly at a place called Colwick Hall..near Nottingham racecourse

No doubt il be eating naughty things and I have a big Easter egg as well...healthiness gone away for a few days..I don’t care!!

Barb xx

[nstonerocks in reply to Barbteeth]

Embrace the chocolate!

[Barbteeth in reply to nstonerocks]

I will!!

[BuoyantCat in reply to Barbteeth]

The scaniety is pretty awful. I just try to stay mindful of where I am from moment to moment and not think about the future. I take care of the trust problem by having two oncologists. One close by in Wilmington NC and one at Duke Cancer Center. I alternate every 3 months and that way I have two oncologists weighing in on my treatment. If they ever don’t agree with each other I will get a third opinion. I want to live longer and I will do what it takes until God calls me home.

[SusieIM]

I don't know if it gets better or if one just gets used to it. For me, I refuse to give in to negativity. There are moments of course that I do but it usually doesn't last.

[Julie2233]

Think everyone dealing with this gets down days and set backs - usually when least expected. The knack is to see them for what they are, deal with them as they arrive and send the on their way, knowing that they are countered by good days and good news. But whatever, just keep putting one foot in front of the other 🙂

[RLN-overcomer]

Sister/Warriors: We are here in this space to encourage, empower, and educate each other. Yessssss I thank God for the Share, organization, and HealthUnlocked. Iron sharpens Iron. Happy Easter Resurrection Day. XoXoXo

[RLMB]

Thanks everyone! We are so new to this. Diagnosed in August Stage IV. Swollen node in neck (last week) originally thought was nothing ended being cancer. Surgery to remove that May 2. Praying for the best and every one of you!

[Sunnydaz]

Sadly, I don't think it ever goes away. Even when I get good news, Im on to the next thing to worry about. Its a work in progress. Today we are going to a preserve in Fla. Getting out and seeing new things helps change my perspective. My next scan is coming in May. They come so fast!!

Robin xo

[RLMB in reply to Sunnydaz]

Praying for good results in May!!