Posts - Restless Legs Syndrome | HealthUnlocked

Restless Legs Syndrome

21,747 members • 15,486 posts

All posts for June 2024

Gabapentin, RLS and PLMA - help re dosing

Dear all I have suffered from undiagnosed Restless Legs Syndrome (RLS) for 20 years. In recent years - possibly correlated with me taking 100mg Sertraline...

Dear all I have suffered from undiagnosed Restless Legs Syndrome (RLS) for 20 ...

magarlick

•14 days ago

17 Replies

Dr Glen Z brooks NYC

I met with Glen a couple of weeks ago , he is now 76 and no longer taking in new RLS patients It has become increasingly difficult for him to prescribe...

I met with Glen a couple of weeks ago , he is now 76 and no longer taking in new...

Shumbah

•15 days ago

1 Reply

I can see the exit from the tunnel and the sun is shining.

it’s only taken 3 weeks after half a lifetime of RLS for 2 amazing medical professionals to get me on the road to recovery. Having spent over £1k in going in...

it’s only taken 3 weeks after half a lifetime of RLS for 2 amazing medical profe...

HipHop1972

•15 days ago

47 Replies

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I’ve had Stem cell therapy May 17 th 2024 The field Stem cell therapy is changing very fast.

Hard to know where to start ! The area of Stem cell therapy is changing extremely fast - there are a lot of doctors in this field and not all are equal and...

Hard to know where to start ! The area of Stem cell therapy is changing extreme...

Shumbah

•15 days ago

12 Replies

Bioelectrical stimulators

Has anyone tried any of the bio electrical stimulators. Many stimulate the vagus nerve. These are advertised for stress management and sleep. Another is...

Has anyone tried any of the bio electrical stimulators. Many stimulate the vagu...

David1920

•15 days ago

3 Replies

RLS Augmentation: 1) How to know if its Augmentation? 2) How to titrate off the drugs?

Presently I am 70 years old and have had RLS virtually every night for the past 7 years. I have learned much from the kindhearted experts in this chat room....

Presently I am 70 years old and have had RLS virtually every night for the past ...

FigureItOut

•15 days ago

2 Replies

I need your help 😢

I have been on ropinirole for about 8 years. I started out with 1 mg at night and after a few years it progressed to 1 mg in the morning, 1 mg at 3 pm, and 2...

I have been on ropinirole for about 8 years. I started out with 1 mg at night an...

Hotrodder

•16 days ago

11 Replies

Results of my blood tests

My GP rang on Friday as promised to tell me all my blood tests were normal, so he didn't know why I was losing appetite & weight.I told him I had asked my...

My GP rang on Friday as promised to tell me all my blood tests were normal, so h...

Simkin

•16 days ago

7 Replies

The sleep aspect of RLS

Wondering if any of you have tried the Inclined Bed Therapy (IBT) for the sleep apnea (and reflux, back pain etc- many targets). It has helped people...

Wondering if any of you have tried the Inclined Bed Therapy (IBT) for the sleep ...

RSL-RIP

•16 days ago

12 Replies

Curious about using the tens unit

Has anyone tried this for RLS? If so, where did you place the pads and how much did it help?

Has anyone tried this for RLS? If so, where did you place the pads and how much ...

Fleur29

•16 days ago

6 Replies

"Veterans with RLS may qualify for Total Disability"

This may be of interest to US Veterans, but also potentially to any RLS sufferer seeking disability support: "Veterans with RLS may qualify for Total...

This may be of interest to US Veterans, but also potentially to any RLS sufferer...

ChrisColumbus

•16 days ago

1 Reply

RLS for 50 years

I have suffered so nice my 20s. Mildly then last 5 years terrible. Just as others have stated, walked around all nite then have to function and work. Have...

I have suffered so nice my 20s. Mildly then last 5 years terrible. Just as oth...

Arizonajan

•16 days ago

3 Replies

Rotigotine ?

DR. prescribed Rotigtine, 1mg every 24hrs patch. I've declined "not" to take it for fear of effects down the road. I guess the Dr thought at my age (74) I may...

DR. prescribed Rotigtine, 1mg every 24hrs patch. I've declined "not" to take it...

C82021

•16 days ago

3 Replies

RLS prevalence

https://pubmed.ncbi.nlm.nih.gov/38843039/ A 2024 study on WORLDWIDE prevalence of RLS shows there are 356.07 million people with RLS. (7.12% of the world...

https://pubmed.ncbi.nlm.nih.gov/38843039/ A 2024 study on WORLDWIDE prevalence ...

Joolsg

•16 days ago

14 Replies

Daridorexant

Well managed to get a private prescription for this in UK. So much hope pinned on it. Worked absolutely brilliant for rls. Stopped sensation within 30 min....

Well managed to get a private prescription for this in UK. So much hope pinned o...

Caravan24

•16 days ago

3 Replies

Which treatment after dopamine agonist withdrawal?

I'm currently fighting to withdraw from dopamine agonist (DA) after a severe augmentation. I was prescribed some other drugs to help me go through this process...

I'm currently fighting to withdraw from dopamine agonist (DA) after a severe aug...

Mikatrap

•17 days ago

17 Replies

Pregablin withdrawal

Hello ,I'm on week 6 of reducing pregablin, 25mg every 2 weeks ...now at 225mg The only thing reducing symptoms are 4 x iron tablets just before bed, this...

Hello ,I'm on week 6 of reducing pregablin, 25mg every 2 weeks ...now at 225mg T...

Baz33

•17 days ago

26 Replies

heavy metals and rls

I am asking my dr for a heavy metal screen to see if there is something causing my symptoms. Does anyone know if this is a relevant test for rls. Of course my...

I am asking my dr for a heavy metal screen to see if there is something causing ...

senders

•17 days ago

7 Replies

At my wits end.

I'm currently coming off ropinerole due to augmentation. I think my doctor advised me incorrectly and told me to reduce my dose by 0.25 each week. I now think...

I'm currently coming off ropinerole due to augmentation. I think my doctor advi...

Marley7

•17 days ago

3 Replies

For those taking methadone, do you think it affects your sleep quality?

Having gotten rid of almost all (but not quite!) Mirapex nearly 2 years ago, my current meds are 0.125 mg Mirapx, 600 mg Horizant, and 10 mg methadone....

Having gotten rid of almost all (but not quite!) Mirapex nearly 2 years ago, my ...

UsableThought

•18 days ago

22 Replies

ropinorole withdrawal

Has anyone had issues with low BP during withdrawal. My top number was 99 the other day and 102/58 today.

Has anyone had issues with low BP during withdrawal. My top number was 99 the ot...

ParisianTN55

•18 days ago

2 Replies

Struggling coming off ropinerole

First thank you for all the replies to my earlier posts, before my second hip replacement. 4 weeks post surgery I am decreasing ropinerole slowly, just...

First thank you for all the replies to my earlier posts, before my second hip re...

dulciemary

•18 days ago

7 Replies

Consultant

Hi, is Prof Chadhuri one of the consultants that knows what he is talking about does anyone know. Thanks

Hi, is Prof Chadhuri one of the consultants that knows what he is talking about ...

keiralee

•18 days ago

1 Reply

I'm a little confused !

As I have said the Neurologist has told my doctor to prescribe 50 mg Pregabalin to take whilst I start the withdrawal from Ropinerole. I have been doing so...

As I have said the Neurologist has told my doctor to prescribe 50 mg Pregabalin...

Coopersmum

•18 days ago

13 Replies

RLS and PTSD

I see there are a few posts relating these two conditions. A few days ago, I came across this article: https://sleep-disorders.net/ptsd It strongly suggests,...

I see there are a few posts relating these two conditions. A few days ago, I cam...

ironbrain

•18 days ago

17 Replies

need help desperately. haven’t slept in a week

hello, I’m currently 28 weeks pregnant and have very severe restless legs to the point that I just need to keep walking around my house all night long. I’ve...

hello, I’m currently 28 weeks pregnant and have very severe restless legs to th...

aug27

•19 days ago

22 Replies

Any suggestions?

Hi all. Thanks in advance for reading this. I am hoping someone may have experience similar to mine and could give me their opinion. For the last year my main...

Hi all. Thanks in advance for reading this. I am hoping someone may have experie...

GaryHB

•19 days ago

17 Replies

Buprenorphine refused but codine increased.

I had my hospital appointment today, consultant refused the Buprenorphine, but instead has increased my codeine from 60mg per night to , 120 mg split into...

I had my hospital appointment today, consultant refused the Buprenorphine, but i...

Kiram

•19 days ago

36 Replies

I'm desperately in need of help for my mum.

My mum is 89 on chemo, plus she has dialysis 3 times a week. She's also got AF and leg ulcers. She's been on pramiproxal for years and still suffers with RSL....

My mum is 89 on chemo, plus she has dialysis 3 times a week. She's also got AF a...

Robinstan

•19 days ago

4 Replies

Fantastic Improvement!

Wow! What a fantastic improvement there is so far and wanted to share in case it helps anyone else. Also thanks to the members in here who gave me advice. I’ve...

Wow! What a fantastic improvement there is so far and wanted to share in case it...

Islay9

•19 days ago

9 Replies

Posts - Restless Legs Syndrome | HealthUnlocked

Restless Legs Syndrome

All posts for June 2024

Gabapentin, RLS and PLMA - help re dosing

Dr Glen Z brooks NYC

I can see the exit from the tunnel and the sun is shining.

I’ve had Stem cell therapy May 17 th 2024 The field Stem cell therapy is changing very fast.

Bioelectrical stimulators

RLS Augmentation: 1) How to know if its Augmentation? 2) How to titrate off the drugs?

I need your help 😢

Results of my blood tests

The sleep aspect of RLS

Curious about using the tens unit

"Veterans with RLS may qualify for Total Disability"

RLS for 50 years

Rotigotine ?

RLS prevalence

Daridorexant

Which treatment after dopamine agonist withdrawal?

Pregablin withdrawal

heavy metals and rls

At my wits end.

For those taking methadone, do you think it affects your sleep quality?

ropinorole withdrawal

Struggling coming off ropinerole

Consultant

I'm a little confused !

RLS and PTSD

need help desperately. haven’t slept in a week

Any suggestions?

Buprenorphine refused but codine increased.

I'm desperately in need of help for my mum.

Fantastic Improvement!

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