RLS prevalence

[Joolsg]

pubmed.ncbi.nlm.nih.gov/388...

A 2024 study on WORLDWIDE prevalence of RLS shows there are

356.07 million people with RLS.

(7.12% of the world population).

That is a LOT of people and LOADSA money for the pharmaceutical companies making dopamine agonists.

No wonder they don't want the medical profession to learn how to treat it properly and stop prescribing dopamine agonists.

[smilingjane]

Criminal

[Madlegs1]

You'd imagine the big Farma would be better off inventing some long acting opioid that would keep all RLS symptoms at bay.

Oh! Right! They done that already???😝😎

[Joolsg in reply to Madlegs1]

Aye, but they're cheap Madlegs. Really cheap. Morphine & Buprenorphine are low cost. But they could develop new meds, targeted to the recent gene study.

[amrob123]

Indeed, the pharmaceutical companies have an awful lot to lose!And just think, if 1/3 of those sufferers were to donate $10 each to RLS research, it would amount to nearly 1.2 billion dollars.

[Joolsg in reply to amrob123]

Absolutely. I'm always stunned that RLS sufferers do not join the organisations in their home countries set up to help. The membership fees could fund research.

[ChrisColumbus in reply to Joolsg]

I wish that I could 'Like' this multiple times!

rls-uk.org/rls-uk-membership

rls.org/2024-membership

[Bumble34]

We here in the UK desperately need a Celebrity, an A lister preferably who has had a bad DA experience to do a Paxman on the steps of No.10 waving his wish list/petition for the treatment of Parkinsons, we might then get the Medical Profession to sit up and take notice.

[Joolsg in reply to Bumble34]

Yes. We've tried approaching Bob Mortimer, but received no response. Coleen Rooney did an Instagram reel on RLS.But we need a high profile TV personality currently suffering augmentation to speak out.

[davchar23]

Dear Joolsg,

That could make the Post Office scandal look miniscule!

i hope you can find a high profile person to be our "Mr Bates"!

Davchar

[Joolsg in reply to davchar23]

The executive producer of Mr Bates has already contacted us and we have put out an appeal for people on dopamine agonists with Impulse Control Disorder to get in touch.

[davchar23 in reply to Joolsg]

Dear Jools,

That sounds very positive but i am not sure what Impulse Control Disorder is and how it is connected to RLS?

I suspect that there is a lot of pressurising goes on between pharmaceutical companies and GPS and if that has been the case with DAs then there is a "story" to be told about the pain, misery and i suspect loss of life caused the continued use etc.

If i can help in anyway let me know

Best regards

Davchar

[SueJohnson in reply to davchar23]

Impulse Control Disorder is a result of DAs for some people. Some examples are compulsive gambling, compulsive shopping, and compulsive eating and the person is powerless to stop doing it.

[Joolsg in reply to davchar23]

Dopamine agonists cause ICD in up to 38% of patients taking them. We have had people on here lose marriages, homes, careers and hundreds of thousands to online gambling and impulse spending. Totally out of character. The drugs cause it.Any doctor who fails to warn patients and monitor can be sued in the UK. There have been hundreds of cases.

[Covenant1962]

Spot on Jools!