Posts - Restless Legs Syndrome | HealthUnlocked

Restless Legs Syndrome

21,773 members • 15,510 posts

All posts for June 2024

The sleep aspect of RLS

Wondering if any of you have tried the Inclined Bed Therapy (IBT) for the sleep apnea (and reflux, back pain etc- many targets). It has helped people...

Wondering if any of you have tried the Inclined Bed Therapy (IBT) for the sleep ...

RSL-RIP

•20 days ago

12 Replies

Curious about using the tens unit

Has anyone tried this for RLS? If so, where did you place the pads and how much did it help?

Has anyone tried this for RLS? If so, where did you place the pads and how much ...

Fleur29

•20 days ago

6 Replies

"Veterans with RLS may qualify for Total Disability"

This may be of interest to US Veterans, but also potentially to any RLS sufferer seeking disability support: "Veterans with RLS may qualify for Total...

This may be of interest to US Veterans, but also potentially to any RLS sufferer...

ChrisColumbus

•20 days ago

1 Reply

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RLS for 50 years

I have suffered so nice my 20s. Mildly then last 5 years terrible. Just as others have stated, walked around all nite then have to function and work. Have...

I have suffered so nice my 20s. Mildly then last 5 years terrible. Just as oth...

Arizonajan

•20 days ago

3 Replies

Rotigotine ?

DR. prescribed Rotigtine, 1mg every 24hrs patch. I've declined "not" to take it for fear of effects down the road. I guess the Dr thought at my age (74) I may...

DR. prescribed Rotigtine, 1mg every 24hrs patch. I've declined "not" to take it...

C82021

•20 days ago

3 Replies

RLS prevalence

https://pubmed.ncbi.nlm.nih.gov/38843039/ A 2024 study on WORLDWIDE prevalence of RLS shows there are 356.07 million people with RLS. (7.12% of the world...

https://pubmed.ncbi.nlm.nih.gov/38843039/ A 2024 study on WORLDWIDE prevalence ...

Joolsg

•20 days ago

14 Replies

Daridorexant

Well managed to get a private prescription for this in UK. So much hope pinned on it. Worked absolutely brilliant for rls. Stopped sensation within 30 min....

Well managed to get a private prescription for this in UK. So much hope pinned o...

Caravan24

•20 days ago

3 Replies

Which treatment after dopamine agonist withdrawal?

I'm currently fighting to withdraw from dopamine agonist (DA) after a severe augmentation. I was prescribed some other drugs to help me go through this process...

I'm currently fighting to withdraw from dopamine agonist (DA) after a severe aug...

Mikatrap

•21 days ago

17 Replies

Pregablin withdrawal

Hello ,I'm on week 6 of reducing pregablin, 25mg every 2 weeks ...now at 225mg The only thing reducing symptoms are 4 x iron tablets just before bed, this...

Hello ,I'm on week 6 of reducing pregablin, 25mg every 2 weeks ...now at 225mg T...

Baz33

•21 days ago

26 Replies

heavy metals and rls

I am asking my dr for a heavy metal screen to see if there is something causing my symptoms. Does anyone know if this is a relevant test for rls. Of course my...

I am asking my dr for a heavy metal screen to see if there is something causing ...

senders

•21 days ago

7 Replies

At my wits end.

I'm currently coming off ropinerole due to augmentation. I think my doctor advised me incorrectly and told me to reduce my dose by 0.25 each week. I now think...

I'm currently coming off ropinerole due to augmentation. I think my doctor advi...

Marley7

•21 days ago

3 Replies

For those taking methadone, do you think it affects your sleep quality?

Having gotten rid of almost all (but not quite!) Mirapex nearly 2 years ago, my current meds are 0.125 mg Mirapx, 600 mg Horizant, and 10 mg methadone....

Having gotten rid of almost all (but not quite!) Mirapex nearly 2 years ago, my ...

UsableThought

•22 days ago

22 Replies

ropinorole withdrawal

Has anyone had issues with low BP during withdrawal. My top number was 99 the other day and 102/58 today.

Has anyone had issues with low BP during withdrawal. My top number was 99 the ot...

ParisianTN55

•22 days ago

2 Replies

Struggling coming off ropinerole

First thank you for all the replies to my earlier posts, before my second hip replacement. 4 weeks post surgery I am decreasing ropinerole slowly, just...

First thank you for all the replies to my earlier posts, before my second hip re...

dulciemary

•22 days ago

7 Replies

Consultant

Hi, is Prof Chadhuri one of the consultants that knows what he is talking about does anyone know. Thanks

Hi, is Prof Chadhuri one of the consultants that knows what he is talking about ...

keiralee

•22 days ago

1 Reply

I'm a little confused !

As I have said the Neurologist has told my doctor to prescribe 50 mg Pregabalin to take whilst I start the withdrawal from Ropinerole. I have been doing so...

As I have said the Neurologist has told my doctor to prescribe 50 mg Pregabalin...

Coopersmum

•22 days ago

13 Replies

RLS and PTSD

I see there are a few posts relating these two conditions. A few days ago, I came across this article: https://sleep-disorders.net/ptsd It strongly suggests,...

I see there are a few posts relating these two conditions. A few days ago, I cam...

ironbrain

•22 days ago

17 Replies

need help desperately. haven’t slept in a week

hello, I’m currently 28 weeks pregnant and have very severe restless legs to the point that I just need to keep walking around my house all night long. I’ve...

hello, I’m currently 28 weeks pregnant and have very severe restless legs to th...

aug27

•22 days ago

22 Replies

Any suggestions?

Hi all. Thanks in advance for reading this. I am hoping someone may have experience similar to mine and could give me their opinion. For the last year my main...

Hi all. Thanks in advance for reading this. I am hoping someone may have experie...

GaryHB

•23 days ago

17 Replies

Buprenorphine refused but codine increased.

I had my hospital appointment today, consultant refused the Buprenorphine, but instead has increased my codeine from 60mg per night to , 120 mg split into...

I had my hospital appointment today, consultant refused the Buprenorphine, but i...

Kiram

•23 days ago

36 Replies

I'm desperately in need of help for my mum.

My mum is 89 on chemo, plus she has dialysis 3 times a week. She's also got AF and leg ulcers. She's been on pramiproxal for years and still suffers with RSL....

My mum is 89 on chemo, plus she has dialysis 3 times a week. She's also got AF a...

Robinstan

•23 days ago

4 Replies

Fantastic Improvement!

Wow! What a fantastic improvement there is so far and wanted to share in case it helps anyone else. Also thanks to the members in here who gave me advice. I’ve...

Wow! What a fantastic improvement there is so far and wanted to share in case it...

Islay9

•23 days ago

9 Replies

stem cell therapy?

Has anyone heard anything about stem cell therapy for RLS? I am looking into anything that might help. ❤️

Has anyone heard anything about stem cell therapy for RLS? I am looking into any...

senders

•23 days ago

18 Replies

Genetics Study on RLS

https://medicalxpress.com/news/2024-06-genetics-potential-treatments-restless-leg.html Another study on the genetics of RLS. However, there are no new drug...

https://medicalxpress.com/news/2024-06-genetics-potential-treatments-restless-le...

Joolsg

•24 days ago

17 Replies

6 month update off of Pramaprexole!!!

20 years on Pramaprexole and I am finally free! With the help of Jools and Susan on this page I have successfully weaned off and life is great! In November, I...

20 years on Pramaprexole and I am finally free! With the help of Jools and Susan...

beartoothgirl406

•24 days ago

4 Replies

is Gabapentin helping me?

Hi. You’ve heard from me before and my case is very different to most. I have terminal cancer and decided I couldn’t cope with trying to withdraw from...

Hi. You’ve heard from me before and my case is very different to most. I have te...

Ruffabug

•24 days ago

27 Replies

Tramadol and oxycodone

My gp has heard from the hospital about changing my meds from Mirapexin to oxycodone. I am taking Tramadol at the moment to cope with withdrawal from...

My gp has heard from the hospital about changing my meds from Mirapexin to oxyco...

keiralee

•24 days ago

6 Replies

does anyone know if it’s safe to take 300-600 mg of Gabapentin while taking 600 mg of horizant and 2 mg of pramipexole?

details: I was taking 3-4 mg of pramipexole for my RLs. Developed augmentation. Sleep dr put me on 600 mg of horizant and supposed to taper the pram. I’m at 2...

details: I was taking 3-4 mg of pramipexole for my RLs. Developed augmentation. ...

BluGenie

•25 days ago

13 Replies

Is my diagnosis of Periodic Limb Movement Disorder Correct?

In February this year I went to Guys Hospital Sleep Clinic for an overnight Sleep Study. My experience was that I didn't sleep all night. I know this because...

In February this year I went to Guys Hospital Sleep Clinic for an overnight Slee...

YoginiDancer

•25 days ago

26 Replies

neurologist is recommending Clonazepam??

hi everyone, I am due to visit my GP next week to renew my methadone prescription, which I am having a fairly good response on but still have some...

hi everyone, I am due to visit my GP next week to renew my methadone prescripti...

Mongolia2020

•25 days ago

42 Replies

Posts - Restless Legs Syndrome | HealthUnlocked

Restless Legs Syndrome

All posts for June 2024

The sleep aspect of RLS

Curious about using the tens unit

"Veterans with RLS may qualify for Total Disability"

RLS for 50 years

Rotigotine ?

RLS prevalence

Daridorexant

Which treatment after dopamine agonist withdrawal?

Pregablin withdrawal

heavy metals and rls

At my wits end.

For those taking methadone, do you think it affects your sleep quality?

ropinorole withdrawal

Struggling coming off ropinerole

Consultant

I'm a little confused !

RLS and PTSD

need help desperately. haven’t slept in a week

Any suggestions?

Buprenorphine refused but codine increased.

I'm desperately in need of help for my mum.

Fantastic Improvement!

stem cell therapy?

Genetics Study on RLS

6 month update off of Pramaprexole!!!

is Gabapentin helping me?

Tramadol and oxycodone

does anyone know if it’s safe to take 300-600 mg of Gabapentin while taking 600 mg of horizant and 2 mg of pramipexole?

Is my diagnosis of Periodic Limb Movement Disorder Correct?

neurologist is recommending Clonazepam??

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