How much oxy?

[Yakester]

How much oxy can I take in an evening? I am a friggin’ mess. Crying, walking, rocking. I can’t even just stand due to RLS symptoms!! Must walk. I am at the end of my rope. I took two 20 mg oxy an hour ago. Still miserable!

[Joolsg]

That’s too much Yakester.

You’re in severe withdrawal and you’ll be in a complete mess for 10-14 days and you’ll get little or no sleep. The OxyContin will dim the symptoms a little but will not stop them completely as every cell in your body is screaming out for it’s dopamine hit.

Withdrawal from DAs is harder than from heroin and crystal meth for a lot of us.

Take no more than 20 mg OxyContin a day while in withdrawal.

Take really hot baths/ showers

Buy really tight compression socks and wear all day

Take gentle iron - ferrous bisglycinate pills ( get bloods taken and make sure serum ferritin is not lower than 100).

Try leg massages and sitting against a wall with legs raised high for an hour

Take magnesium citrate at night

Get hold of cannabis - it was the only thing that helped me sleep for an hour while going through withdrawal- it’s illegal in the UK but my kids got hold of some for me. I was so desperate I didn’t care.

It’s going to be the hardest thing you’ve ever had to do but you will get through it.

The OxyContin will start to settle the RLS after 10-14 days. Sadly there’s no quick fix.

I wish you strength- sending positive thoughts your way.

Take care

Jools

[Jumpey]

Hang on in there. It will get better as Joolgs says. Sending love.x

[Conifer]

I take 5 mills oxynorm

[auntiesioux]

OMG, my full sympathy coming your way and you are not alone. I do the same. I am guessing you have tried everything. Me too and I mean EVERYTHING. I decided to write down everything I have tried over the years and the list got so long I needed more paper. I am now on methadone without ever having used any drugs that methadone was origianlly intended. I don't think the methadone is working but promised my husband would complete one bottle. Here is where I am now. I am following the Paleo diet which has eliminated all the sugar in my body, well not natural sugar in fruit. It also eliminated gluten. At night when most affected (can't usually nap) I start doing rigorous leg pulls, swings, twirls anything where I can feel it in my legs. I do this lying down watch a movie. My husband said it does NOT drive him crazy. I am still NOT OK. While I still only get a few hours sleep a night, can't drive, can't make any commitments, can't think, I am not looking for a gun for the past several days and not screaming and crying all night. I am forever searching for the cause of RLS not a big pharm bandaid with all of the terrible side effects What have you taken aside from the oxy? I did take that for a very short while but all it did was constipate me. Getting hooked on oxyc is not nice but actually who cares if you get your life back. I am currently looking at amino acids as the best remedy. I did some research and have found much current info saying that the amino acid 'glutamate' is the etiology for RLS. Can you do some of your own research? Sometimes in the middle of night I can't even do the computer unless standing. Hot tub or very hot showers help tremendously in the moment. Sometimes that actually is the final solution but that is about 5AM. Sometimes I take up to 5 showers a night.. I don't want anyone to go through what I am going through but you and I are saying the same thing. Are you getting concurrent sickness like colds, flus or something else? I do everything to keep up my immune system so not to get sick on top of the dancing legs. I can't imagine being sick in bed and not being able to stay in bed. For now, think about exercising your legs, do anything, so they are not exercising you but rather you are exercising then. You take charge!!!! Call the disease by the formal name, WILLIS-EIKBOM DISEAESE (WED), you will be taken more seriously. Most people do not ask what that is. If they do, say you have "leg seizures" all night and this is debilitating. There have been several post for same concern, being dismissed when say the RLS thing. I am not sure if my diet change is helping as certain not the methadone. Began the methadone a week later after I started on the Paleo diet. I actually feel a shift in the right direction but still FAR from normal or compatible with my life. I cheated the other day , just a little, and it was a disaster. I started looking for the gun again. Of course could go on for pages but that is why this support site, misery needs company and support. It helps to know I am not the worst case my doctor has ever seen, as he says. It is so hard not to want to give up. Every time I think I have hit a stone wall and have a BIG cry out, some thing else appears on the horizon. I make it happen by looking and questioning, everything. Right now I put out a request for a person who ihas in-depth knowledge with brain bio-chemistry. I need an interpreter for what I am reading. Fight to do EVERYTHING not to be controlled by your legs. Reasearch, try everything, scream and sing and cry...but keep searching, One more thing that helped for awhile....plung you feet into ice clod water. This actually worked for me for awhile. I thought I had a miracle cure. Everything works for awhile then stops. The best track I was on was seeing an excellent homeopath and, previously, a naturpath. Long story but that is the direction for me, at least. Please keep in touch, Auntie Siouix

[LanaCSR in reply to auntiesioux]

How are you taking glutamate? Where do you buy it and how much do you take? Does it help your RLS? Thank you! Lana

[LotteM]

You don’t want to take glutamate. What is known is that we have excess glutamate (and dopamine) in the signalling brain cells That is because both neurotransmitters don’t get well transmitted to the receiving brain cells. Extra glutamate (or dopamine) will not solve the problem and may actually make things worse ( cf augmentation with dopamine receptors).

The key issue is that we don’t have enough of a specific type receptors, that transport glutamate (or dopamine or other neurotransmitters) from one brain ceel to the other. There is quite some evidence that iron is crucial to have enough of these receptors. Thus the first thing to do is get your iron levels up.

Have you iron levels checked by your doctor. Especially ferritin should be above 100. So always ask for the actual results because the general idea is that ferritin of 15 or higher is already normal. For people with RLS this is however not sufficient by far.

Raising iron (ferritin) is not the solution for everyone, but it is at least a prerequisite before you consider other options.

I hope this info helps. Good luck.