Withdrawal update

[Lucyjane29]

Hello

So I’m in week 2 of withdrawal from ropinorole I am now on 5mg (it was 6) reducing 0.5 a week.

I spread it out over the day but always leave 2mg for bed time along with 60mg codine.

I am still on 50mg pragabalin, next week I up that to 100mg and so far so good however I am

Aware as I reduce it’s going to be a rough time but I am determined to get off this DA and fingers crossed my RLS improves.

Hope your all coping and managing well.

Lucy x

[Joolsg]

Stay strong Lucy. You’re doing really well. Thinking of you.

[LotteM]

Thanks for the update Lucy! Remember that the pregabalin may not work well - or its effectiveness hard to assess - as long as you are withdrawing from the ropinirole. Personally I want to keep my doses low, at the lowest effective dose, to keep side-effects to a minimum. So, maybe if you geel you need to increase te pregabalin, take smaller steps, e.g. 25mg? Just a thought.

Keep up the good work!

[Lucyjane29 in reply to LotteM]

Thank you 😊

[Pam34 in reply to Lucyjane29]

Well done you! Keep going - it will get tougher I’m afraid so stay strong!

And as Lotte says, don’t judge the Pregabalin while you are in withdrawal.

Good luck

Pam

[Lucyjane29 in reply to Pam34]

Thanks Pam I hope your well? I’ll keep you posted x

[nightdancer]

Good luck, yes it will be rough, you were/are on a VERY high dose for RLS! They recommend 1 mg only daily, sometimes MAYBE 2 mgs, but even that is old info.

[Parminter]

Well done.

If things get very sticky, too sticky to bear, perhaps you could ask for a stronger opioid? Codeine is not as strong as you may need.

[Lucyjane29 in reply to Parminter]

Thank you yes I did try but they don’t like giving it out and I don’t think the doctor really understands RLS and augamentation

I did have tramadol but it seemed to wake me up and I spent 2 whole nights awake.

I seem to be doing ok at the moment but feel a little nervous about reducing more in time.

[3labs]

Wishing you peace.