Posts - Restless Legs Syndrome | HealthUnlocked

Restless Legs Syndrome

22,326 members•16,392 posts

All posts for October 2024

Ferritin Improvement

Had my iron tested for the first time 8 months ago when my ferritin was a lowly 22. I've been taking iron supplement (with vitamin C -and a probiotic- more...

Had my iron tested for the first time 8 months ago when my ferritin was a lowly ...

Jauny

•22 days ago

43 Replies

withdrawal from ropinerol, then what?

Question…. So when I withdraw from ropinerol, I will still have the RLS only worse. I remember before I started it, and life was a nightmare. At least I get...

Question…. So when I withdraw from ropinerol, I will still have the RLS only wor...

Roklyn

•23 days ago

2 Replies

new Update

so my hubby tried methadone and then Suboxone but both gave him severe anxiety and insomnia. So he stopped taking them. He is also on 1200 mg Horizant Doc...

so my hubby tried methadone and then Suboxone but both gave him severe anxiety a...

tiffanie125d

•23 days ago

2 Replies

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The Veterans Administration

I have been on Pramipexole for quite some time now and it seems not to work as it was. Before my next visit to the doctor, I e-mailed and asked about changing...

I have been on Pramipexole for quite some time now and it seems not to work as i...

Bloodhound669

•24 days ago

8 Replies

klonopin long term

My GP finally gave me klonopin but was very reluctant, and scared me with dementia saying the longer you are on it the more your chances are of getting...

My GP finally gave me klonopin but was very reluctant, and scared me with dement...

charlie1234567890

•24 days ago

9 Replies

Sleep position

Has anyone noticed less RLS when sleeping on stomach? Often if I can't rid myself of breakthrough RLS in the middle of the night ( I take 10 mg. of methadone...

Has anyone noticed less RLS when sleeping on stomach? Often if I can't rid myse...

violetta254

•24 days ago

15 Replies

Has anyone had RLS after a spinal?

I had a knee replacement in 2016 and RLS started shortly after. I had a spinal anesthetic. It involves muscle spasms in my quads, usually one at a time but...

I had a knee replacement in 2016 and RLS started shortly after. I had a spinal a...

Roklyn

•24 days ago

3 Replies

My journey and coming off ropinirole.

Hey - i thought id do an update post and log where im at with my journey of coming off the evil drug Ropinirole. After being prescribed it and getting up to...

Hey - i thought id do an update post and log where im at with my journey of comi...

RLSAndy

•24 days ago

22 Replies

severe jerking after taking nortriptyline ( Allegron)

Hi Everyone, first of all I would like to say, thank you so much for sharing your personal experiences with RLS and your in depth knowledge with medication and...

Hi Everyone, first of all I would like to say, thank you so much for sharing you...

Mason21

•24 days ago

14 Replies

RLS Physician

Sue Johnson, awhile back I had asked your advice for an RLS specialist in Northwest Indiana and you had given me the name of someone in Illinois. I cannot find...

Sue Johnson, awhile back I had asked your advice for an RLS specialist in Northw...

Haydenpup

•25 days ago

2 Replies

ferritin level

Can someone please remind me what the Ferritin level should be for someone with RLS? Thank you !

Can someone please remind me what the Ferritin level should be for someone with ...

BeachGolfer

•25 days ago

19 Replies

Returning Nightwalker

I haven’t been here for some time, but wanted to share some news. After constant reschedules with my neurologist, I decided to search the Pittsburgh, PA area...

I haven’t been here for some time, but wanted to share some news. After constant...

wcp2008

•25 days ago

16 Replies

TSAT 47%

For Sue/Joolsg Just had my fasting bloods checked and Ferritin has gone up to 112ug/l but TSAT has gone up to 47%. I don’t know if it’s a coincidence but my...

For Sue/Joolsg Just had my fasting bloods checked and Ferritin has gone up to 1...

Dires

•26 days ago

10 Replies

Methadone pramipexole Horizant side effects

As you know when you’re on a higher dose of pramipexole the side effects are “sleep disturbance” and “fatigue”. So I am always tired and exhausted. The main...

As you know when you’re on a higher dose of pramipexole the side effects are “sl...

tagaxel

•26 days ago

9 Replies

Positive Response with Pregabalin

I read the "Don’t Light the Fuse of Restless Legs" article, like many here - and decided to do something about getting off of Ropinirole. I'm 43, diagnosed...

I read the "Don’t Light the Fuse of Restless Legs" article, like many here - an...

silkusmaximus

•26 days ago

13 Replies

Anti Depressant

I am currently taking Trazadone for opioid induced depression. Is there another safe antidepressant available in the UK which is effective. Thank you

I am currently taking Trazadone for opioid induced depression. Is there another...

keiralee

•26 days ago

15 Replies

Worries about forthcoming steroid injection

hi all I’m due a steroid injection tomoz into my hip …. You may recall I had double hip labrum repair surgery earlier this year well the upshot is the right...

hi all I’m due a steroid injection tomoz into my hip …. You may recall I had d...

Zenawarrior73

•26 days ago

18 Replies

new med

does trazedone interfere with RL?

tiffanie125d

•26 days ago

5 Replies

Anyone tried P.E.A?

It's also known as palmitoylethanolamide or PEA.I was chatting to the pharmacist yesterday and mentioned that I had tried everything under the son. She said...

It's also known as palmitoylethanolamide or PEA.I was chatting to the pharmacist...

amrob123

•27 days ago

5 Replies

CPAP helps

I have been suffering from mild RLS for several years. Iron supplements help some. I also use a vibration plate nightly. Recently I also found that using a...

I have been suffering from mild RLS for several years. Iron supplements help som...

Lluvinlife

•27 days ago

1 Reply

Buprenorphine side effects?

Hi everyone. After a successful trip to see Dr Chris Murphy and my GP agreeing to let me try buprenorphine patches I have a question. My RLS has reduced a lot...

Hi everyone. After a successful trip to see Dr Chris Murphy and my GP agreeing t...

Alifromthegalley

•27 days ago

19 Replies

Opioid itch !

Hi , can anyone recommend a good over the counter remedy for an opioid itch please? Ive tried Clarityn but it doesnt touch it sadly . Its not every night but...

Hi , can anyone recommend a good over the counter remedy for an opioid itch ple...

Huntingleroy

•27 days ago

10 Replies

How can I stop my legs please

Iv’e had RLS for 15 years or so, no idea what caused it. Was given Ropinerole slow release 2 mg twice a day, which worked for a long time, then augmentation...

Iv’e had RLS for 15 years or so, no idea what caused it. Was given Ropinerole s...

Bayhams6

•27 days ago

6 Replies

Maxitrol

Hi Everyone, It’s been a few years I think since I posted. I’ve muddled through for a long time riding the roller coaster that is RLS but I now need some...

Hi Everyone, It’s been a few years I think since I posted. I’ve muddled throug...

Hamish58

•27 days ago

3 Replies

Transitioning from Ropinirole to Bupenorphine - any advice welcome.

My GP prescribed Buprenorphine for me under the advice of Dr Fackrell. I began to take the Bup on 14th October, so it will be two weeks on Monday since I...

My GP prescribed Buprenorphine for me under the advice of Dr Fackrell. I began...

Faith_Hope_1

•28 days ago

9 Replies

Vagus Nerve Stimulation Nurosym £600 device.

Has anyone yet forked out £600 to see if the Nurosym Vagus Nerve Stimulation device helps reduce their RLS or depression/anxiety? My RLS is completely...

Has anyone yet forked out £600 to see if the Nurosym Vagus Nerve Stimulation dev...

Joolsg

•28 days ago

18 Replies

RlS relief

Good morning. I have only just discovered this site and find it uselfu so far. I am a 75 year old woman and have suffered intermittently for...

Good morning. I have only just discovered this site and find it uself...

Strathmore2024

•28 days ago

9 Replies

PLMD vs RLS

Hi, would anyone just describing what the difference is in practical terms please? Many thanks, Nick

Hi, would anyone just describing what the difference is in practical terms pleas...

bluffpt

•28 days ago

16 Replies

ropinirole withdrawal

Hello. I’m feeling annoyed this morning about being prescribed Ropinirole. I’ve only been on 1mg for 6 months with augmentation in the day but was just told to...

Hello. I’m feeling annoyed this morning about being prescribed Ropinirole. I’ve ...

Daisysparkle

•28 days ago

16 Replies

Prof Murphy

Went to see Prof Murphy at Manchester on Wednesday. Just wanted to say what an amazing consultant he is, he was a breath of fresh air. He listened to me,...

Went to see Prof Murphy at Manchester on Wednesday. Just wanted to say what an ...

Cookiebum24

•29 days ago

18 Replies

Posts - Restless Legs Syndrome | HealthUnlocked

Restless Legs Syndrome

All posts for October 2024

Ferritin Improvement

withdrawal from ropinerol, then what?

new Update

The Veterans Administration

klonopin long term

Sleep position

Has anyone had RLS after a spinal?

My journey and coming off ropinirole.

severe jerking after taking nortriptyline ( Allegron)

RLS Physician

ferritin level

Returning Nightwalker

TSAT 47%

Methadone pramipexole Horizant side effects

Positive Response with Pregabalin

Anti Depressant

Worries about forthcoming steroid injection

new med

Anyone tried P.E.A?

CPAP helps

Buprenorphine side effects?

Opioid itch !

How can I stop my legs please

Maxitrol

Transitioning from Ropinirole to Bupenorphine - any advice welcome.

Vagus Nerve Stimulation Nurosym £600 device.

RlS relief

PLMD vs RLS

ropinirole withdrawal

Prof Murphy

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