Posts - NRAS | HealthUnlocked

NRAS

37,273 members•46,139 posts

All posts for November 2024

Eye pain

Hi everyone. Still waiting to be seen by rheumy…since August. 3 week back log on automated line. Fourth phone call. I’m scared to go anywhere or do anything...

Hi everyone. Still waiting to be seen by rheumy…since August. 3 week back log o...

Pepsimax72

•4 hours ago

5 Replies

RA problem

hi just had a lung scan and told I have one small module and fibrosis no symptoms was just wondering if anyone else on here has same problems and what...

hi just had a lung scan and told I have one small module and fibrosis no symptom...

anglia

•4 hours ago

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Rheumatology teams Inverness and Aberdeen

Hi I’ve recently moved to north east Scotland and am looking into transferring my care here. I’m currently off Benepali , after very short period of having...

Hi I’ve recently moved to north east Scotland and am looking into transferring ...

SunshineonKeith

•6 hours ago

2 Replies

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Rheumatoid Arthritis Tip

Good Morning All I have RA which is quite severe in my hands and wrists. I have recently purchased two blue stress balls from eBay which were really cheap....

Good Morning All I have RA which is quite severe in my hands and wrists. I ha...

Chester1975

•1 day ago

4 Replies

COVAD 3 Survey: Collating the Voice of people living with Autoimmune Diseases

The CoVADStudy team request your help to understand wellbeing of people with autoimmune diseases. Both patients with autoimmune or rheumatic disease and...

The CoVADStudy team request your help to understand wellbeing of people with aut...

Aribah-NRAS

Partner•1 day ago

7 Replies

Taking vitamins when on Methotrexate?

My husband was recently disanosed with RA and is due to start Methoxtrexate this evening (15mg) and has been given a 5mg Folic Acid Tablet to take the Day...

My husband was recently disanosed with RA and is due to start Methoxtrexate this...

jencar7

•1 day ago

15 Replies

What was it like when your RA meds started working?

I have been on what I think must be a similar meds journey as everyone else in the hope of finding the right one. diagnosed with seronegative RA I have had a...

I have been on what I think must be a similar meds journey as everyone else in t...

Theoddjobman

•1 day ago

22 Replies

Nausea and medication

hi everyone Been on filgotinib for over a year now with no problems so far.however last few days feeling nauseous.i know it is listed as main side effect but...

hi everyone Been on filgotinib for over a year now with no problems so far.howe...

Doodlereggie

•2 days ago

5 Replies

Ventolin

Does anyone find that ventilin does hardly nothing for there copd not asthma as I believe it is mainly for asthma,I don't have asthma, I have emphysema and I...

Does anyone find that ventilin does hardly nothing for there copd not asthma as ...

Alice70

•2 days ago

13 Replies

groin inflamation.

In agony with groin inflamation, any one had it. Waiting for X ray result. Had my steroid increased to l5 for a week tapering back to nnormal 5mg. thank......

In agony with groin inflamation, any one had it. Waiting for X ray result. Had...

tyncwmmarchhywel

•2 days ago

7 Replies

prednisolone and Metratreoate

hi all!! So last week I was taking 10mg a day of prednisolone and this week I’m tapering off and having 5mg if prednisolone!but tonight I’m due to restart my...

hi all!! So last week I was taking 10mg a day of prednisolone and this week I’...

Mybirthday1975

•3 days ago

15 Replies

6 monthly rheumy appointment for PMR & RA

I had my 6 monthly check up this morning for PMR and RA. Drs have decided my PMR has diminished. I came down to 9mg from 10mg over 6 months, I feel like this...

I had my 6 monthly check up this morning for PMR and RA. Drs have decided my PM...

IdasMum

•3 days ago

4 Replies

Gluten

Hi, I was advised by my Nutritional Medicine Practitioner to avoid gluten after my Gut test results came back with very high Zonulin. I did this as far as...

Hi, I was advised by my Nutritional Medicine Practitioner to avoid gluten after...

IdasMum

•4 days ago

18 Replies

Methotrexate and Nitrofurantoin

Hi everyone hope you’re all well. Just looking for some advice and to see if anyone else been in a similar situation. I have a recurrent UTI that keeps...

Hi everyone hope you’re all well. Just looking for some advice and to see if an...

Froggie70

•4 days ago

25 Replies

Vaccines

Just wanted to share I had both my jabs last week . The Covid booster left arm, and flu in right arm. Reaction left arm left with a bruise, no sign n my...

Just wanted to share I had both my jabs last week . The Covid booster left arm,...

Happy5

•4 days ago

6 Replies

seasonal vaccinations

Following GP’s advice not to take my methotrexate whilst being treated with an antibiotic for an ear infection, I then had my seasonal flu jab since then I...

Following GP’s advice not to take my methotrexate whilst being treated with an a...

Sanderson11

•5 days ago

2 Replies

how to choose a surgeon for ankle replacement

I live in a relatively small town. I saw an orthopedic surgeon that recommends full ankle replacement related to arthritis and full cartilage disintegration....

I live in a relatively small town. I saw an orthopedic surgeon that recommends ...

Psychonurse

•5 days ago

4 Replies

Medical gaslighting or I'm losing my mind.

The title is a bit dramatic but, following up on my last post I put my big girl pants on ( with difficulty because my hands and wrists are quite sore and not...

The title is a bit dramatic but, following up on my last post I put my big girl ...

wilbertjellyfish

•5 days ago

35 Replies

Morton's Neuroma

Hi all I am finally having the neuromas in my feet removed. Yes, I have one in each foot (RF - 15mm, LF 10mm). I was just wondering what footwear would be...

Hi all I am finally having the neuromas in my feet removed. Yes, I have one in ...

sklitch

•6 days ago

2 Replies

Very sore inner lips, on Methotrexate 10mg weekly. Any ideas what will help my very sore mouth? (my tongue is okay.)

Hi everyone, I haven't posted for a while, as I my joints have gradually improved on Methotrexate 10mg weekly, after about 9 or 10 weeks. Now my inner lips...

Hi everyone, I haven't posted for a while, as I my joints have gradually improve...

Biz12

•6 days ago

29 Replies

Blood Test Results

RA 6 years, managing on 2mg prednisolone, no DMARDS. Last three blood tess have started Ishowing RDW out of range on the high side. Hemoglobin is low but...

RA 6 years, managing on 2mg prednisolone, no DMARDS. Last three blood tess have ...

Jaysharp

•6 days ago

19 Replies

adalimumab

I’m starting adalimumab after being on methotrexate for three years, how easy is it on your system? I’ve had no issues with methotrexate but couldn’t cope with...

I’m starting adalimumab after being on methotrexate for three years, how easy is...

Jfw24

•7 days ago

13 Replies

Prednisolone Methotrexate MCTD...

Oh where to start. Feet have been bad for a few years. Reached crisis point a few weeks ago. Agreed with GP after asking about crutches to take short course...

Oh where to start. Feet have been bad for a few years. Reached crisis point a f...

Brychni

•7 days ago

26 Replies

NO phone call

I was booked in to have a over the phone call off my rheumatolagist but no one rang me,has this happened to anyone else.

I was booked in to have a over the phone call off my rheumatolagist but no one r...

gradyjackjacob

•7 days ago

29 Replies

Dismissed by Rheumatology department yet again, Erythromelalgia - lupus? hydroxchloroquine

After being referred to Rheumatology in August 2023 by Orthopaedic department because of my hand symptoms. Was seen by Rheumatology in January 2024 where I...

After being referred to Rheumatology in August 2023 by Orthopaedic department be...

Skulls570

•8 days ago

31 Replies

Darrach's Procedure - Ulna Head Removal...anyone?

My brilliant hand surgeon has finally reached the end of the road in regards to trying to sort out the damn painful RA in my wrist. After various ops on it, I...

My brilliant hand surgeon has finally reached the end of the road in regards to ...

ellilu58

•8 days ago

4 Replies

Timing of Leflunomide

I am about to start taking leflunomide. If I decide 7.30 is generally a good time for me to take it, is it ok if occasionally I take at 8.30 or 6.30 if...

I am about to start taking leflunomide. If I decide 7.30 is generally a good tim...

Gilliancheche

•8 days ago

14 Replies

Cromer Hospital - blummen marvellous!

I recently moved to North Norfolk - not a million miles as I was already in Norwich. Who knew! Tiny Cromer Hospital has a Rheumatology clinic every Monday so...

I recently moved to North Norfolk - not a million miles as I was already in Norw...

HappykindaGal

•8 days ago

49 Replies

Methotrexate and a cold

Evening all. My rheumy nurse said if I get a cold and feel rubbish or get a change in sputum colour that I should stop methotrexate until I feel better. I feel...

Evening all. My rheumy nurse said if I get a cold and feel rubbish or get a chan...

HappyD34

•9 days ago

17 Replies

Plant sterols and Methotrexate

Anyone take these gp doesn't want me to take statins but always says my cholesterol should be lower.

Anyone take these gp doesn't want me to take statins but always says my choleste...

welsh12

•10 days ago

21 Replies

Posts - NRAS | HealthUnlocked

NRAS

All posts for November 2024

Eye pain

RA problem

Rheumatology teams Inverness and Aberdeen

Rheumatoid Arthritis Tip

COVAD 3 Survey: Collating the Voice of people living with Autoimmune Diseases

Taking vitamins when on Methotrexate?

What was it like when your RA meds started working?

Nausea and medication

Ventolin

groin inflamation.

prednisolone and Metratreoate

6 monthly rheumy appointment for PMR & RA

Gluten

Methotrexate and Nitrofurantoin

Vaccines

seasonal vaccinations

how to choose a surgeon for ankle replacement

Medical gaslighting or I'm losing my mind.

Morton's Neuroma

Very sore inner lips, on Methotrexate 10mg weekly. Any ideas what will help my very sore mouth? (my tongue is okay.)

Blood Test Results

adalimumab

Prednisolone Methotrexate MCTD...

NO phone call

Dismissed by Rheumatology department yet again, Erythromelalgia - lupus? hydroxchloroquine

Darrach's Procedure - Ulna Head Removal...anyone?

Timing of Leflunomide

Cromer Hospital - blummen marvellous!

Methotrexate and a cold

Plant sterols and Methotrexate

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