Posts - NRAS | HealthUnlocked

NRAS

37,272 members•46,139 posts

All posts for August 2019

Choice to be made on meds

Just back off my holidays (nightmare but that’s another story) a letter was waiting for me and now I’m confused. At my appointment in July I was told I would...

Just back off my holidays (nightmare but that’s another story) a letter was wait...

Hidden

•5 years ago

6 Replies

Hummus Bread

Going to give this one a try this week as no KNEADING. Recipe --> https://www.contentednesscooking.com/hummus-homemade-bread/

Going to give this one a try this week as no KNEADING. Recipe --> https://www.co...

Hidden

•5 years ago

3 Replies

Cryotherapy and ice baths

Cryotherapy and ice baths.........has anyone done this as part of trying to reduce inflammation when bad? To just feel better for a small period of time?

Cryotherapy and ice baths.........has anyone done this as part of trying to redu...

Hidden

•5 years ago

3 Replies

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Sjogrens syndrome

Well it is official, I have secondary Sjogrens. I am now putting drops in my eyes every hour, and vita pos gel in 4 times a day for next 2-3 weeks. Had my...

Well it is official, I have secondary Sjogrens. I am now putting drops in my eye...

Callabag64

•5 years ago

3 Replies

Lack of knowledge.

Went to see my excellent GP yesterday following a fall at home wich I thought might have damaged my wrist. She agree and sent me to our local urgent care unit...

Went to see my excellent GP yesterday following a fall at home wich I thought mi...

Stephanie6637

•5 years ago

5 Replies

Adalimumab and leflunomide

Hi just been to rheumatology I currently take sulfa and leflunomide(Arava). Still getting bad flares so they are suggesting above biologics. I'm scared to be...

Hi just been to rheumatology I currently take sulfa and leflunomide(Arava). Sti...

sabrejan

•5 years ago

8 Replies

PIP Home Assessment

I've received a letter to say I'm getting a home assessment which is a bit of a surprise as I didn't request one! Has anyone else had this happen? How did the...

I've received a letter to say I'm getting a home assessment which is a bit of a ...

Winnie53

•5 years ago

16 Replies

Swimming

Hi everyone 🤗, thinking of getting back to swimming......just wondering how other Rheumatoid sufferers get on ...ie do you find you get more infections...

Hi everyone 🤗, thinking of getting back to swimming......just wondering how ot...

Sunshine-star5

•5 years ago

16 Replies

Am I having a flare up?

I’m in constant pain , my hips ankles , hands shoulders legs, would you say I’m having a flare up? I’m on methroxate tablets and Benipali injections , I’m so...

I’m in constant pain , my hips ankles , hands shoulders legs, would you say I’m ...

Hocuspocus123s

•5 years ago

5 Replies

NRAS Group Meetings Next Week

Dear All Please find details of the NRAS Group meetings taking place next week. For more information please visit our website www.nras.org.uk/groups NRAS...

Dear All Please find details of the NRAS Group meetings taking place next week. ...

Kim-NRAS

NRAS•5 years ago

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Our cats wedding anniversary gift

Zappa drops and goes with a live mouse, Roscoe promptly goes into play mode and shoves it under Shawns sofa and then leaves, so we pick up sofa somehow (hubby...

Zappa drops and goes with a live mouse, Roscoe promptly goes into play mode and ...

Hidden

•5 years ago

3 Replies

To cap it all they do this image on Versus Arthritis

To all on here following Agedcrones fab comments- what drives me nuts is the image of the chap holding his hand up smiling. I SO wish I could do that with my...

To all on here following Agedcrones fab comments- what drives me nuts is the ima...

Hidden

•5 years ago

14 Replies

Abatacept and indigestion

Hello everyone. I’m after a bit of reassurance if possible! I started taking Abatacept about 8 weeks ago. No effect for 6 weeks then all of a sudden no rheumy...

Hello everyone. I’m after a bit of reassurance if possible! I started taking Aba...

Sidera

•5 years ago

13 Replies

why would rheumatologist take me off hydroxychloroquine

hi everyone I'm hoping someone can answer my question please. I had an appointment at rheumatologist on Tuesday and it was a different person from who i...

hi everyone I'm hoping someone can answer my question please. I had an appointme...

teddy1307

•5 years ago

38 Replies

Tofactinib

Hi I've been on the above drug foot 3 weeks.. feel rubbish headache and feeling sickly but not been sick.. just generally feeling tired sickly and headaches as...

Hi I've been on the above drug foot 3 weeks.. feel rubbish headache and feeling ...

Vonnie10

•5 years ago

4 Replies

Long term options for going off medication?

Hello everyone. Long time lurker here 😁 Just wandering if anyone here has had a diagnosis including postive blood test and visible in an x-ray (but not...

Hello everyone. Long time lurker here 😁 Just wandering if anyone here has had a...

IndigoDingo

•5 years ago

10 Replies

How do they cope

Hi I just want to no how your other half’s cope with your illness. The reason I ask is my fiancé of 4 years just told me last night. He can’t cope with my...

Hi I just want to no how your other half’s cope with your illness. The reason I ...

Nuttyshirlz

•5 years ago

29 Replies

Antibiotics for me

After 2 weeks of hell on the hands and them splitting open and almost open wounds when dealing with my hubby the Doc looked at me and went 'what is wrong you...

After 2 weeks of hell on the hands and them splitting open and almost open wound...

Hidden

•5 years ago

9 Replies

RA as a disability at work

Hi, If anyone has had very serious work problems as a result of having RA and felt no option than to present a case in an Employment Tribunal, and either won...

Hi, If anyone has had very serious work problems as a result of having RA and fe...

Hidden

•5 years ago

23 Replies

Biologics and Cancer Diagnosis

i'm new here. I want to share my experience with biologics and cancer diagnosis. I was told to go off Humira after 15 years on it for RA when I was DX with...

i'm new here. I want to share my experience with biologics and cancer diagnosis....

skbiggie

•5 years ago

13 Replies

Lifetime on Prednisone?

This will be quite a controversial post I guess, but my question is " at what age would you be prepared to use pred as a first line drug for RA and OA with the...

This will be quite a controversial post I guess, but my question is " at what ag...

Maggsie

•5 years ago

49 Replies

Have you been prescribed medication for your Rheumatoid Arthritis (RA)?

NRAS is undertaking some research into the prescribing of biologics, biosimilars and JAK inhibitors. If you have ever been prescribed one of these medicines,...

NRAS is undertaking some research into the prescribing of biologics, biosimilars...

Hidden

•5 years ago

2 Replies

Paleo and RA

Hi I have been reaearching the Paleo diet. I would really like to start it with the hope of getting off these horrendous meds. Anyone tried this diet? I...

Hi I have been reaearching the Paleo diet. I would really like to start it with...

Gitaga

•5 years ago

8 Replies

Any tips to reduce bruising from injections?

Hi I’ve recently switched to methotrexate injections and I’m using the Metoject pens. I’m finding they bruise quite a bit. I also use the Simponi pens...

Hi I’ve recently switched to methotrexate injections and I’m using the Metoject ...

CarolineGN

•5 years ago

16 Replies

Taken off baricitinib to try tofacitinib

Hi everyone been to the rheumatoid clinic today and the nurse has taken me off baricitinib to try these tablets instead tofacitinib has anyone been on these...

Hi everyone been to the rheumatoid clinic today and the nurse has taken me off b...

Beth72

•5 years ago

5 Replies

XELJANZ TREATMENT REPLACING HUMIRA

HI fellow sufferers of RA. Have been through a number of lifetimes on various drugs for this wretched disease. Has anyone found that 'Humira' did not work...

HI fellow sufferers of RA. Have been through a number of lifetimes on various d...

sproal

•5 years ago

11 Replies

ALCAT

Has anyone tried the ALCAT blood test for food intolerence to help you with your RA ?

Has anyone tried the ALCAT blood test for food intolerence to help you with your...

Frankiefocus

•5 years ago

5 Replies

Another wasted injection - darn it!

Hi all, Just wanted to find out how many people on biologics are experiencing faulty pens. 😬 This is the second time my injection pen did not work, very...

Hi all, Just wanted to find out how many people on biologics are experiencing f...

Hessie5

•5 years ago

20 Replies

Blimey it is soooooo hot

Well work was interesting after 3 days off. It was like being hit by a train again and with a 30deg day in a glass building let's just say an RA sweat on top...

Well work was interesting after 3 days off. It was like being hit by a train aga...

Hidden

•5 years ago

12 Replies

Holiday and methotrexate

Hi I was wondering if anyone has some advice. I’m on holiday in Rhodes temperature well in to the mid 30s. Since I’ve got here I am passing very little urine....

Hi I was wondering if anyone has some advice. I’m on holiday in Rhodes temperat...

Hidden

•5 years ago

4 Replies

Posts - NRAS | HealthUnlocked

NRAS

All posts for August 2019

Choice to be made on meds

Hummus Bread

Cryotherapy and ice baths

Sjogrens syndrome

Lack of knowledge.

Adalimumab and leflunomide

PIP Home Assessment

Swimming

Am I having a flare up?

NRAS Group Meetings Next Week

Our cats wedding anniversary gift

To cap it all they do this image on Versus Arthritis

Abatacept and indigestion

why would rheumatologist take me off hydroxychloroquine

Tofactinib

Long term options for going off medication?

How do they cope

Antibiotics for me

RA as a disability at work

Biologics and Cancer Diagnosis

Lifetime on Prednisone?

Have you been prescribed medication for your Rheumatoid Arthritis (RA)?

Paleo and RA

Any tips to reduce bruising from injections?

Taken off baricitinib to try tofacitinib

XELJANZ TREATMENT REPLACING HUMIRA

ALCAT

Another wasted injection - darn it!

Blimey it is soooooo hot

Holiday and methotrexate

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