Posts - NRAS | HealthUnlocked

NRAS

37,281 members•46,142 posts

All posts for May 2024

Leflunomide

Anyone here on this?My rheumatologist is thinking of adding it and I have been reading up on it. It's a bit scary

Anyone here on this?My rheumatologist is thinking of adding it and I have been r...

donnabrain

•6 months ago

18 Replies

confusion

For 4/5 years I have been under the inflammatory rheumatoid department . It has not been an easy time. I was given Humira and Benapli but infortunately had...

For 4/5 years I have been under the inflammatory rheumatoid department . It has ...

Luludean

•6 months ago

33 Replies

new mtx pens and bruising

Hi, I used the new style pen this week and have bruised! I sometimes got a little mark but this is a proper bruise. Anyone else experienced this? Ive been...

Hi, I used the new style pen this week and have bruised! I sometimes got a littl...

Hollyhock123

•6 months ago

12 Replies

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Raised AST and ALT levels and methotrexate

Hi, I was diagnosed with RA in December 23 and I have been on 15mg methotrexate weekly and 5mg folic acid once a week. I have just got to my final monthly...

Hi, I was diagnosed with RA in December 23 and I have been on 15mg methotrexa...

MelB71

•6 months ago

7 Replies

Rituximab and Denosumab

Has anyone had a Denosumab injection after having a Retuximab infusion. I have just had my second infusion and due a Denosumab injection soon. Just read that...

Has anyone had a Denosumab injection after having a Retuximab infusion. I have j...

Jacko37

•6 months ago

11 Replies

right foot fusion

anybody had one done recently

Deejojo

•6 months ago

4 Replies

Foot fusion

hi I have been on the waiting list since last July for my foot fusion 😔got a call from chapel Allerton yesterday to say I have my pre. Assessment phone call...

hi I have been on the waiting list since last July for my foot fusion 😔got a ca...

Deejojo

•6 months ago

4 Replies

Operation

I am going into hospital on Tuesday for my heart surgery. xxxx

sylvi

•6 months ago

115 Replies

Thank you

Thank you to everyone who responded to my appeal about biologic medicines and I am very grateful. So many different ones available now in the 9 yrs I've been...

Thank you to everyone who responded to my appeal about biologic medicines and I ...

LillyBeagle

•6 months ago

1 Reply

Any RA sufferers in France?

So, I am in Spain and although I asked for a referral to a RA specialist in March (when I changed areas), I haven't yet been contacted about an appointment....

So, I am in Spain and although I asked for a referral to a RA specialist in Marc...

Manzana1

•6 months ago

2 Replies

A bit of a pain in the 🍑

Hi Peeps 👋🏻 I hope this finds you as well as you can be today 😊 Well, I have had a bit of a journey recently. As I posted a couple of months back - I can't...

Hi Peeps 👋🏻 I hope this finds you as well as you can be today 😊 Well, I have ...

Moomin8

•6 months ago

41 Replies

stopped amgevita at 28 weeks pregnancy, live vaccines for the baby

hi all, I have RA and was on bio similar amgevita for the first and second trimester, stopped at 28weeks. I was told by the pediatrician that the baby...

hi all, I have RA and was on bio similar amgevita for the first and second tri...

Wendywendywendywendy

•6 months ago

5 Replies

Hands

I have increasingly a lack of grip in my hands I can't open jars without assistance yesterday I had to get a stranger to help as I had no screen wash in car. I...

I have increasingly a lack of grip in my hands I can't open jars without assista...

welsh12

•6 months ago

57 Replies

Help with choosing

I have had RA for 24 yrs, something that happened at the end of the menopause for me. There have been ups and downs over this time, but there has always been...

I have had RA for 24 yrs, something that happened at the end of the menopause fo...

LillyBeagle

•6 months ago

7 Replies

Finally...🥳

Hi I hope everyone is doing well and if not hang on in there and reach out as there is misch support on here! I've had the toughest few months since last...

Hi I hope everyone is doing well and if not hang on in there and reach out as t...

3LittleBirds2

•6 months ago

15 Replies

Psoriasis inside ear canal.

Does anyone else suffer from this. It's driving me mad! What has helped if anything? I have tried steroid cream.

Does anyone else suffer from this. It's driving me mad! What has helped if anyth...

Blackberrywine

•6 months ago

25 Replies

RA got worse after pneumonia

After pneumonia my ra took a turn for the worse. Could a medicine change help

Vonnie69

•6 months ago

2 Replies

Pausing methotrexate

I posted previously about suspected side effects of mtx, mainly brain fog and fatigue. When I asked rheumatology about trying a different drug i was told...

I posted previously about suspected side effects of mtx, mainly brain fog and fa...

Sebastian247

•6 months ago

33 Replies

Change of meds and delivery company

Hi everyone. I have had a letter from hospital. They are changing me over from Imraldi to Yuflyma and changing my deliveries from Sciensus to Personal...

Hi everyone. I have had a letter from hospital. They are changing me over from ...

Mich1701

•6 months ago

8 Replies

Hydroxychloroquine and tinnitus

I been on leflunomide and hydroxychloroquine for about ten months and have suddenly developed tinnitus, and feel as if I have a small electrical substation...

I been on leflunomide and hydroxychloroquine for about ten months and have sudde...

spartacus101

•6 months ago

26 Replies

lefluamide

had to stop metho.because of 2 chest infections. Now only on single tablet of lefluamide. Will it work on its own to prevent flare ups?

had to stop metho.because of 2 chest infections. Now only on single tablet of l...

Cal48

•6 months ago

5 Replies

Tocilizumab and heartburn

Hello, I wonder if anybody else with experience of this and if so can you remember if it passed? I’m finally back on Tocilizumab after an ankle replacement,...

Hello, I wonder if anybody else with experience of this and if so can you reme...

Inanotherlife

•6 months ago

4 Replies

methotrexate taken one day earlier than normal !

Hi Just a quick question for advice please My husband takes methotrexate (tablets) 20mgs weekly. He has just taken his usual dose but it’s a day earlier...

Hi Just a quick question for advice please My husband takes methotrexate (tabl...

Feelingpoorly

•6 months ago

14 Replies

Steroid injection worn off?

Hope everyone is having the best day they can.I am newly diagnosed with inflammatory arthritis, already having osteoarthritis and recently diagnosed with...

Hope everyone is having the best day they can.I am newly diagnosed with inflamma...

hazelcats

•6 months ago

23 Replies

Benapali and developing eczema

Has anyone else noticed that their skin on face and scalp has areas of flaky skin, especially at the edges of your hairline behind ears and on scalp. I bought...

Has anyone else noticed that their skin on face and scalp has areas of flaky ski...

Gjbrose

•6 months ago

8 Replies

ToeNail fungus treatment and Methotrexate

I’ve recently been recommended Curanail by my footcare practitioner for a toe nail fungus condition. I wondered if any one has used this while taking weekly...

I’ve recently been recommended Curanail by my footcare practitioner for a toe na...

L-ttie

•6 months ago

12 Replies

L4-L5 L5-S1 surgery

It looks like I will soon be offered the above surgery as soon my BMI drops below 30. I cannot tell you how worried I am not only about undergoing 6 hours...

It looks like I will soon be offered the above surgery as soon my BMI drops belo...

gulshanmunshi

•6 months ago

9 Replies

trying to taper Hydroxy but I think it’s failing.

in my second attempt to come off hydroxy. It’s failing as my pain and sore joints have come back. Am on MTX . I declined stoping dead and tapered with a month...

in my second attempt to come off hydroxy. It’s failing as my pain and sore joint...

Pognose123

•6 months ago

28 Replies

retuximab

I had 28 infusions with retuxinab back in 2008, about 2 years later , all my teeth detached from the nerves and had to be pulled as they were literally falling...

I had 28 infusions with retuxinab back in 2008, about 2 years later , all my tee...

bigtfrancis

•6 months ago

10 Replies

Hydroxychloroquine and Methotrexate

Hi, I am now on 20mg Methotrexate and 400mg of hydroxychloroquine and my blood platelet count came back low from my last test. I have only been on this regime...

Hi, I am now on 20mg Methotrexate and 400mg of hydroxychloroquine and my blood p...

Greenteas

•6 months ago

15 Replies

Posts - NRAS | HealthUnlocked

NRAS

All posts for May 2024

Leflunomide

confusion

new mtx pens and bruising

Raised AST and ALT levels and methotrexate

Rituximab and Denosumab

right foot fusion

Foot fusion

Operation

Thank you

Any RA sufferers in France?

A bit of a pain in the 🍑

stopped amgevita at 28 weeks pregnancy, live vaccines for the baby

Hands

Help with choosing

Finally...🥳

Psoriasis inside ear canal.

RA got worse after pneumonia

Pausing methotrexate

Change of meds and delivery company

Hydroxychloroquine and tinnitus

lefluamide

Tocilizumab and heartburn

methotrexate taken one day earlier than normal !

Steroid injection worn off?

Benapali and developing eczema

ToeNail fungus treatment and Methotrexate

L4-L5 L5-S1 surgery

trying to taper Hydroxy but I think it’s failing.

retuximab

Hydroxychloroquine and Methotrexate

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