Posts - NRAS | HealthUnlocked

NRAS

37,273 members•46,139 posts

All posts for March 2023

Sciensus !!

Never had a problem till Wednesday. Starting Amgevita, delivery arrived last week nurse booked to come out Wednesday just gone. Sat twiddling my thumbs...

Never had a problem till Wednesday. Starting Amgevita, delivery arrived last...

Bootoo

•2 years ago

14 Replies

Pre diagnosis and lost in the weeds

Hi everybody, I hope I'm doing this correctly. I'm feeling very lost at the moment. What did any of you do for pain relief while waiting for your rhuem appt...

Hi everybody, I hope I'm doing this correctly. I'm feeling very lost at the mo...

Quinni

•2 years ago

40 Replies

Gp refuses hydroxychloroquin

Has anyone else been told by their gp that they will not give a prescription for hydroxychloroquin in spite of 2 letters from my consultant informing them...

Has anyone else been told by their gp that they will not give a prescription for...

Jumbo2012

•2 years ago

36 Replies

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prednisone Tapering

Hi All. I am a newbie and trying to learn as much as I can about RA 1st flare was in October 2022 Diagnosed RA January 2023 1st Rheumy visit Feb 2023. Was...

Hi All. I am a newbie and trying to learn as much as I can about RA 1st flare w...

TaylorPlayer

•2 years ago

9 Replies

Thumb joint twitching

Hi, does anyone experience thumb twitching? My joint at the base of my thumb has started to twitch randomly. Not sure if it’s an RA thing or something else, so...

Hi, does anyone experience thumb twitching? My joint at the base of my thumb has...

JammieDodger3

•2 years ago

9 Replies

Tocilizumab

How do I know if my toclizumab isn't working any more. ? I've had a terrible flare up now going into it's 4 week my gp gave me a steriod injection 3 weeks ago...

How do I know if my toclizumab isn't working any more. ? I've had a terrible fl...

Vonnie10

•2 years ago

35 Replies

Consentyx and illness

Morning everyone, I posted a little while ago asking about cosentyx. I've taken the 5 loading doses and with each one became more poorly like general sore...

Morning everyone, I posted a little while ago asking about cosentyx. I've taken ...

Ewillow

•2 years ago

16 Replies

Nurse visit and medicine options

I've been on oral MTX (25 mg) for 5 months and added sulphasalazine in February. Also just finished a short prednisolone course. I get better when on pred and...

I've been on oral MTX (25 mg) for 5 months and added sulphasalazine in February....

Gottarelax

•2 years ago

19 Replies

Methotrexate

How long did everyone stay on methotrexate before it was decided that it wasn't helping. I've been on them 6 months now and feel even worse

How long did everyone stay on methotrexate before it was decided that it wasn't ...

Brian1977

•2 years ago

32 Replies

covid thoughts

this has been a “messy” covid with me spluttering and coughing for the last two full days and nights. Gone through so many hankies but my oxygen is at 94% on...

this has been a “messy” covid with me spluttering and coughing for the last two ...

TheBoys

•2 years ago

5 Replies

Brilliant explanation of RD

This Dr is amazing i admire him so much .. This is Dr Amir Khan explaining what RD actually is x...

This Dr is amazing i admire him so much .. This is Dr Amir Khan explaining what ...

julie1908

•2 years ago

6 Replies

Worried about hand

I'd like some advice please. I have had RA damaging my hands and wrists for a long time, but I've never experienced anything like this before. My 2nd and 3rd...

I'd like some advice please. I have had RA damaging my hands and wrists for a lo...

Createsomething

•2 years ago

37 Replies

just checking in

Guys hope your all good not been on here much as not been great methotrexate lifted my liver count and so was stopped had to wait for funding for biologists...

Guys hope your all good not been on here much as not been great methotrexate ...

Gottaloveastaffy

•2 years ago

6 Replies

Help explaining ra to family

Hi is there a book or website that I can show to my family to explain how ra affects The body I am getting tied of trying

Hi is there a book or website that I can show to my family to explain how ra aff...

Conster

•2 years ago

20 Replies

What happens if I refuse a treatment?

Hi, I have seropositive Rheumatoid Arthritis and am currently on methotrexate and Rituximab infusions. I would like to know if anyone has ever refused...

Hi, I have seropositive Rheumatoid Arthritis and am currently on methotrexate an...

JulezH

•2 years ago

19 Replies

Wrist fusion (arthrodesis) and using a computer

I'm 58 and have had rheumatoid arthritis since 2003. My job is computer-based, with extensive use of computer mouse commands in various software packages. I...

I'm 58 and have had rheumatoid arthritis since 2003. My job is computer-based, ...

DaphRA

•2 years ago

3 Replies

NRAS Live: The importance of exercise when living with inflammatory arthritis

Tune in on tomorrow at 7pm and join Clare Jacklin (NRAS CEO), Will Gregory (Consultant Physiotherapist and Clinical Governance Lead Rheumatology Directorate)...

Tune in on tomorrow at 7pm and join Clare Jacklin (NRAS CEO), Will Gregory (Cons...

Aribah-NRAS

Partner•2 years ago

2 Replies

missing one day JAK tablet

Hi everyone Can I get a bit of advice please from your experience.Started filgotinib 2 weeks ago and doing well.still a little lightheaded in the morning...

Hi everyone Can I get a bit of advice please from your experience.Started filgo...

Doodlereggie

•2 years ago

10 Replies

MTX shortage

I hope this is temporary, but here in the US just recently there is a shortage of MTX. My doc just told me to start injectable. The pharmacy cannot fill the...

I hope this is temporary, but here in the US just recently there is a shortage o...

BeachsideVia

•2 years ago

26 Replies

Topical Treatment for RA Joint Pain

My RA has been fairly well-managed with fortnightly 40ml adalimumab injections and weekly 20mg methotrexate injections for a few months. Since starting these...

My RA has been fairly well-managed with fortnightly 40ml adalimumab injections a...

Aporiac

•2 years ago

20 Replies

Early Easter Chick Love 🐣🥰

I thought I'd share the love 🥰with you lovely people. I work in a primary school, as some of you may already know, and we've had live eggs in our Reception...

I thought I'd share the love 🥰with you lovely people. I work in a primary schoo...

Moomin8

•2 years ago

18 Replies

Ikea mattresses

Hi everyone. I have been told the Ikea 'Valevag' mattress is a very good one and has a 10 year guarantee. Has anyone with RA/ OA here bought one? I get very...

Hi everyone. I have been told the Ikea 'Valevag' mattress is a very good one an...

RidgebackLady

•2 years ago

20 Replies

Am off hdy

I went to get my medication and the chemist has cancelled hdry because they cannot get them, I rang up rumey nurse and they have decided to take me off them...

I went to get my medication and the chemist has cancelled hdry because they cann...

Carolsos

•2 years ago

5 Replies

Returning back to work

I am going back to work on Tuesday, think the tablets have started working now! Am not crying now and the palpitations have stopped. Thanks for your replies

I am going back to work on Tuesday, think the tablets have started working now!...

Carolsos

•2 years ago

8 Replies

5 weeks after foot surgery

Well 5 weeks ago I had surgery on both feet. A toe fusion on one foot & a an amputation of the toe end on the other foot. It’s not been easy but I’m getting...

Well 5 weeks ago I had surgery on both feet. A toe fusion on one foot & a an am...

Otto11

•2 years ago

21 Replies

Covid

Also know of 7 people who came away from a wedding with covid.

Wantplaytennis

•2 years ago

2 Replies

biologic therapy

I have been on methotrexate for 20 years for RA. I started at 10 mg. Went to 15mg fairly promptly and then 20mg last year. In general I had no side effects...

I have been on methotrexate for 20 years for RA. I started at 10 mg. Went to 15m...

Barrcroom

•2 years ago

53 Replies

Migraines!

Anyone else suffer from these? Yesterday was horrendous. Honestly felt like someone was smashing me in the occipital region with a cricket bat. Of course I'd...

Anyone else suffer from these? Yesterday was horrendous. Honestly felt like some...

Blackberrywine

•2 years ago

19 Replies

Bump bump

I had three backwards falls onto a hard floor on my head some days ago. When I could get out of bed I took myself off to the local hospital where collapse is...

I had three backwards falls onto a hard floor on my head some days ago. When I c...

Theziggy

•2 years ago

2 Replies

does leflunomide affect my antidepressant, venlafaxine?

hello! i have just started a prescription of leflunomide two weeks and two days ago. i take a serotonin-norepinephrine reuptake inhibitor (snri) as well, that...

hello! i have just started a prescription of leflunomide two weeks and two days ...

hazmatrec

•2 years ago

13 Replies

Posts - NRAS | HealthUnlocked

NRAS

All posts for March 2023

Sciensus !!

Pre diagnosis and lost in the weeds

Gp refuses hydroxychloroquin

prednisone Tapering

Thumb joint twitching

Tocilizumab

Consentyx and illness

Nurse visit and medicine options

Methotrexate

covid thoughts

Brilliant explanation of RD

Worried about hand

just checking in

Help explaining ra to family

What happens if I refuse a treatment?

Wrist fusion (arthrodesis) and using a computer

NRAS Live: The importance of exercise when living with inflammatory arthritis

missing one day JAK tablet

MTX shortage

Topical Treatment for RA Joint Pain

Early Easter Chick Love 🐣🥰

Ikea mattresses

Am off hdy

Returning back to work

5 weeks after foot surgery

Covid

biologic therapy

Migraines!

Bump bump

does leflunomide affect my antidepressant, venlafaxine?

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