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NRAS

36,581 members • 45,192 posts

All posts for March 2020

Ohh the pain today

Pain today man it’s been rough. My back is hurting and has drained me. I have failed yet another Med methotrexate so now my RA doc is keeping me on the...

Pain today man it’s been rough. My back is hurting and has drained me. I have f...

precious123

•4 years ago

10 Replies

Am I to self isolate - had no letter

Hi all x I’m 45 & have ankylosing spondylitis,I self inject once a week with benapali & im not sure if I should be self isolating? I’m not sure but does...

Hi all x I’m 45 & have ankylosing spondylitis,I self inject once a week with ben...

Redisluck

•4 years ago

14 Replies

Benepali not injected properly

Hi all, I have just done my Benepali injection and the second click just didn’t happen. Eventually I stopped injecting and I can see that not the whole dose...

Hi all, I have just done my Benepali injection and the second click just didn’t ...

kerryhannah

•4 years ago

8 Replies

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Holiday

Looking for advice we have a holiday booked for the 4th July 2020 to Ibiza I have had an email from TUI suggesting that this holiday will go ahead . I have RA...

Looking for advice we have a holiday booked for the 4th July 2020 to Ibiza I hav...

231952

•4 years ago

25 Replies

Webinar last night

Can anyone tell me how or where we find the recording of the webinar last night please?

Can anyone tell me how or where we find the recording of the webinar last night ...

Sheila_G

•4 years ago

9 Replies

Working from home

I appreciate how fortunate I am to be able to work from home currently. Never did I realise how hard it would be especially trying to track down the new ways...

I appreciate how fortunate I am to be able to work from home currently. Never di...

Summerrain14

•4 years ago

5 Replies

Don't eat toffee!

I've just an email from dentist he's now closed due to the virus. Along with all the rest not even an emergency one is going go be available yet as not set up....

I've just an email from dentist he's now closed due to the virus. Along with all...

medway-lady

•4 years ago

21 Replies

European Patient Registry for COVID-19

Has everyone signed up to the European COVID-19 registry yet? https://www.jarproject.org/covid There's an adult version of the survey and one for children (to...

Has everyone signed up to the European COVID-19 registry yet? https://www.jarpro...

RebeccaMB

•4 years ago

3 Replies

Wishbone

Hi all has anyone heard anything from Wishbone , I remember last week he was concerned he had a uti and I’ve seen nothing since . ☝️🌷

Hi all has anyone heard anything from Wishbone , I remember last week he was con...

Nessa28

•4 years ago

59 Replies

Safe shopping,handy video

https://youtu.be/sjDuwc9KBps

VeronicaF

•4 years ago

2 Replies

The letter

What do s the letter mean if you do get one I work so if I give a letter in will I get payed I am on methotrexate,benepali ,hydolroxphine and work in a...

What do s the letter mean if you do get one I work so if I give a letter in will...

Soundofmusic52

•4 years ago

12 Replies

Has anyone with RA received a letter about Shielding for 3 months ?

Hi everyone this is my first time on this forum. I kinda found it by chance, I was looking to see if anyone with RA had been letterd about shielding for 3...

Hi everyone this is my first time on this forum. I kinda found it by chance, I w...

Hidden

•4 years ago

9 Replies

Latest research on RA and LDN.

New research on the effects of LDN on RA is coming up all the time.This was interesting in my view. https://www.ncbi.nlm.nih.gov/pubmed/30763385

New research on the effects of LDN on RA is coming up all the time.This was inte...

Agoodlife

•4 years ago

7 Replies

Inflectra

Hi all has anyone been on inflectra infusions. If so how did you get on with it.

Hi all has anyone been on inflectra infusions. If so how did you get on with it....

jaqi1

•4 years ago

2 Replies

Food box delivery - better availability

Hello all, Just a quick note for those who are staying in, hope it is okay to post a link like this, just thought it might be useful. I've just been able to...

Hello all, Just a quick note for those who are staying in, hope it is okay to po...

dawkin_S

•4 years ago

3 Replies

What are you doing

So I just got a delivery of veg and meat coming . I'm very aware I'm shielding and dont want the packages directly into the house . The delivery is on the...

So I just got a delivery of veg and meat coming . I'm very aware I'm shielding ...

allanah

•4 years ago

23 Replies

Happiness is

1.Seen son, DIL and baby on FaceTime all well at the moment 2 Getting a Tesco slot ! 3 They have bread flour and jam and chocolate spread (I love that stuff)...

1.Seen son, DIL and baby on FaceTime all well at the moment 2 Getting a Tesco sl...

medway-lady

•4 years ago

18 Replies

Letter from GP about Covid-19

Well I got my letter from my GP about the Coronavirus. Looks like I will have to arrange a delivery service for my monthly medication pick up. Seven pages...

Well I got my letter from my GP about the Coronavirus. Looks like I will have to...

Frankiefocus

•4 years ago

16 Replies

Nras webcast

They discuss being part of this project which is helping Rheumatologists and Covid epidemiologists. I put the link up , it's a very short survey they send...

They discuss being part of this project which is helping Rheumatologists and Cov...

allanah

•4 years ago

7 Replies

Does anyone know what counts as 'recurrent infections'?

Good morning all, hope you are all well today! Bit grey here in Surrey but the birds are still singing. :) I've just been looking at the kindly provided Leeds...

Good morning all, hope you are all well today! Bit grey here in Surrey but the b...

dawkin_S

•4 years ago

4 Replies

Good morning. Optimism and happiness

Like many I have found the past week a little difficult. At times I’ve felt stressed and anxious. Then I decided to limit my exposure to news and any doom...

Like many I have found the past week a little difficult. At times I’ve felt stre...

Brushwork

•4 years ago

11 Replies

Home teaching

Morning all I hope you’re all well & feeing positive. Here’s something to help the day along. This morning’s lesson, famous achievers:- My eleven year old...

Morning all I hope you’re all well & feeing positive. Here’s something to help t...

Olderguy

•4 years ago

8 Replies

Enhanced Social Distancing

Apologies if this has already been answered somewhere ...... I have been told verbally by a RA physio that the meds I am on put me in the moderate risk group...

Apologies if this has already been answered somewhere ...... I have been told ve...

Salsagirl13

•4 years ago

11 Replies

Tuesday wishes

Good Morning everyone. Wishing you a good day ahead with things that make you feel happy. I’m feeling an overwhelming feeling of sadness this morning. Not sure...

Good Morning everyone. Wishing you a good day ahead with things that make you fe...

Summerrain14

•4 years ago

18 Replies

Neck headache spine/pelvis/hip pain

Iv come of steroids 4 days ago since then pain and swelling is worse , my bottom of my spine and top of spine has been killing me woke up this morning with a...

Iv come of steroids 4 days ago since then pain and swelling is worse , my bottom...

Annemarie24

•4 years ago

14 Replies

Thankyou NRAS again

The webinar tonight with Dr Liz McPhie was absolutely excellent. You can Watch it recorded , they said the link will be on the NRAS website ..nras.org.uk

The webinar tonight with Dr Liz McPhie was absolutely excellent. You can Watch i...

allanah

•4 years ago

6 Replies

Stop or carry on taking meds

I've posted about this before. I've tried contacting rheumy dept but nobody there now. NRAS articles help and they recommend continuing with meds but point out...

I've posted about this before. I've tried contacting rheumy dept but nobody ther...

mikefox

•4 years ago

12 Replies

Newspaper deliveries

Many of the elderly people who live in my village are having newspapers delivered by the village shop. They think that it's safe because the delivery man wears...

Many of the elderly people who live in my village are having newspapers delivere...

mikefox

•4 years ago

30 Replies

How sick do you need to be?

My cousin in his early 70s lost his wife on Sunday. He rang 111 as she had a turn( how he described it) and was very shivery and rambling. They said she was...

My cousin in his early 70s lost his wife on Sunday. He rang 111 as she had a tur...

Hidden

•4 years ago

42 Replies

sulfasalazine

Hello everyone. I hope your all keeping well as you can in thus scary time. I’m just wondering if anyone has ever had a reaction with sulfasalazine ? I started...

Hello everyone. I hope your all keeping well as you can in thus scary time. I’m ...

Pinkplum

•4 years ago

20 Replies

Posts - NRAS | HealthUnlocked

NRAS

All posts for March 2020

Ohh the pain today

Am I to self isolate - had no letter

Benepali not injected properly

Holiday

Webinar last night

Working from home

Don't eat toffee!

European Patient Registry for COVID-19

Wishbone

Safe shopping,handy video

The letter

Has anyone with RA received a letter about Shielding for 3 months ?

Latest research on RA and LDN.

Inflectra

Food box delivery - better availability

What are you doing

Happiness is

Letter from GP about Covid-19

Nras webcast

Does anyone know what counts as 'recurrent infections'?

Good morning. Optimism and happiness

Home teaching

Enhanced Social Distancing

Tuesday wishes

Neck headache spine/pelvis/hip pain

Thankyou NRAS again

Stop or carry on taking meds

Newspaper deliveries

How sick do you need to be?

sulfasalazine

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