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NRAS

36,540 members • 45,165 posts

All posts for July 2021

PIP

How long are you supposed to wait for a decision from tribunals about a decision on my PIP mobility? I applied first in 2017 already had PIP general but...

How long are you supposed to wait for a decision from tribunals about a decision...

mogs231

•3 years ago

17 Replies

Off topic (but not)…. Dating

Hi all. Happy Saturday. How have you all been? I’ve been feeling quite good lately. The MTX seems to have started working thankfully and I’ve had a bout of...

Hi all. Happy Saturday. How have you all been? I’ve been feeling quite good late...

Pink75928

•3 years ago

36 Replies

RASHES WITH RA

Hi, I managed to see the nurse at my GP practice yesterday. I am wondering if any one else on Methotrexate, has vascular dermatitis or vascular eczema on...

Hi, I managed to see the nurse at my GP practice yesterday. I am wondering if ...

Knip

•3 years ago

12 Replies

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Methotrexate reaction

Hi everyone, my name is Angie and I am a CLL patient and was recently diagnosed with Lymphomatoid papulosis and put on 10MG of methotrexate along with Folic...

Hi everyone, my name is Angie and I am a CLL patient and was recently diagnosed ...

Angie4now

•3 years ago

26 Replies

I’m a old gent with Rheumatoid A in my ✋s on Salazo—- for 18mon, heavy head, lacking energy, tired eyes, sim experi’ce? am on othr-meds

I’m being treated with Salazoprin

Hoshe_53Dab

•3 years ago

3 Replies

RA with knee?

I have (what's been referred to) as severe RA. I've ALWAYS flared up in my hands, wrists, and shoulder. Suddenly, my knee popped out of the joint when...

I have (what's been referred to) as severe RA. I've ALWAYS flared up in my hand...

patrickd

•3 years ago

10 Replies

RA and entertaining the family.

I was originally diagnosed with PMR and a couple of years later with RA. I therefore take immuno-suppressant medication. My stepdaughter and her family want...

I was originally diagnosed with PMR and a couple of years later with RA. I ther...

ddwyer

•3 years ago

8 Replies

Nausea and vomiting - at 7.5 / 8mgs Pred?

Hi Folks, Just wanted to pick all your super human brains again if that's ok, you lovely people! Have had a lot of problems lately, but most debilitating over...

Hi Folks, Just wanted to pick all your super human brains again if that's ok, yo...

strawclutching

•3 years ago

17 Replies

Phone consultation today with specialist nurse

Hi, had my phone consultation today. I'm starting methotrexate next Fri ,15mgs to start with I'm happy, and apprehensive, as I just want to start to feel...

Hi, had my phone consultation today. I'm starting methotrexate next Fri ,15mgs t...

jojoishere

•3 years ago

32 Replies

AAAAAAAAGGGG🤯🤯🤯🤯🤯🤯

I’m about to explode!!! 3 days I’ve been trying to get through to my Gp. My pregablin is not on repeat and only given 4 weeks at a time. Was told last week...

I’m about to explode!!! 3 days I’ve been trying to get through to my Gp. My pre...

Hidden

•3 years ago

121 Replies

Good Friday Everyone! DAS

Please could someone tell me if the DAS criteria has changed? After reading another post this morning I looked up some calculators, but they don't seem to...

Please could someone tell me if the DAS criteria has changed? After reading ano...

Diamondpainting

•3 years ago

41 Replies

Iron supplementation and flares

Hello, I'm wondering if anyone has any experiences of adverse reactions to iron supplementation? I am not diagnosed with RA but have a MCTD which has features...

Hello, I'm wondering if anyone has any experiences of adverse reactions to iron ...

123MrsG

•3 years ago

13 Replies

DAS score

Hi All On a recent NRAS podcast it was said that it’s possible to do your own DAS score and it could be found on YouTube. Can anyone tell me how to get to it....

Hi All On a recent NRAS podcast it was said that it’s possible to do your own DA...

Bizzie

•3 years ago

6 Replies

Any one with RA have low neutrophils

Hello warriors I have been on Sulphasalazine for at least 3 years have to have bloods done monthly owing to raised liver enzymes . They gave improved since...

Hello warriors I have been on Sulphasalazine for at least 3 years have to have b...

Doughnut61

•3 years ago

9 Replies

Operation all go

Hi Guys just got my PCR result ( negative) so operation can go ahead.Driving down to Edinburgh on Saturday morning op in the afternoon. If all goes well can...

Hi Guys just got my PCR result ( negative) so operation can go ahead.Driving dow...

Matalow

•3 years ago

16 Replies

Amgevita and change in taste?

I started amgevita about a year ago, and have found a slight change in taste. I used to love Earl Grey tea - I know not everyone's favourite, but now I find no...

I started amgevita about a year ago, and have found a slight change in taste. I ...

Hodc

•3 years ago

5 Replies

Methotrexate

Relatively new to RA , Prescribed methotrexate yesterday by consultant. I’ve read leaflet and googled this drug, but nowhere suggests at what time of day to...

Relatively new to RA , Prescribed methotrexate yesterday by consultant. I’ve rea...

Bobbiebella

•3 years ago

16 Replies

Loosing hope

Sorry for the long post but I am loosing hope big time .....I have had rheumatoid arthritis since I was 19 I am now 35 and it was always quiet manageable until...

Sorry for the long post but I am loosing hope big time .....I have had rheumatoi...

994464

•3 years ago

42 Replies

Scotland publishes findings on vaccines

https://www.publichealthscotland.scot/news/2021/july/vaccine-offers-protection-for-most-clinically-vulnerable-to-covid-19/...

https://www.publichealthscotland.scot/news/2021/july/vaccine-offers-protection-f...

Moomin8

•3 years ago

15 Replies

Norfolk & Norwich hospital

Hi, I am moving to North Norfolk and wondered if anybody has any suggestions on rheumatologists working in the Norfolk & Norwich hospital please ? Thanks

Hi, I am moving to North Norfolk and wondered if anybody has any suggestions o...

Shanim

•3 years ago

3 Replies

Octave study update

I emailed Birmingham University last week for an update and this is the reply, I hope it helps The OCTAVE trial is still recruiting, and the full results...

I emailed Birmingham University last week for an update and this is the reply, I...

Dave74

•3 years ago

18 Replies

Fatigue and exercise - finding a balance

Hi all, First post on here and have been meaning to query as I feel lost in being able to fully explain how I feel to loved ones about the aches and strains...

Hi all, First post on here and have been meaning to query as I feel lost in bei...

FloralsandTrinkets

•3 years ago

17 Replies

Even more gutted

Ps I told a ‘friend’ about my struggle and she said that she thinks that it’s because I need to lose weight! 😬

Ps I told a ‘friend’ about my struggle and she said that she thinks that it’s be...

Smithycat

•3 years ago

41 Replies

Mild Sarcoidosis

Just joined this platform because I was diagnosed with sarcoidosis over a year ago because of inflammation in my ankles. Rheumatologist put me on methotrexate...

Just joined this platform because I was diagnosed with sarcoidosis over a year a...

Goldfinch16

•3 years ago

7 Replies

SUBSCRIPTION MISTAKE - SORRY

Hi folks, sorry but I have made a mistake, checked the website and what I actually did was join NRAS as a member. Sincere apologies for the confusion caused....

Hi folks, sorry but I have made a mistake, checked the website and what I actua...

Ritaritis

•3 years ago

4 Replies

Pain & swelling control

Hi folks finally started methotraxte 26/07/21. There were times when I screamed and broke down crying with the pain, sure other people had a similar...

Hi folks finally started methotraxte 26/07/21. There were times when I screamed ...

Ritaritis

•3 years ago

8 Replies

Will disease control and medication help fatigue?

I am almost diagnosed with Seronegative RA after 3 years of symptoms and many doctors and hospitals. I have edema around my joints, pain in hands and feet, and...

I am almost diagnosed with Seronegative RA after 3 years of symptoms and many do...

krillemy

•3 years ago

27 Replies

Eczema

I've been diagnosed with RA for 7 years now and between medication and exercise manage it well. However, recently I've noticed I've had several bouts of eczema...

I've been diagnosed with RA for 7 years now and between medication and exercise ...

Knitmare

•3 years ago

2 Replies

Absolutely gutted

I used to do a lot of swimming (literally miles) but because of being ill and then lockdown I haven’t been for a while. I started again this week and even...

I used to do a lot of swimming (literally miles) but because of being ill and th...

Smithycat

•3 years ago

17 Replies

Lots of Meds and no better.

Bear with me on this it's a long one. I'm 4 years post diagnosis at 40 yo. Currently on pred, mtx, rinvocoq. Have had sfx, hdroxcloro in past and tried three...

Bear with me on this it's a long one. I'm 4 years post diagnosis at 40 yo. Curr...

wilbertjellyfish

•3 years ago

6 Replies

Posts - NRAS | HealthUnlocked

NRAS

All posts for July 2021

PIP

Off topic (but not)…. Dating

RASHES WITH RA

Methotrexate reaction

I’m a old gent with Rheumatoid A in my ✋s on Salazo—- for 18mon, heavy head, lacking energy, tired eyes, sim experi’ce? am on othr-meds

RA with knee?

RA and entertaining the family.

Nausea and vomiting - at 7.5 / 8mgs Pred?

Phone consultation today with specialist nurse

AAAAAAAAGGGG🤯🤯🤯🤯🤯🤯

Good Friday Everyone! DAS

Iron supplementation and flares

DAS score

Any one with RA have low neutrophils

Operation all go

Amgevita and change in taste?

Methotrexate

Loosing hope

Scotland publishes findings on vaccines

Norfolk & Norwich hospital

Octave study update

Fatigue and exercise - finding a balance

Even more gutted

Mild Sarcoidosis

SUBSCRIPTION MISTAKE - SORRY

Pain & swelling control

Will disease control and medication help fatigue?

Eczema

Absolutely gutted

Lots of Meds and no better.

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