Posts - NRAS | HealthUnlocked

NRAS

36,581 members • 45,192 posts

All posts for January 2020

Tocilizumab & Travel

I need a cheap way to take about 7 away. Journey post 28hrs including an airline journey. Read Victoria feom NRAS suggested asking lloyds healthcare at home,...

I need a cheap way to take about 7 away. Journey post 28hrs including an airline...

Witsend8

•4 years ago

18 Replies

20 years old seeking advice on process of being diagnosed with RA

I'm 20 years old and currently in the process of being diagnosed with RA. It's been a distressing journey for me, the past year I have suffered from chronic...

I'm 20 years old and currently in the process of being diagnosed with RA. It's b...

geb527

•4 years ago

18 Replies

Finally got a diagnosis

Hi, I thought I would update you all with the latest news on my health. I went to see the consultant today after reviewing all my diagnostics results. She was...

Hi, I thought I would update you all with the latest news on my health. I went t...

Ms-D

•4 years ago

9 Replies

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How I minimized the uncomfortable feeling after taking methotrexate - 31/01/2020

Recently a few RA patients messaged me to complain that they have gastric problem and felt very bad after taking methotrexate and would like to have some...

Recently a few RA patients messaged me to complain that they have gastric proble...

Amy_Lee

•4 years ago

34 Replies

Humira! Hooray!

I don’t normally post anything but I felt I had to write this. I was taken off Humira and put on Imraldi (to save the NHS money - which I was more than happy...

I don’t normally post anything but I felt I had to write this. I was taken off H...

craftmay71

•4 years ago

18 Replies

Hair loss / thinning

Hi everyone, I’ve just joined this group, apologies if this has already been asked / discussed. I’m 29 and was diagnosed with RA when I was 16. I take Enbrel...

Hi everyone, I’ve just joined this group, apologies if this has already been as...

Helen212

•4 years ago

8 Replies

In the book about chronic fatigue was this

Credit for this wonderful list goes to my patient, Sylvia Waites) Thou shalt not be perfect nor try to be. Thou shalt not try to be all things to all...

Credit for this wonderful list goes to my patient, Sylvia Waites) Thou shalt n...

Hidden

•4 years ago

30 Replies

Thought for the day

Should we think about campaigning to get Rheumatoid included in The NHS list of long term conditions.?

Should we think about campaigning to get Rheumatoid included in The NHS list of ...

vonniesims

•4 years ago

13 Replies

Steroids

Hi. Can anyone help me with this problem. I have had RA for 25 years I'm on methotrexate 15mg a week but 16 months ago was put on steroids by GP who thought I...

Hi. Can anyone help me with this problem. I have had RA for 25 years I'm on meth...

lucy40

•4 years ago

15 Replies

Gastro-resistant Sulfasalazine shortage?

Hi, I've just signed up to the forum. Nice to meet you all. I was diagnosed with RA in 2017. Just wondering if anyone else is experiencing a medication...

Hi, I've just signed up to the forum. Nice to meet you all. I was diagnosed with...

mjrminor

•4 years ago

19 Replies

Sleep

Got hit by the MTX sleep fairies 🧚‍♀️ last night bed at 945 and just woken up and not one wake up during the night. Feel like I am in some guilty pleasure as...

Got hit by the MTX sleep fairies 🧚‍♀️ last night bed at 945 and just woken up a...

Hidden

•4 years ago

5 Replies

& another pic

Maybe this angle gives you a better view of the dent.

Caza

•4 years ago

11 Replies

DIPs

Following on from a post on here, I thought I’d ask you knowledgeable folk what you make of my weird nail?Over time that part of my finger has become very red...

Following on from a post on here, I thought I’d ask you knowledgeable folk what ...

Caza

•4 years ago

6 Replies

Biochemical versus mental health

It's been a struggle for 14 months coping with RA and the aftermath of the diagnosis, the consequential side effects of many types of medication and keeping a...

It's been a struggle for 14 months coping with RA and the aftermath of the diagn...

Jaxine

•4 years ago

31 Replies

Persistent low level headache and dizziness since moving from oral MTX to injections . . . or just me being odd?

A little bit of background first. I'm relatively new to my RA diagnosis (although not RA I fear!) - November 2018. I have sero-negative RA. I've been under the...

A little bit of background first. I'm relatively new to my RA diagnosis (althoug...

jbzm

•4 years ago

6 Replies

Afternoon chills

Hi, yes, I am glad that I googled this now. For the past 5 years or so, I get super cold in the afternoons even in the summer. The time isn't always the same...

Hi, yes, I am glad that I googled this now. For the past 5 years or so, I get s...

Jodie03

•4 years ago

2 Replies

Help!!

After diagnosed for R.A. 4 years ago, having infusions of Actemera, then Orincia, and taking all the usual oral meds, Methatrexate, plaquinal, prednisone, I’m...

After diagnosed for R.A. 4 years ago, having infusions of Actemera, then Orincia...

Jollytime

•4 years ago

2 Replies

Breathlessness and Gallbladders

Not posted for a while but I’m in hospital with inflammation of the Gall Bladder , my BMI is too high for surgery at the moment. My question is I came off my...

Not posted for a while but I’m in hospital with inflammation of the Gall Bladder...

Joang

•4 years ago

16 Replies

Looking for other mums with RA

Hi everyone I'm new here and although I am 6 years along in.my RA journey, I'm only really beginning to deal with the fact I have this condition. My main issue...

Hi everyone I'm new here and although I am 6 years along in.my RA journey, I'm o...

Heraripley

•4 years ago

21 Replies

Thank you

Thank you to everyone who replied to my question about RA services in Northern Ireland. It was very helpful. The postcode seems to exist there as it does...

Thank you to everyone who replied to my question about RA services in Northern I...

Bizzie

•4 years ago

2 Replies

RA and fibromyalgia

Hello I have been to my monthly Rheumatology clinic yesterday and I have been diagnosed with fibromyalgia as well is this possible. The whole thing has been...

Hello I have been to my monthly Rheumatology clinic yesterday and I have been d...

Startrek65

•4 years ago

9 Replies

After my day

decided to post this

Hidden

•4 years ago

Be the first to reply

RA and RA Cachexia update

As promised I said I would drop off a note for those interested in the strength and conditioning program I was starting at the hospital. In a nut shell it is...

As promised I said I would drop off a note for those interested in the strength ...

RosieA

•4 years ago

7 Replies

COLD SORE

I have a cold sore and I don't know what triggered it. Would my RD or IBS-D have any relation to it?

I have a cold sore and I don't know what triggered it. Would my RD or IBS-D have...

mickeysmom34472

•4 years ago

4 Replies

Relative of RA suffers and Consultant's

Hi al, Anyone on here that is a relative of an RA sufferer. If so do they get resistance from their consultant should they ask questions at reviews?

Hi al, Anyone on here that is a relative of an RA sufferer. If so do they get re...

Buzz2010

•4 years ago

19 Replies

I do wonder if there are any RA sufferers that are not taking RA meds on this forum?

I have been here for five years and have never found anyone🧐

Agoodlife

•4 years ago

142 Replies

Coronavirus

The numbers keep climbing. I hope you are all taking as many precautions as you can.

The numbers keep climbing. I hope you are all taking as many precautions as you ...

Damaged

•4 years ago

13 Replies

Services in Northern Ireland?

Does anyone know what the RA services are like in Northern Ireland? We’re considering moving there from the South of England, near Portsmouth. We have a...

Does anyone know what the RA services are like in Northern Ireland? We’re cons...

Bizzie

•4 years ago

15 Replies

A heartfelt thank you

Thank you, each and everyone of you who responded to my post. I genuinely appreciate it. I learned a lot today and it was helpful and has reduced my fear a...

Thank you, each and everyone of you who responded to my post. I genuinely apprec...

Eiram50

•4 years ago

2 Replies

Great chat with rheumy nurse

Had a lovely chat with my rheumy nurse. Talked about where I am on MTX so she has sorted, so I get injections from next week and put me in for a 12 week check...

Had a lovely chat with my rheumy nurse. Talked about where I am on MTX so she ha...

Hidden

•4 years ago

4 Replies

Posts - NRAS | HealthUnlocked

NRAS

All posts for January 2020

Tocilizumab & Travel

20 years old seeking advice on process of being diagnosed with RA

Finally got a diagnosis

How I minimized the uncomfortable feeling after taking methotrexate - 31/01/2020

Humira! Hooray!

Hair loss / thinning

In the book about chronic fatigue was this

Thought for the day

Steroids

Gastro-resistant Sulfasalazine shortage?

Sleep

& another pic

DIPs

Biochemical versus mental health

Persistent low level headache and dizziness since moving from oral MTX to injections . . . or just me being odd?

Afternoon chills

Help!!

Breathlessness and Gallbladders

Looking for other mums with RA

Thank you

RA and fibromyalgia

After my day

RA and RA Cachexia update

COLD SORE

Relative of RA suffers and Consultant's

I do wonder if there are any RA sufferers that are not taking RA meds on this forum?

Coronavirus

Services in Northern Ireland?

A heartfelt thank you

Great chat with rheumy nurse

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