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NRAS

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All posts for April 2016

Lesley

Hi, this is my 1st post. It is surprising how many people are suffering which makes me feel i'm not alone. I am 57yrs old and have had R A since i was 28....Hi, this is my 1st post. It is surprising how many people are suffering which ma...

CloudTreeDrive13•

Chest infection

Hi All, I have RA and am on 12.5mg of methotrexate by injection. I also have Asthma. At the moment I feel as if I have the start of a chest infection and...Hi All, I have RA and am on 12.5mg of methotrexate by injection. I also have Ast...

Mauritius21

Not receiving any email since a long time. What has happened. Not receiving any email since a long time. What has happened.

What will I get at 65

Hi Beeper here, I was getting DLA and just been tested for PIP. Waiting for result. I am 65 in July, can I still get pip when I draw my state pension or do I...Hi Beeper here, I was getting DLA and just been tested for PIP. Waiting for resu...

How long is normal to wait for biologic initiation post qualifying please.

Hi All, I'm wondering about other's experiences regarding length if time to be initiated on a biologic after being given the green light regarding DAS scores...Hi All, I'm wondering about other's experiences regarding length if time to be i...

And so it goes on

My apologies if am boring people. I spoke to the Biologics Co.ordinator yesterday,explaining I was seen at the Chest Clinic on the 23rd of March and the...My apologies if am boring people. I spoke to the Biologics Co.ordinator yesterda...

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Off all meds!

Been on methotrexate for several years, with steroids aswell. Tried sulphasalazine and hydroxy chloroquine but allergic to both. Last few months...Been on methotrexate for several years, with steroids aswell. Tried sulphasalaz...

Anyone on rituximab?

Hello, I am 8 years post diagnosis and have failed on sulphasalazine, humira and enbrel. My last enbrel was September and I have managed on methotrexate (10...Hello, I am 8 years post diagnosis and have failed on sulphasalazine, humira and...

Rant coming re: chest infection...............

Do all excuse the rant that is coming....... I was at the drs this afternoon as i felt so poorly and the fatigue i was feeling so tired. It...Do all excuse the rant that is coming....... I was at the drs this ...

Anixety about mtx

Hi! I was diagnosed last year and started on mtx 25mg injections immediately. Have been on them now for 9 months. They have reduced my symptoms in the past...Hi! I was diagnosed last year and started on mtx 25mg injections immediately. Ha...

p i p

Well i have finally got the letter telling me how i received my pip it changes from DLA to PIP in May so do not know what the first letter was about probably...Well i have finally got the letter telling me how i received my pip it changes f...

Confused from the Preselis Hills

Hi I live in a tiny village in lovely Pembrokeshire in the Preselis. We have a small small holding or a large garden - depending on your point of view- and...Hi I live in a tiny village in lovely Pembrokeshire in the Preselis. We have a ...

Hi...I am a newby to this site and would welcome any positive information as i,ve recently been diagnosed...and it,s all very confusing.....

Hello...im newly diagnosed with ra{sero-negative]...ive been taking hydroxychloroquine for two wks now and am due to start mtx injections...the thing is,im...Hello...im newly diagnosed with ra{sero-negative]...ive been taking hydroxychlor...

mouth ulcers

I have had steroid injections in my shoulder and wrists 2 months ago which are now wearing off. I also take sulfasalazine and leflunamide and have started...I have had steroid injections in my shoulder and wrists 2 months ago which are n...

NRAS Group Meetings Next Week

Dear All Please find details of the NRAS group meetings taking place next weekend: NRAS Group Meetings—Week Commencing 2nd May 2016 Chesterfield NRAS Group...Dear All Please find details of the NRAS group meetings taking place next weeke...

Kim-NRASNRAS•

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How long does it take to start treatment after seeing a rheumatologist?

Hello My GP has requested an urgent referral to rheumatology. I saw a rheumatologist two years ago and was diagnosed with fibromyalgia. However over the past...Hello My GP has requested an urgent referral to rheumatology. I saw a rheumatolo...

RA LATEX

Hello everyone. Is RA LATEX the same of as the Rheumatoid factor and is a level of 128 too high ? Hello everyone. Is RA LATEX the same of as the Rheumatoid factor and is a level ...

Pip result.

Well fantastic news. I have been awarded Pip. Awarded the daily living component and the mobility component too. Backdated to January. Gets reviewed March...Well fantastic news. I have been awarded Pip. Awarded the daily living componen...

lifeboatann58•

Magnetic bracelets

Hi there my name is Debbie, I have RA, I was just wondering if anyone has information of magnetic bracelets and their experience possibly, as I was thinking...Hi there my name is Debbie, I have RA, I was just wondering if anyone has inform...

Faulty Metoject Pens

I had two Metoject pens that jammed last week -I couldn't press the button down to release the needle. I took one of the pens to the surgery and a nurse there...I had two Metoject pens that jammed last week -I couldn't press the button down ...

Has anyone used a rollator (wheeled walker with seat)?

At the grand old age of 35 I am finding it harder to ignore the pain and work through it (not that I should have been doing that anyway). Overdoing it has...At the grand old age of 35 I am finding it harder to ignore the pain and work th...

pinksugarmouse•

Sweating

I know one of the symptoms of our condition is sweating but wondered if anyone has any advice on how to control it...even a little. I'm getting quite...I know one of the symptoms of our condition is sweating but wondered if anyone h...

Crp result

Hi all. Finally after over 12 months of normal blood results my nurse informed me this morning that my crp was raised. I'm not sure how to interpret the...Hi all. Finally after over 12 months of normal blood results my nurse informed ...

Sulfasalazine

Hi. Just been prescribed Sulfasalazine along with leflunomide which I have been taking for the past 3 years, in so much pain , just hope this works. Anyone...Hi. Just been prescribed Sulfasalazine along with leflunomide which I have been...

New nras app -know your DAS

Brilliant new app! Just downloaded it...well impressed!! Brilliant new app! Just downloaded it...well impressed!!

We are launching a new app!

We are very pleased to announce the launch of our first ever app for people with rheumatoid arthritis (RA) across UK. The application is called 'Know Your DAS'...We are very pleased to announce the launch of our first ever app for people with...

Shivam-NRASAdministrator•

Concerned

Have been told to stop taking methotrexate and sulphsaldine immediately due to liver results. They said my results came back deranged. Am worried that I am...Have been told to stop taking methotrexate and sulphsaldine immediately due to l...

wrist fusion

Do anyone know of any nurses working with a fused wrist? I am trying to decide about having it done or get the nerves cut. Anyone has any input? Do anyone know of any nurses working with a fused wrist? I am trying to decide a...

PIP assessment

Hi all. First of all lets all start by thinking that it is summer time and with some luck maybe it will be. That said I had my PIP assessment done today at...Hi all. First of all lets all start by thinking that it is summer time and with ...

manwithnoname•

Not sure what to make of this.

I am not in a very positive frame of mind or feeling very confident at the moment. Yesterday I rang my Rheumy nurse to see if the funding had been agreed for...I am not in a very positive frame of mind or feeling very confident at the momen...

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