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NRAS

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All posts for November 2019

Christmas Night Out

So here I am on my Christmas night out with my work. While everyone is busy having fun I am in my room of our hotel with a swelling on my shoulder the size of...So here I am on my Christmas night out with my work. While everyone is busy havi...

Raging heat day

So I decided its an ice cream moment, NOT had any for ages and I need to cool down! Spontaneous combustion trying to be prevented. So I decided its an ice cream moment, NOT had any for ages and I need to cool do...

Can you describe your flares to me?

Hi there everyone, I am new here and relatively new to the RA experience. I was diagnosed with Seropositive RA in April this year, having had symptoms for...Hi there everyone, I am new here and relatively new to the RA experience. I was ...

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Flare??

On rituximab,,, had 3 or 4 treatments. Felt 3 months in that it was not working. Reaumy thinks it was a flare so going to try again in January. I thought you...On rituximab,,, had 3 or 4 treatments. Felt 3 months in that it was not working....

Back After 5 Years..

Hi everyone hope you're having a pain free day.. 5 years later and I'm still in pain and my hands are always swollen and warm to touch. 3 years ago my rheumy...Hi everyone hope you're having a pain free day.. 5 years later and I'm still in ...

EnglishRose63•

Cervical neck Spondylosis with neurological symptoms

I have many diagnosed health problems .. many like threatening and with distressing aggrevating symptoms .. but right now one of the most scary Is this .... I...I have many diagnosed health problems .. many like threatening and with distress...

Week 7 MTX

Week 7 some plus moments but nausea and diarrhea not great 2-3days after taking it. Got a review next week so hoping can change to injection. Fatigue still a...Week 7 some plus moments but nausea and diarrhea not great 2-3days after taking ...

cool pack

I am in need of a cool pack/ bag that will keep benepali at 2-8 degrees for at least 10 hours whilst travelling. Any of you lovely people any recommendations....I am in need of a cool pack/ bag that will keep benepali at 2-8 degrees for at ...

Diet ?

Hello everyone, I’m new here.I’ve just been diagnosed with rheumatoid arthritis 3 weeks ago, and I was started on treatment straight away. I’m just wondering...Hello everyone, I’m new here.I’ve just been diagnosed with rheumatoid arthritis ...

You CAN do it if you try!

So I started Couch to 5K back at the end of January. I knew it was going to be a challenge for me and I was NEVER going to complete it in 9 weeks. I was...So I started Couch to 5K back at the end of January. I knew it was going to be a...

Side effects from biologics

Hello all I am wondering what are the most common side effects people experience from taking biologic drugs or in fact general RA drugs. I am on Tocilizumab. I...Hello all I am wondering what are the most common side effects people experience...

Thank you 🙏

I just want to say thank you to everyone who read my rants on my Pip application and pushed and supported me not to give up. Thank you for all your good wishes...I just want to say thank you to everyone who read my rants on my Pip application...

A tad off tioic

Hi all Hoping everyone is as good as they can be today. Just looking for a little advice.... Today, I had my gallbladder removed and no matter what I do, I...Hi all Hoping everyone is as good as they can be today. Just looking for a littl...

Pip Pip hurray!!!

Very odd. Had a telephone call from the DWP at 6.45 this evening. I was awaiting a tribunal date then this evening had a phone call saying they had reviewed my...Very odd. Had a telephone call from the DWP at 6.45 this evening. I was awaiting...

Triggers

Hi I'm recently diagnosed and just wondered if anyone has noticed anything that triggers flair ups ? Just wondering if there is anything I should/ shouldn't do...Hi I'm recently diagnosed and just wondered if anyone has noticed anything that ...

Humira

https://www.theguardian.com/commentisfree/2019/nov/27/us-trade-deal-nhs-investigation-brexit-drugs https://www.theguardian.com/commentisfree/2019/nov/27/us-trade-deal-nhs-investig...

NEW TO SITE

New to site. Hi I also have RA plus other complicated issues. I am currently on a whole load of medications and an infusion once a month. I want...New to site. Hi I also have RA plus other complicated issues. I am currently...

NRAS Group Meetings Next Week

Dear All Please find details of the NRAS Group meetings taking place next week. For more information please visit our website www.nras.org.uk/groups NRAS...Dear All Please find details of the NRAS Group meetings taking place next week. ...

Kim-NRASNRAS•

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Melanoma

I haven’t been around for a while as I’ve had some pretty devastating news. I have been diagnosed with a stage 3 melanoma. I haven’t had it too long but I did...I haven’t been around for a while as I’ve had some pretty devastating news. I ha...

Bruises

Does anyone know if you bruise more easily when on Warfarin? Does anyone know if you bruise more easily when on Warfarin?

Dry eye drops/gel

Hi guys and fount of all wisdom, I am looking for advice on dry eye drops. I was prescribed Hydromoor eye drops but I now need something stronger. My GP...Hi guys and fount of all wisdom, I am looking for advice on dry eye drops. I was...

Update on my shoulder replacement.

I had my long awaited shoulder replacement nearly two weeks ago & have another week to go with my arm being held firmly in its sling. The op was not nearly as...I had my long awaited shoulder replacement nearly two weeks ago & have another w...

holly-willow•

Bit of good news...

Hurrah! 10 months since the OT approved it and I've finally had my stairlift installed! I'm so happy about it! I feel like a Bond villain whirring up and down...Hurrah! 10 months since the OT approved it and I've finally had my stairlift ins...

Infections & Imraldi

Hi everyone, Have not posted for quite a time. Primarily a very awkward house move, followed by a water infection with subsequent kidney infection. On advice...Hi everyone, Have not posted for quite a time. Primarily a very awkward house mo...

🙄🙄

Long awaited appointment (since April) for my feet. I have been in a lot of pain for years with my toes separating and lack of mobility. Had to fight for this...Long awaited appointment (since April) for my feet. I have been in a lot of pain...

Advice please

For the past few months I get like an internal shivering, I’m on Sulfasalazine and prednisolone. Does anyone have the same or any ideas what it could be. Thank...For the past few months I get like an internal shivering, I’m on Sulfasalazine a...

Steroid injection didn’t work :(

Hi I put a post on the other day about comments on Tocilizimubab as I hope to start in the next few weeks .. in the meantime Friday I had a steroid injection...Hi I put a post on the other day about comments on Tocilizimubab as I hope to st...

Vision problems

Hi just wandering if anyone else with RA suffers with blurred vision. Iv only recently been diagnosed with RA. But for last 6 weeks have been suffering with my...Hi just wandering if anyone else with RA suffers with blurred vision. Iv only re...

I wanted to walk again it's been 4months but im scared of brealing my thigh,again. It's a long steel rod.

Hi all. I have broken my leg 3 times. Thigh. It's been 4 months and im wondering if i could step on floor but im scared... im living in nightmares cant stop...Hi all. I have broken my leg 3 times. Thigh. It's been 4 months and im wondering...

Dropping off in the day timej

I am on Methotrexate and also have Sjorgens. I recently fell in our bedroom and couldn’t get up even with my husbands help. Daughter rang the ambulance...I am on Methotrexate and also have Sjorgens. I recently fell in our bedroom and...

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