Posts - NRAS | HealthUnlocked

NRAS

36,607 members • 45,226 posts

All posts for September 2021

3rd Covid Vaccine!! 🥳

Well, I decided to try a walk-in vaccine centre this evening with my prescriptions in hand, along with evidence of my Rituximab infusions...and I actually got...

Well, I decided to try a walk-in vaccine centre this evening with my prescriptio...

Moomin8

•3 years ago

30 Replies

Vaccine & Muddled Brain 😵‍💫

Ok. So I had a text today about a ‘Booster’ of the Covid jab…. signed up.. made the appointment. Some hours later I read The Govt letter I received a couple...

Ok. So I had a text today about a ‘Booster’ of the Covid jab…. signed up.. made ...

Hidden

•3 years ago

7 Replies

CAN'T WAIT TO ACTUALLY SEE THE NHS RHEUMATOLOGY CLINIC!

Sorry for the long winded post, I haven't posted for a while as I was feeling really fedup and couldn't be ar#ed if the truth be told (sound like Nessa from...

Sorry for the long winded post, I haven't posted for a while as I was feeling re...

Garnacha

•3 years ago

16 Replies

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Hi, I had my first round of rituximab, 5 weeks ago. I’ve been told I can have the covid booster and flu jab together. Is this advisable?

Covid vaccine and flu jab together

debjw

•3 years ago

25 Replies

Sorry folks big frustrated rant coming up !

Think the topic kind of sums it up. I will try not to swear but my frustration is just so over the top today after a series of phone calls and ‘live chat’ with...

Think the topic kind of sums it up. I will try not to swear but my frustration i...

Leics

•3 years ago

62 Replies

Baricitinib a fail, going to try Rinvoq

I had a telephone appointment with my rheumatoligist, and he is going to switch me to Rinvoq. I had high hopes for baricitinib, but after almost 4 months, my...

I had a telephone appointment with my rheumatoligist, and he is going to switch ...

ElizabethW

•3 years ago

5 Replies

Off Topic The name is Bond, James Bond

Is anyone biting the Bond bullet and venturing to the cinema? My local Odeon is opening at 9.30 for shielded. What if hundreds turn up? Or is it Moneypenny...

Is anyone biting the Bond bullet and venturing to the cinema? My local Odeon is ...

Green230461

•3 years ago

36 Replies

Cramp!

Think I may have asked about this before but does anyone have a “ Go to” remedy for night cramps? These are really vicious in my calves & feet, have tried...

Think I may have asked about this before but does anyone have a “ Go to” remedy ...

gilox

•3 years ago

19 Replies

3rd primary vaccine..

I know we’ve all had loads of questions about this and NRAS have just done an incredibly helpful Q&A on Facebook re the results of the Octave study and 3rd...

I know we’ve all had loads of questions about this and NRAS have just done an ...

RachelD1972

•3 years ago

32 Replies

Hi there I'm new to this my name is Claire is anyone waiting for hip replacement surgery??

Is anyone waiting for replacement hip surgery. I use 2 crutches and cannot get by without them 24/7 pain.....is this normal??

Is anyone waiting for replacement hip surgery. I use 2 crutches and cannot get b...

Clairemaria

•3 years ago

4 Replies

DWP : 1:1 PHONE CALL - UNPLEASANT EXPERIENCE

Hi folks, yesterday had a 1:1 phone call from an occupational therapist with the DWP and my search for work. I'm 63 with RA in multiple joints, it's flared up...

Hi folks, yesterday had a 1:1 phone call from an occupational therapist with the...

Ritaritis

•3 years ago

13 Replies

I'm new here and I'm losing hair due to Leflunomide

How long will my hair continue to fall out after stopping Leflunomide?

SLP4kids

•3 years ago

9 Replies

Stop hydroxychloroquine or not ??

Hi. I’ve tested positive for covid. I know to stop methotrexate if symptomatic ( I am ) but is that the same for hydroxychloroquine as well or should I keep...

Hi. I’ve tested positive for covid. I know to stop methotrexate if symptomatic (...

Fg45

•3 years ago

6 Replies

3rd Covid vaccination and timing of Cimzia injection

I thought this might be of interest to other members on Biologics. Just had an appointment made for my 3rd Covid vaccination. I contacted my Rheumatology team...

I thought this might be of interest to other members on Biologics. Just had an a...

Scottishlad

•3 years ago

2 Replies

Shall I mention to gp again

I have an unstable ankle, it can happen at any time and last a few minutes to hours and can disappear for days or be with me for days. Is it worth a repeated...

I have an unstable ankle, it can happen at any time and last a few minutes to ho...

missjwren

•3 years ago

6 Replies

3rd Covid jabs

Sorry to ask the same question again but has anyone on just 20mg Methotrexate been offered a 3rd Covid jab and has actually received it as have still not heard...

Sorry to ask the same question again but has anyone on just 20mg Methotrexate be...

Cavlover

•3 years ago

33 Replies

Bone Scan

Morning all 👋 I was wondering if anyone has had or been offered a bone scan? After 3 years of being ok on 10mg Mthx, had a bad flare in July - ESR high and...

Morning all 👋 I was wondering if anyone has had or been offered a bone scan? Af...

Chockyuk

•3 years ago

14 Replies

Lloyds Pharm. Clinical Homecare - medication delivery issues and contact?

This company seems to be avoiding communications with NHS patients who are waiting for delivery of critical RA medication. It is a situation that is causing...

This company seems to be avoiding communications with NHS patients who are waiti...

Brushwork

•3 years ago

5 Replies

I am getting a persistent cough

Is it always really bad or can a person have a cough with RA that is not too serious or destructive to the lungs. I have had a cough for about 8 months. I...

Is it always really bad or can a person have a cough with RA that is not too se...

smilelines

•3 years ago

11 Replies

Abatacept supply issues.

I have been having problems getting my Abatacept delivery from Lloyds recently. Rheumatology hadn't renewed my prescription because I hadn't been reviewed so...

I have been having problems getting my Abatacept delivery from Lloyds recently. ...

Biofreak

•3 years ago

31 Replies

Third Primary Jab

Hello, just seeing if anyone in Kent is on here and heard anything yet? Doctors didn’t even know there was a ‘third jab’ and rheumatologist won’t call back....

Hello, just seeing if anyone in Kent is on here and heard anything yet? Doctors...

Domhem

•3 years ago

63 Replies

Any advice on cars?

I really need to get a new car, currently have a Quashqai. The problem is I need one that is high enough to get in and out of and I really like the high seats...

I really need to get a new car, currently have a Quashqai. The problem is I nee...

Firion

•3 years ago

22 Replies

Facebook Live tomorrow at 7pm on the OCTAVE study results

EDIT: If you missed the Facebook Live, you can watch it here:...

Anita-NRAS

Partner•3 years ago

4 Replies

Third dose - rather than booster?

I actually don’t think there’s much difference - but I haven’t really researched it.

I actually don’t think there’s much difference - but I haven’t really researched...

Brushwork

•3 years ago

9 Replies

In Scotland and getting my 3rd Covid Vaccine

Just wanted to say I heard today from NHS Scotland that I will get my 3rd vaccine dose next week. I’m in Aberdeen and I’m pleased to say they are using small...

Just wanted to say I heard today from NHS Scotland that I will get my 3rd vaccin...

Knit12

•3 years ago

25 Replies

Third Primary Vaccine

Right, here we go. . Just had an email from my Rheumatologist department answering my email pointing out that the letter from them, which I think many of us...

Right, here we go. . Just had an email from my Rheumatologist department answeri...

GinnyE

•3 years ago

6 Replies

Baricitinib

Hi I’ve just been prescribed Babricitinib after being on Methotrexate for a long time. Can anyone let me know if they have taken this drug and your experience...

Hi I’ve just been prescribed Babricitinib after being on Methotrexate for a long...

patty57

•3 years ago

16 Replies

consultants - again

Hi all I have just had a fairly constructive appointment with a new GP at my surgery who read the most recent letter from rheumatology and said it was...

Hi all I have just had a fairly constructive appointment with a new GP at my sur...

Brychni

•3 years ago

14 Replies

20 Pet Portraits in 40 days (what I did for my #DoThe20Challenge)

Hi all. Hopefully by now many of you are aware of the #DoThe20Challenge that we are currently running here at NRAS, in honour of our charity being 20 years old...

Hi all. Hopefully by now many of you are aware of the #DoThe20Challenge that we ...

Victoria-NRAS

Moderator•3 years ago

26 Replies

Who's in charge?

My last Rheumatologist often made some encouraging treatment decisions for me and booked 3 month future appointments all to no avail due to cancellation by...

My last Rheumatologist often made some encouraging treatment decisions for me an...

clumbs

•3 years ago

7 Replies

Posts - NRAS | HealthUnlocked

NRAS

All posts for September 2021

3rd Covid Vaccine!! 🥳

Vaccine & Muddled Brain 😵‍💫

CAN'T WAIT TO ACTUALLY SEE THE NHS RHEUMATOLOGY CLINIC!

Hi, I had my first round of rituximab, 5 weeks ago. I’ve been told I can have the covid booster and flu jab together. Is this advisable?

Sorry folks big frustrated rant coming up !

Baricitinib a fail, going to try Rinvoq

Off Topic The name is Bond, James Bond

Cramp!

3rd primary vaccine..

Hi there I'm new to this my name is Claire is anyone waiting for hip replacement surgery??

DWP : 1:1 PHONE CALL - UNPLEASANT EXPERIENCE

I'm new here and I'm losing hair due to Leflunomide

Stop hydroxychloroquine or not ??

3rd Covid vaccination and timing of Cimzia injection

Shall I mention to gp again

3rd Covid jabs

Bone Scan

Lloyds Pharm. Clinical Homecare - medication delivery issues and contact?

I am getting a persistent cough

Abatacept supply issues.

Third Primary Jab

Any advice on cars?

Facebook Live tomorrow at 7pm on the OCTAVE study results

Third dose - rather than booster?

In Scotland and getting my 3rd Covid Vaccine

Third Primary Vaccine

Baricitinib

consultants - again

20 Pet Portraits in 40 days (what I did for my #DoThe20Challenge)

Who's in charge?

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