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NRAS

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All posts for April 2019

The mysterious ra

yesterday I got out of bed,and realised I didn’t have any aches or burning pain and had actually apart for one visit at toilet slept through the night.had a...yesterday I got out of bed,and realised I didn’t have any aches or burning pain ...

RA and Feet

I had no idea that R A could effect your feet. My feet hurt now (this is new) and actually on top as well of the feet. Anyone else have this? or am I just...I had no idea that R A could effect your feet. My feet hurt now (this is new) an...

Hair loss.... have no fear!!

I was getting sick and tired at my hair thinning and shedding so much, that someone recommended mane and tail shampoo and conditioner! Yes it was originally a...I was getting sick and tired at my hair thinning and shedding so much, that some...

Enbrel delivery - half of usual amount

Well, half a loaf is better than no bread, but I was a bit taken aback today when Healthcare at Home (HaH) only delivered 4 injector pens, rather than the...Well, half a loaf is better than no bread, but I was a bit taken aback today whe...

Can I stop taking Hydroxychloroquine tablets and take tumeric instead?

I have been taking Hydroxychloroquine tablets 200mg a day for several years now and it controls my Inflammatory arthritis. I want to stop taking these tablets...I have been taking Hydroxychloroquine tablets 200mg a day for several years now ...

Gritty eyes

Help!!! Is there anyone who can recommend anything for my extremely sore eyes. Had referral to see ophthalmologist on 9th May but been like this since...Help!!! Is there anyone who can recommend anything for my extremely sore eyes. H...

PIP outcome...raging!

I applied for PIP back in November and had a home visit on 8th March, been chasing outcome and found out I had been turned down so asked for a copy of the...I applied for PIP back in November and had a home visit on 8th March, been chasi...

Skew Foot

Has anyone been diagnosed with Skew Foot & if so, have you had any surgeries? I had an arch reconstruction as I have no arches plus a fusion which did not work...Has anyone been diagnosed with Skew Foot & if so, have you had any surgeries? I ...

RA and pregnancy supplements

Hello everyone, I’m very new to this forum and RA in general. I was only diagnosed in February with problems in my hands, feet and knees. My rheumatologist...Hello everyone, I’m very new to this forum and RA in general. I was only diagno...

Details of NRAS Webinar taking place on 6th June

Dear All Hopefully many of you have signed up to our forthcoming webinar on 14th May - 'Foot Health and RA', if not there is still time to register using the...Dear All Hopefully many of you have signed up to our forthcoming webinar on 14th...

Kim-NRASNRAS•

Effectiveness of Rituximab

Hi all! It's been nearly 5 weeks since my first round of Rituximab infusions. I've been feeling ok joint wise, but having terrible fatigue. Doing all I can to...Hi all! It's been nearly 5 weeks since my first round of Rituximab infusions. I'...

Savannahseger•

I am a bit nervous about rheumy appointment...

I have an appointment with the rheumatologist in the morning. My bloods came back normal but I still get darts of pain in my arms and legs, shoulders get a...I have an appointment with the rheumatologist in the morning. My bloods came bac...

Exciting8623•

This made me laugh...

This is so true! This is so true!

Be strong together

\"TAKE ONE DAY AT A TIME\" Every step counts happy 18th birthday darling hope you enjoyed your special day I hope and pray for a speedy recovery for your...\"TAKE ONE DAY AT A TIME\" Every step counts happy 18th birthday darling hope yo...

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Rude man

Hi all hope you are keeping well. Thought I would share my recent encounter. Just come back off a cruise which was lovely. Our room was on the 12th floor so...Hi all hope you are keeping well. Thought I would share my recent encounter. Jus...

3rd week on MTX and I feel pretty bad

Ok. Good evening all! This is my third week on MTX. I take it Saturdays before bed. The first two were not so bad and were pretty tolerable. Today I woke in a...Ok. Good evening all! This is my third week on MTX. I take it Saturdays before ...

Great news

I’ve been absent for a while but I have amazing news!!! My brother is up and better then ever. He spent a month in a special brain rehabilitation hospital and...I’ve been absent for a while but I have amazing news!!! My brother is up and bet...

Here we go again...mtx

Morning peeps🙂 Hope this finds you well? Well... well as can be 😉 My last post (around 3 months ago) was about me stopping mtx- I did stop. I was offered...Morning peeps🙂 Hope this finds you well? Well... well as can be 😉 My last post...

Spondyloarthritis With Pmr ???

Hi I am bring Treated for Pmr for about 2 years started at age 54 about two months ago I could not lay in bed my bAck was in pain and stiff My rummy told...Hi I am bring Treated for Pmr for about 2 years started at age 54 about two mon...

Mjhollywood1•

Fatigue worsened after meals

I am typically pretty fatigued generally but oftentimes after I eat I get so tired I can barely stay awake. Anyone else suffer from this? Any correlation to...I am typically pretty fatigued generally but oftentimes after I eat I get so tir...

Ra and anxiety

I find having ra has increased my anxiety, nobody around me seems to really understand how painful it is , I find it frustrating that some family members are...I find having ra has increased my anxiety, nobody around me seems to really und...

Riddlemethis•

Changing Rheumatology Clinics ?

Hi everyone, first of all I would like to say a big thank you to everyone who replied to my post about supportive footwear, particularly in the summer months....Hi everyone, first of all I would like to say a big thank you to everyone who re...

petalnumber2•

Pip assessment

I have just completed a survey on claiming pip and the assessment process. After the recent announcement from Amber Rudd about pensioners not having to...I have just completed a survey on claiming pip and the assessment process. Afte...

Rituximab

Hi all, finally got my appointment brought forward and got my first infusion of Rituximab on Thursday. Unfortunately, after an hour and a half I had a...Hi all, finally got my appointment brought forward and got my first infusion of ...

RA

Hello I’m new to this ! Diagnosed with RA, methotrexate didn’t work , currently taking sulphasalazine and not feeling great , terribly fatigued, low mood ,...Hello I’m new to this ! Diagnosed with RA, methotrexate didn’t work , currently ...

Riddlemethis•

Need info on salazopyrin tablets

Hi all. Just wanted to know more about the drug salazopyrin and if anyone had side effects with this drug. So far I havent had any side effects but my biggest...Hi all. Just wanted to know more about the drug salazopyrin and if anyone had s...

Mobility scooter blues

Hello everyone, thought I'd catch up and share a problem with you. It's 4 weeks since I took the plunge and moved into a council sheltered housing flat, in a...Hello everyone, thought I'd catch up and share a problem with you. It's 4 weeks ...

scotslass333•

Rituximab

Hi, I am soon to be started on Rituximab and wondered if anyone can share their experiences of the infusion process and how they get on with this drug. Many...Hi, I am soon to be started on Rituximab and wondered if anyone can share their ...

NRAS Group Meeting Next Week

Dear All Please find details of the one NRAS Group meeting taking place next week. For more information please visit our website www.nras.org.uk/groups....Dear All Please find details of the one NRAS Group meeting taking place next wee...

Kim-NRASNRAS•

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Not sure if it is part of arthritis because i only get it once a month

Hi has anyone had this on they legs or any other part of your body.. Im trying to understand it better an i am very confused... I have been getting this only...Hi has anyone had this on they legs or any other part of your body.. Im trying t...

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