Hair Loss: Dear Womble 5 I have GCA and I had hair... - NRAS

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Hair Loss

Groda profile image
6 Replies

Dear Womble 5

I have GCA and I had hair loss while on Fosomax (alendronade). It is a side effect of this drug and is so indicated in the pamphlet which comes with the drug. My rheumy did not know this until I showed the pamphlet to him.

He suggested we stop Fosomax for 3 months to see if the hair grows back. It did start to grow back.

I have also been taking taking liquid collagen with biotin and now 9 months later my hair is actually thicker than it was before. I order it on line.

Also, I am taking the liquid form of calcium with Mag. It is so much easier than dealing with the large calcium pills. I also order on line.

I found losing hair very hard on my self image and it depressed me, even more than the moon face.

Groda

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Groda
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6 Replies
springcross profile image
springcross

Hi Groda. Maybe you should try the PMR GCA forum for answers, you've posted in the rheumatoid arthritis forum. If you type GCA in the search box at the top of the page and click on Communities, you should find it. All the best. 🙂

Groda profile image
Groda in reply tospringcross

thank you Springcross. I see my mistake. Not used to posting. I did reply directly to Womble57 after I read your advice.

Groda

springcross profile image
springcross in reply tospringcross

🤭 😄 Sorry, it was my mistake - it hadn't clicked that it was a reply to someone on this forum!!!! 🤯

Womble57 profile image
Womble57

Hello Groda

Thank you for your advice. Someone else also suggested biotin as a supplement so I will ask the rheum dept.

Fluffontoast profile image
Fluffontoast

Hiya Groda, what is the liquid collagen with Biotin product name? I could do with some hair thickening because my RA meds have caused some loss. Thanks

Groda profile image
Groda in reply toFluffontoast

Hi Fluffontoast

I am currently in Florida and have ordered my collagen/biotin on line from Amazon.

It is by Zena Nutrition and comes in a magenta colored bottle (20.3 oz). If you go on Amazon and search collagen/biotin a few come up. I picked this one because it was a fast delivery date. I used to have 3 visible cowl licks--now my hair is thicker and they are no longer noticeable. My husband has started taking it too in the hopes of thickening his hair.

Hope it helps.

Groda

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