Posts - My MSAA Community | HealthUnlocked

My MSAA Community

9,362 members•21,166 posts

All posts for September 2024

Post 754 I admit it. I MISS YOU,

It has beebn far too long and I have missed YOU all, well honestly not really the very few who complained at me but everybody else. This is a big disease and...

It has beebn far too long and I have missed YOU all, well honestly not really th...

•1 month ago

How to handle a disagreement

I shouldn't have sent this to my husband.😂

I shouldn't have sent this to my husband.😂

•1 month ago

Stairs to keep solicitors away . . .

So a Facebook group popped up on my feed called "Death Stairs". No, I am not making this up! It's a public group where people post photos of stairs that are...

So a Facebook group popped up on my feed called "Death Stairs". No, I am not ma...

•1 month ago

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Just stopping by thought I would say Hi to all.

Hope everyone is having the best day they can. I am having some decent days BUT this cold snap we're having in northern Ky is for the pits. I liked the days in...

Hope everyone is having the best day they can. I am having some decent days BUT ...

•1 month ago

The Days When You Just Say Why?

I don’t know if I am the only one who likes to write at night; maybe it’s the stillness, tranquility and peace that it brings. Right now, I’m balancing two...

I don’t know if I am the only one who likes to write at night; maybe it’s the st...

•1 month ago

Podcast

Just wanted to inform you of new research on myelin (pipe307) and many great topics for FUNCTIONAL LIVING with Gretchen Hawley who is a Physical Therapist and...

Just wanted to inform you of new research on myelin (pipe307) and many great to...

•1 month ago

For Anyone Interested, I Have Completed a Summary of My Year One, Treatment Week One on Mavenclad

If anyone is curious about what it's like taking Mavenclad, I've written a summary of my experience here:...

If anyone is curious about what it's like taking Mavenclad, I've written a summa...

•1 month ago

Too slow

I noticed that I'm moving too slow. Is my MS progression getting worse? Someone told me I'm walking like I'm 70 to 80 years old. I can't explain what I'm going...

I noticed that I'm moving too slow. Is my MS progression getting worse? Someone ...

•1 month ago

Important New Medication Research Results - BTK Inhibitors Could Possibly Be a Game Changer for Non-relapsing SPMS, PPMS

The research that was made public recently was disappointing news for those with RRMS, but potentially very good news for those with non-relapsing SPMS and...

The research that was made public recently was disappointing news for those with...

•1 month ago

Bob when I take too long to fold the towels 😂

Bob in the towels!

Bob in the towels!

•1 month ago

Watch Now - Successful Travel with MS

MSAA's newest webinar is now available to watch on our video page! Traveling with multiple sclerosis can present some unique challenges. Watch this discussion...

MSAA's newest webinar is now available to watch on our video page! Traveling wi...

Partner•1 month ago

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Pilates for MS

Hi all - can anyone recommend an online pilates class or instructions for people with MS? I am in the US if that makes a difference.

Hi all - can anyone recommend an online pilates class or instructions for people...

•1 month ago

COVID booster

I got the updated COVID booster last Wednesday and had several days of side effects. But I am here to say that I’m through the woods and feel tip top now....

I got the updated COVID booster last Wednesday and had several days of side effe...

•1 month ago

Recently diagnosed

I was diagnosed with MS at the end of August. I care for my uncle who also has MS. He is in rough shape because he did not take care of himself over the years,...

I was diagnosed with MS at the end of August. I care for my uncle who also has M...

•1 month ago

Looking for Interviews!

Hi everyone! I am looking for individuals living with MS that would be willing to share their story! I am a senior at Purdue University in Product Design. I am...

Hi everyone! I am looking for individuals living with MS that would be willing t...

•2 months ago

Excuse my beginnerness 🙂

Hello to everyone, this is my first post. I have been recently diagnosed with RRMS, after 4 years of ‘insufficient evidence’ phase. Turns out I have had MS...

Hello to everyone, this is my first post. I have been recently diagnosed with RR...

•2 months ago

thanks for helping preserve my sanity you guys💛

you know those posts where people say that their partner is their rock? well i don’t have one like that🙁. most of the time i can handle it but not always and...

you know those posts where people say that their partner is their rock? well i d...

•2 months ago

Starting Mavenclad Today

A quick disclaimer: I'm sure everyone realizes that I may have made mistakes, and that recommendations for taking a particular treatment probably evolve over...

A quick disclaimer: I'm sure everyone realizes that I may have made mistakes, an...

•2 months ago

nocturia

does anyone have problems with this. i self cath and i am up 5 times at night to do so. i am looking for alternatives to the self cath.

does anyone have problems with this. i self cath and i am up 5 times at night to...

•2 months ago

Indwelling catheter

Has anyone used in indwelling catheter for an overactive bladder

Has anyone used in indwelling catheter for an overactive bladder

•2 months ago

catheter for overactive bladder

does anyone use an indwelling catheter

does anyone use an indwelling catheter

•2 months ago

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