Too slow : I noticed that I'm moving too... - My MSAA Community

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Too slow

Axel_4233 profile image
19 Replies

I noticed that I'm moving too slow. Is my MS progression getting worse? Someone told me I'm walking like I'm 70 to 80 years old. I can't explain what I'm going through,but it's really annoying. Please explain to me! Thanks! 😤

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Axel_4233 profile image
Axel_4233
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19 Replies
NorasMom profile image
NorasMom

It could be a dozen different things. Are you having a relapse? Have you been unusually active recently? Not getting enough rest? Too much time in the heat? Is it time to get a cane or rollator if you don't already use them?

Axel_4233 profile image
Axel_4233 in reply toNorasMom

NorasMom Thank you for your support. I have to talk to my doctor about it. Like I said, it might be the heat. Thanks for caring! 🤗☺️🫶🏾

CatsandCars profile image
CatsandCars

I'm sorry Axel_4233. I have no idea. Maybe you could ask them to elaborate, or go see your neuro. They should have some idea of what they're seeing based on experience. I have heard that depression can do that, but I'm sure other things can, too. I really hope that it goes away, like so many weird symptoms that crop up and leave, thank God, or that your doctor can help you! I wish you the best. ❤️

Axel_4233 profile image
Axel_4233 in reply toCatsandCars

Catsandcars ikr, it's weird having these symptoms,but Im getting used to it. The last time I had a MRI,it showed I have lesions on on left or right? IDK 🤔 I feel a lot of things, but hopefully it'll go away. Thanks for your input. Have a blessed day! 🫶🏾🙏🏾🥰❤️

CampTiff profile image
CampTiff

I have decided that I don’t move too slowly, the rest of the world goes way too fast! Being slower allows me to appreciate more and be safer! Perhaps the same is true for you?

Peruzzot profile image
Peruzzot

As CatsandCars said, ask them to elaborate on what they mean about your walking. Are you just slower than you used to be? Are you shuffling your feet? Are you hunched over as you walk? Something else?

I walk a lot slower than I used to...toddlers pass me walking. But that allows me to notice things that I wouldn't have walking faster. Here's an example of what I noticed on a hike in the woods on the side of the trail. Walking at my before MS speed, I never would have seen it.

Mushroom with smiley face on it.
JVWill profile image
JVWill

Hi Axel_4233, Somedays I'm a little slower than others. Only your Dr. can tell with MRI but tell your friend if you can't say anything nice don't say anything at all! I need to be uplifted not put down.

Axel_4233 profile image
Axel_4233 in reply toJVWill

@JVWill I will talk to my neurologist about it. I think it's the heat,but sometimes it's not. As soon as I get up out of the chair,my legs stiffins up and I can barely walk. 😒 I'll talk to my doctor about it. Thanks

StacyHayward profile image
StacyHayward in reply toAxel_4233

Yes, that happens to me a lot. My neuro put me on ampyra. It has helped me a ton! I take one in the morning and one at 3 pm.

I still have some problems but I’m doing much better.

Tazmanian profile image
Tazmanian in reply toStacyHayward

Should the doses be 12 hours apart?

StacyHayward profile image
StacyHayward in reply toTazmanian

Not sure. I’m following my neuro’s instructions. I started taking the second dose at 5, but needed it earlier.

Robsmom profile image
Robsmom

I walk a lot slower than I used to, and it is so frustrating. But, I am almost 70 so I think it a little bit of MS and age. I agree with what was said before, see if it's relapse, are you overheated? There are many reasons so don't be afraid to ask your Neurologist.

Elizt3 profile image
Elizt3

are you walking slowly because of balance problems or pain or not being able to feel the bottom of your feet? I think that’s why I might walk slowly.

Axel_4233 profile image
Axel_4233 in reply toElizt3

Yes! I had lower back surgery in 2019. After that I noticed my balancing was getting worse. Now I hold on to things like the wall,rail,or even the bathroom sink. I really need to talk to my neurologist. Thanks!

NorasMom profile image
NorasMom

I don't know if this will work for others, but I've switched to soft-soled moccasins for most of my walking. I discovered that thick soles on hiking boots or even jogging shoes gave me a lot of foot drop and drag. The moccasins keep me closer to the ground and allow me to actually feel where I'm putting my feet. I'm going to walk slow now no matter what, but it's a lot easier with the moccasins. The drawbacks are that they're not waterproof or suitable for snow.

agate profile image
agate

Hi Axel_4233,

Isn't it a bit rude of that person to be criticizing the way you walk? MS slows people down. It's well known for that, I think. I wouldn't worry too much about others' comments. Just keep on walking in whatever way works for you.

For years I lived in an apartment facing a street where I could see pedestrians going by all the time. One woman I saw regularly was always walking backwards up the hill I lived on, pushing a shopping cart. I never would have asked her why she walked that way. I did wonder but hey! It worked for her.

Axel_4233 profile image
Axel_4233 in reply toagate

Good Morning agate! I don't pay her no mind . I'm living my best life so it's okay! 🫶🏾☺️💞❤️🙏🏾 I walk but I loose my balance at times. I hold on to my Rollator Walker,cane,or whatever I can get my hands on. Thank you for your advice! I'ma keep moving forward, thanks! 🥰🙌🏾💜👍🏾👏🏾

Cutefreckles72 profile image
Cutefreckles72

Hi Axel_4233, I was diagnosed with PPMS in 2019. I started off walking slow and losing my balance which led me to use a cane, rollator, walker and now a power wheelchair. The type of MS I have doesn't cause a person to have relapses. It is a daily and nightly pain, and it can cause a person to become disabled. I suggest talking to your neuro.

Axel_4233 profile image
Axel_4233 in reply toCutefreckles72

Thanks I'll talk to my neurologist.

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