nocturia: does anyone have problems with... - My MSAA Community

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nocturia

felafelbowl profile image
4 Replies

does anyone have problems with this. i self cath and i am up 5 times at night to do so. i am looking for alternatives to the self cath.

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felafelbowl profile image
felafelbowl
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CatsandCars profile image
CatsandCars

I don't know anything about self-cathing. But there is a drug, I think it's called desmopressin, that keeps you from needing to urinate at all at night; I don't know if that would be suitable for you or not. There are other meds that can decrease the need to go, like oxybutynin, trospium, myrbetric, and possibly more. I hope your neuro can help you, otherwise perhaps a urologist can help you better. Good luck. I hope you can find an alternative!

Brindisi1 profile image
Brindisi1

I was going about 20 x a day including 4-5 x a night. my dr did a urodynamics test and determined that my bladder was inactive and I had spill over issues. Couldn't take meds (for overactive bladder only the more expensive ones as they affect my eyes & didnt really work). As for catherer (didnt want) next choice was a sacral neuro stimulator where they insert leads close to S3 nerve. Tried to get more of an explanation of how it worked, but dr says a signal sent to your brain . There are 2 surgeries. one they implant the wire (doing tomorrow) and tape the small battery to your back. Have to keep a bladder diary and if 50% improvement insurance will approve implanting battery that lasts 20 yrs, Since I am 77 no problem with that. Medtronics and Axionics offer systems.

Will let all know if it works. she said the inactive bladder can injure the kidneys due to back up pressure. Other Drs. treated only symptoms without the diagnosis. Makes a difference .

Ironic part was that I was going so much, thankful that I didnt need a catherer. Anyway just a major imposition on your life and I was getting ready to invest in Always discreet.

Prayers for your journeys

Good for overactive and underactive bladder and bowels .

sashaming1 profile image
sashaming1

I pee regularly during the night and self-cath 3 or 4 times during the day. I cath because my bladder does not fully empty which can lead to an UTI.

ahrogers profile image
ahrogers

I recommend seeing a neuro-urologist rather than a regular urologist. I saw one a while back but my symptoms weren't bad enough to need treatment yet. She did order some tests to make sure my kidneys weren't being affected that I repeated a year later just to be sure, and thankfully they weren't. If my symptoms get worse I will go back to her.

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