Posts - My MSAA Community | HealthUnlocked

My MSAA Community

9,351 members • 21,119 posts

All posts for June 2024

Colonoscopy

I am worried about anesthesia causing exacerbation. The last time I was put under I was out of it for 2 months (according to my husband). I had ill effects...

I am worried about anesthesia causing exacerbation. The last time I was put und...

Chief2024

•4 months ago

14 Replies

I saw my Neuro

Well not as bad as I thought it would be. I have to get blood work before my next infusion to see what my B cell count is, if it is too low I have to wait a...

Well not as bad as I thought it would be. I have to get blood work before my ne...

kycmary

•4 months ago

6 Replies

Now you know

what to blame your good mood on.😀

falalalala

•4 months ago

29 Replies

Want to take advantage of all our features? Just log in!

Doing much better now.

My flare continues to improve. Day 3 of walking w/o a cane now. Still having to self cath. Not crazy abt it, but it's kind of nice choosing when to go and not...

My flare continues to improve. Day 3 of walking w/o a cane now. Still having to ...

Equitube

•4 months ago

9 Replies

I made another MS video….

Hi everybody! I made a review video of my favorite MS related creators on YouTube. Enjoy! MULTIPLE SCLEROSIS ALL STARS on YT that you can trust!...

Hi everybody! I made a review video of my favorite MS related creators on YouTu...

irhunter

•4 months ago

9 Replies

Record 🥵 Heat Coming Our Philly Almost 2 Weeks!

Yup, 2 weeks of high 90’s with humidity feeling like near 100 a couple of days; lifetime Movies and a good book for me! I will do church, since we get out...

Yup, 2 weeks of high 90’s with humidity feeling like near 100 a couple of days;...

stepsforNeeC

•4 months ago

13 Replies

What is your day like?

So I’m curious. How much does the severity of your MS symptoms vary throughout the day? I can start the day able to shower and get dressed etc. on my own...

So I’m curious. How much does the severity of your MS symptoms vary throughout t...

Corran731

•4 months ago

38 Replies

Not crying today. lol

So, I'm sitting here minding my own business and I get a text from an unknown number. "Will you be home? I want to drop off some blueberries." Now, I...

So, I'm sitting here minding my own business and I get a text from an unknown nu...

NorasMom

•4 months ago

22 Replies

MS flare

I am in the midst of a major flare that started abt 10 days ago. It began with increasing numbness, affecting my hands even. It also majorly affected my...

I am in the midst of a major flare that started abt 10 days ago. It began with i...

Equitube

•4 months ago

23 Replies

Been a while!

Pickles says hello! He's about 13 years old and a Beagle/Corgi/? mix! I've been a little on the melancholy side of late, and that tends to make me not reach...

Pickles says hello! He's about 13 years old and a Beagle/Corgi/? mix! I've bee...

MSFlea

•4 months ago

13 Replies

Hello, Looking for a MS support group.

PugLuva

•4 months ago

19 Replies

Keep Moving!

Its been a while. I hope you all are well! Busy busy preparing for another cross country family relocation. My wife works for a tech company. Encouragement for...

Its been a while. I hope you all are well! Busy busy preparing for another cross...

drumbugg

•4 months ago

13 Replies

Can I cry?

So, this is all pretty petty compared with what many are dealing with, but it's been one of those days. Yesterday was wonderful but incredibly active. I was...

So, this is all pretty petty compared with what many are dealing with, but it's ...

NorasMom

•4 months ago

24 Replies

checked off 1 of 2 goals for this summer

Just got back from a week in London. I worried about this trip for months wondering if I could hack it. The week was very enjoyable, got to visit with my...

Just got back from a week in London. I worried about this trip for months wonde...

Elizt3

•4 months ago

24 Replies

Upcoming Webinar - Enjoy the Beat: Music, Brain Health, and MS

Music plays an important role in our lives. Research also suggests that music can benefit our physical and mental health in numerous ways. Join MSAA’s...

Music plays an important role in our lives. Research also suggests that music ca...

DanaMSAA

Partner•4 months ago

1 Reply

Good Morning!!!

Hi everyone just checking in with the gang haven’t posted for a while. Been commenting on posts. Had a heck of a hail storm ⛈️ last night. Started getting warm...

Hi everyone just checking in with the gang haven’t posted for a while. Been comm...

Kenu

•4 months ago

24 Replies

has anyone tried knix underwear?

weird question- sorry! I was wondering if they are worth trying? I had two days of embarrassing accidents. Trying to stop that thank you in advance for your...

weird question- sorry! I was wondering if they are worth trying? I had two day...

Xvettech

•4 months ago

27 Replies

Help please

Hi all , if you have a high jcv is kesimpta ok to take? Anyone on kesimpta, would love dome feedback 🙂 🧡 any symptoms? I'm terrified of getting heart pslps...

Hi all , if you have a high jcv is kesimpta ok to take? Anyone on kesimpta, wou...

anetap4545

•4 months ago

16 Replies

do people really leave because you’re sick?

first i will say that i am grateful to be able to come here and vent❤️. i am lucky because i know it didn’t have to be as good as it is. i’m a little sad today...

first i will say that i am grateful to be able to come here and vent❤️. i am luc...

HouseElfWon

•4 months ago

25 Replies

You are a MSer women now

Ladies, not to embarrass anyone, but remember when you had your first menses and was declared a women? Last week I had a urodynamic test after spending years...

Ladies, not to embarrass anyone, but remember when you had your first menses an...

Brindisi1

•4 months ago

7 Replies

MSAA Complimentary Walker

Hi All, Can you please remind me how to access the wonderful items MSAA makes available to folks with MS? I think it's time for me to get the little walker...

Hi All, Can you please remind me how to access the wonderful items MSAA makes...

donna0329

•4 months ago

7 Replies

Investigational MS Med Nearly Eliminates Disease Activity on MRI

NASHVILLE, TENNESSEE — A second-generation anti-CD40L monoclonal antibody suppresses multiple sclerosis (MS) disease activity on MRI to an uncommonly high...

NASHVILLE, TENNESSEE — A second-generation anti-CD40L monoclonal antibody suppre...

BettysMom

•4 months ago

6 Replies

Isolation is starting to get to me.

at first i was telling myself just more time for movies, games etc. but I got in this phase thinking about old relationships. That got me on a whole spiral....

at first i was telling myself just more time for movies, games etc. but I got in...

PSNuser

•4 months ago

21 Replies

Federal Aviation Administration Reauthorized with Accessible Air Travel Provisions

I just received an email abou this but the article is from May 17, 2024: President Biden has signed a five-year reauthorization of the Federal Aviation...

I just received an email abou this but the article is from May 17, 2024: Presid...

bxrmom

•4 months ago

8 Replies

buspar

my PCP took me off Celexa and put me on Budpar. I have rashes, fatigue, and nausea. Anyone else tried buspar?

my PCP took me off Celexa and put me on Budpar. I have rashes, fatigue, and naus...

agapepilgrim

•4 months ago

6 Replies

Sometimes, “this too shall pass”!

I’ve been having good days, then bad days and noticed “brain stabs” and almost feeling like a pin inside my ear? Migraines and extremely tired! Going to the...

I’ve been having good days, then bad days and noticed “brain stabs” and almost f...

stepsforNeeC

•4 months ago

16 Replies

thank you MS Society!

thank you MS Spciety for all my cooling aids! With super hot summer coming I feel like these aids are going to help me enjoy more days at the zoo (my favorite...

thank you MS Spciety for all my cooling aids! With super hot summer coming I fe...

Xvettech

•4 months ago

17 Replies

How do you get through?

I want to know

superman38

•4 months ago

23 Replies

getting reading for HIP replacement #2

After the right in 2022, now it's time for the left. I'm not in horrible pain but I want to get it done so that I regain more ability to be active and workout,...

After the right in 2022, now it's time for the left. I'm not in horrible pain bu...

anaishunter

•4 months ago

13 Replies

Posts - My MSAA Community | HealthUnlocked

My MSAA Community

All posts for June 2024

Colonoscopy

I saw my Neuro

Now you know

Doing much better now.

I made another MS video….

Record 🥵 Heat Coming Our Philly Almost 2 Weeks!

What is your day like?

Not crying today. lol

MS flare

Been a while!

Hello, Looking for a MS support group.

Keep Moving!

Can I cry?

checked off 1 of 2 goals for this summer

Upcoming Webinar - Enjoy the Beat: Music, Brain Health, and MS

Good Morning!!!

has anyone tried knix underwear?

Help please

do people really leave because you’re sick?

You are a MSer women now

MSAA Complimentary Walker

Investigational MS Med Nearly Eliminates Disease Activity on MRI

Isolation is starting to get to me.

Federal Aviation Administration Reauthorized with Accessible Air Travel Provisions

buspar

Sometimes, “this too shall pass”!

thank you MS Society!

How do you get through?

getting reading for HIP replacement #2

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