I am in the midst of a major flare that started abt 10 days ago. It began with increasing numbness, affecting my hands even. It also majorly affected my ability to walk. Walking across town last Thursday, I was continually stumbling & fell 3.or 4 times and tore up my head and legs pretty well to the point police were called. I had to explain that I wasn't drunk.
I've been learning to walk again. I'm getting better but still need a cane.
My stamina was severely affected. Then Sun night my bladder shut down and I've been having to cath since.
I've never had a flare like this. Anyone else?
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Thank you. I declined the IV Prendisone (sp) that they would have offered due to horrible experiences and side effects of the last time I had it.I am learning how to walk again pretty good though.
I believe that may have been what kicked it off. I had some strong expectations of a romantic relationship to finally come to fruition. When it didn't happen is right when this episode kicked off.
Oh my goodness, that was a nasty flare! I’m glad you’re starting to feel better now. Sometimes if you haven’t had a flare in a long time, the next time you have one could be a monster! The temperature does me in this time of year seeing my Neuro for feeling like a flare too! Praying for continued healing my friend 🙏. NeeC
So sorry you're dealing with this. I have had a few flares where my legs went out almost completely, and one where my legs and right arm went out. Fortunately, it's been years since I went through that. At the time, my neuro put me on a round of steroids to speed up my recovery time. I get what you're saying about turning down the steroids. They are horrible. I don't think I would take them again unless things got pretty desperate. I am glad to hear you are slowly recovering and getting your leg functioning back. A bad flare like the one you're having can take a while, so be patient, do not try to overdo it. You'll get there. 🙂
I just finished with a flare-up that took over a month to clear up. I went through a lot of pain in my face, jaw, gums but only on the right side. The doctor finally concluded it was trigeminal pain related to nerves. I got through it and so will you. I would say your situation was much worse. The good news is that these flare-ups go away. They seem to leave residual effects though, but they are tolerable. Know that God loves you and won’t give you more than you can handle. I believe that.
Prayers for your recovery. Too bad no alternatives to prednisone. Trying not to take also because they exacerbate osteoporosis. Sounds like a hard time
Hopes and prayers the flare stops immediately. I haven't had a bad flare in a long time now. That involved mostly just vertigo and memory problems. Still have short term memory problems. It's frustrating and many times scary.
So very sorry you are going through this Equitube . I hope that it passes soon for you. I'm sorry that steroids would only make things worse for you. Keep us updated on how you are doing.
Heat can affect my MS symptoms. I have to cath too to prevent a UTI because my bladder does not fully empty. But, I would not call my symptoms a flare.
Sorry to hear this is happening to you. I can relate to the bladder shutting down. This happened to me last year. I went on a trip of a lifetime, first time ever out of the country. I was in Paris for 10 days. Everyday filled with seeing new things and was having the time of my life. Going all over the city using the Metro and pushing myself to go go go. I started getting really tired and my body started shutting down. Then took a train to Florence. I was exhausted. The next morning I got up and couldn't pee. I tried and tried all day. My bladder was so full so I went to the hospital. They put a catheter in. I asked for a syringe to be able to deflate the air take the catheter out myself. I did that that night. Big mistake. I still couldn't go. The next day I went back over the hospital and had the catheter put in. Flew home early from my trip. That was an experience sitting on a catheter all those hours and trying to get through security carrying that bag hidden in a canvas bag tied to my belt loop. I had to self cath for about a week after I got home until I rested and my bladder started working again. I was so happy when I could start peeing again. So continue to rest and take care of yourself and prayers that you also begin to be able to go again on your own.
Wait. You walked across town? Surely not alone. How far? I live in the boondocks, but I won't walk outside in this heat for any amount of money. Can you get someone to drive you next time? I am sorry about your flare. Please be good to yourself! You are so worth it!
I am sorry to read about your flare it sounds awful! I am wondering if you have tried taking all different types of corticosteroids and not just prendisone?
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Rash and MS
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