Posts - My MSAA Community | HealthUnlocked

My MSAA Community

9,019 members • 20,711 posts

All posts for March 2024

High winds

This was my Tub o' Lard last month. This afternoon, a gust of wind nearly blew him off the top of our back porch steps! I don't think I'm going outside...

This was my Tub o' Lard last month. This afternoon, a gust of wind nearly blew ...

•2 months ago

Osteoporosis

Well more bad news came to me.I am 53 and I have the bones of an 80 year old. I broke my shoulder last december and I am still recovering from that. Doctor...

Well more bad news came to me.I am 53 and I have the bones of an 80 year old. ...

•2 months ago

Talk soup

I have gotten to the point where I am so f' ing down. Usually I can just use my other program (AA) to get out of my funk, but I'm stuck. Maybe it's the13 years...

I have gotten to the point where I am so f' ing down. Usually I can just use my ...

•2 months ago

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As Requested....How to Keep a Healthy Level of Insanity

I'm reposting this as requested... 1. At lunch time, sit in your parked car with sunglasses on and point a hair dryer at passing cars. See if they slow down....

I'm reposting this as requested... 1. At lunch time, sit in your parked car wit...

•2 months ago

HSCT early in MS

This is an interesting story about two women who went to Mexico and got Hematopoietic Stem Cell Transplantation early in their disease. One, who was...

This is an interesting story about two women who went to Mexico and got Hematopo...

•2 months ago

MS, MRIs, just life...

Occasionally i eat my own words...like my last post. Just one of those seasons that now choices i feel like a slug bug under a rug. Covid gave its wear and...

Occasionally i eat my own words...like my last post. Just one of those seasons t...

•2 months ago

Chronic cough?

HelloI have a simple but complex question. I have had MS for 20 years. I am on ocrevus,which I like but the last 2 infusions i get a nasty cough. I feel...

HelloI have a simple but complex question. I have had MS for 20 years. I am o...

•2 months ago

Yup...

This is my life right now, in hyper drive. To many Dr appts that stress me out... Breathe In, punch out! 🤣 How is everyone doing? 🤗💕🌠

This is my life right now, in hyper drive. To many Dr appts that stress me out...

CommunityAmbassador•2 months ago

Anyone at level 8 on the EDSS scale?

I am curious if there are any folks on this forum at level 8 or 8.5 on the EDSS scale.

I am curious if there are any folks on this forum at level 8 or 8.5 on the EDSS ...

•2 months ago

Sound advice for you

Please post a photo of your new bird😅

Please post a photo of your new bird😅

•2 months ago

JC or John Cunningham Virus

I have a question in which I’m having a hard time getting an answer to. This is my go to place looking for information that is typically two sided or even...

I have a question in which I’m having a hard time getting an answer to. This is...

•2 months ago

Great News! Any Tips?

I'm so excited and happy to say, I got into the Bridge Program, so I can start on Kesimpta while my neurologist battles it out with my insurance 😂😜I was...

I'm so excited and happy to say, I got into the Bridge Program, so I can start o...

•2 months ago

Looking for a Zoom MS support group

Hello MS friends, Does anyone know about a Zoom MS Support Group? I'd love to join one. I lived in western NY state and went to two support groups which...

Hello MS friends, Does anyone know about a Zoom MS Support Group? I'd love to ...

•2 months ago

Vidofludimus calcium lowers NfL levels in progressive MS

This is an ongoing research study into a drug which may potentially be very useful in all forms of MS....

This is an ongoing research study into a drug which may potentially be very usef...

•2 months ago

New Study for users of Ocrevus or Kesimpta

Participants will be compensated with $$ Dear iConquerMS Member, We’re reaching out today with an invitation to participate in a new...

Participants will be compensated with $$ Dear iConquerMS Member, We’re r...

•2 months ago

I can't today!

I cried so hard when I flushed him down the toilet! 😥 Not really, 🤣 no fish was flushed, that I know of!🤣😂🤣 I just have the flu and it stinks! 🫣...

I cried so hard when I flushed him down the toilet! 😥 Not really, 🤣 no fish ...

CommunityAmbassador•2 months ago

Is MRI of the brain enough for exploring MS?

Hi all, Seen a general neurologist finally after suffering for more than 4-5 months of symptoms now I can associate with MS. Practically I have all you can...

Hi all, Seen a general neurologist finally after suffering for more than 4-5 mo...

Lonelytraveller

•2 months ago

Ozanimod (Zeposia) Controls MS Disease Activity Regardless of Age

Clinical and radiologic measures of disease activity remained stable or improved for relapsing multiple sclerosis (RMS) patients in all age groups over...

Clinical and radiologic measures of disease activity remained stable or improve...

•2 months ago

Obesity Associated With Faster MS Disease Progression

Obesity in multiple sclerosis (MS) was tied to faster worsening of disability and an increased risk of physical, psychological, and cognitive decline, a...

Obesity in multiple sclerosis (MS) was tied to faster worsening of disability an...

•2 months ago

New Rule on Prior Authorization

Despite some gains, rule doesn’t cover prescription drugs and allows payers too much time to respond to requests. ...

Despite some gains, rule doesn’t cover prescription drugs and allows payers too ...

•2 months ago

Measuring Disease Activity with MS Blood Test

A short video about the Octave MS Disease Activity (MSDA) blood test https://www.youtube.com/watch?v=5fjqnPyKeUA&ab_channel=HoagHealth

A short video about the Octave MS Disease Activity (MSDA) blood test https://...

•2 months ago

Blood Test for MS Activity Gets FDA Breakthrough Designation

The US Food and Drug Administration (FDA) has granted breakthrough device designation to the Elecsys Neurofilament Light Chain (NfL) test for multiple...

The US Food and Drug Administration (FDA) has granted breakthrough device design...

•2 months ago

Kesimpta and PML

I'm currently taking Kesimpta and was previously on Tysabri. The pamphlet for Kesimpta states PML could develop. My Doctor took me off Tysabri because my JCV...

I'm currently taking Kesimpta and was previously on Tysabri. The pamphlet for K...

•2 months ago

Let's talk Relapse!

1st, let me be clear, You go get medical help or contact your Dr, if you ever feel you need to! Relapses, also referred to as exacerbations, attacks,...

1st, let me be clear, You go get medical help or contact your Dr, if you ever f...

CommunityAmbassador•2 months ago

It's March!

You know what that means, don't you? 🤔 My either! 🤣😂🤣 Not really , it's MS AWARENESS MONTH!! Let ppl know about your MS! It's a thing people! Tell them...

You know what that means, don't you? 🤔 My either! 🤣😂🤣 Not really , it's MS ...

CommunityAmbassador•2 months ago

MS Awareness Month!

Today is the first day of MS Awareness Month and this year, MSAA is focusing on the theme "Improving Lives Through Supportive Connections.” From a 3-episode...

Today is the first day of MS Awareness Month and this year, MSAA is focusing on ...

Partner•2 months ago

medicare grievances?

Just wondering if anyone has had any success with grievances against medicare?

Just wondering if anyone has had any success with grievances against medicare?

•2 months ago

Blood tests to track MS progression

I have heard about a specific blood test, in US, that allows doctors to measure key biomarkers and evaluate a person's response to particular therapies...

I have heard about a specific blood test, in US, that allows doctors to measure...

•2 months ago

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