Talk soup

[Chefejj]

I have gotten to the point where I am so f' ing down. Usually I can just use my other program (AA) to get out of my funk, but I'm stuck. Maybe it's the13 years and the slow progression of secondary MS. I need some new ideas and meditation does not work! Erik Johnson

[falalalala]

I'm sorry you are feeling down.

Some form of exercise might help.

There's books on yoga for MS out there that might be beneficial, some with a lot of chair work so you don't have to be on the floor on purpose

I've seen these books on Amazon, Ebay and Thrift books (under 5 bucks on that site.

Good luck

[NorasMom]

Loud music? New hobby? Lunch at your favorite restaurant?

[kycmary]

Hi Erick I am praying for you is the best I can do I pray God will comfort you. Mary

[twooldcrows]

it is hard when we get in a funk ...enjoy some different ideas that others have sent to you...stay positive and you will wake up with some great fun ideas ....love and keep on keeping on no matter he is in this funk with you ...cheering you on to having some great fun of laughing our loud and enjoying life ...i am having to put up with too much snow and wind ...i love the snow but i am way over it being here ...had a bad storm that blew over nine trees and we still haven't had enough time to clean it up ...branches everywhere and of course the trees too...start to get some clean up and then it snows more ,covering up the trees and branches up that we have a chance to cut off of the trees and then it snows more to we don't get the trees cut up ..some are still barred deap in the snow that it will be awhile before we get to them...for the chain will fall off of the blade if we try to cut them up with any little amount of snow on them ...i am to my wits end ...they havent been able to fix the roof for all of the snow...so i am right there with you just a different problem ...we will get through this ...summer will be here sometime soon i hope..sunshine and warm weather and can get out side ....love and enjoy life for it is out there ....hahahhhahahahhahahahahha now need some great jokes...hahhahhaah

[Helpmeup]

It's so difficult when you just feel stuck. I have been there. The AA "one day at a time" idea can even be a challenge. I learned to break that rule into much smaller parts to make things more manageable. Sometimes a deep breath and one hour at a time is easier to tackle. Break the day up any way that works best for you. Maybe you can get through til lunch or dinner. Maybe rewarding yourself for reaching a small goal (for me it's cookies).

Don't know if you've tried writing in a journal. Years ago, when I was really struggling with my M.S. issues, a friend suggested writing down all my feelings. I dismissed it as a dumb idea, but one night, feeling desperate, I grabbed a notebook and a pen and started writing. It went slowly at first, but I quickly got caught up in wanting to express my fears, my anger, my frustration, and before I knew it, I was writing so fast I could barely keep up. I was able to get a lot of emotions out that way and it really helped. I was shocked at how much I was holding inside without realizing it. Writing it down, holding nothing back, freed me up in many ways and I gradually became "unstuck".

I wish you the best getting through this. Know that you are not alone. Many of us on this site have been there. Sending a hug your way. 🤗

[Mollyabigail in reply to Helpmeup]

I like this idea!

[Helpmeup in reply to Mollyabigail]

🤗🤗🤗

[CatsandCars]

I'm sorry you're feeling so depressed. It's hard to get out of that deep hole sometimes. Have you thought about maybe seeing a psychologist or therapist with experience in chronic illness? Or maybe an in-person MS support group, if you can find one?I wish you the best and hope you feel better!

[stepsforNeeC]

Stay encouraged my friend, our journey is not an easy one, if feel your medication has plateaued; this might be a time to discuss other options with your Neurologist. I will keep you in my prayers and your community is here for you !🙏 Peace and blessings. NeeC

[Irishgirl76]

I have emotional stress and AA issues. Alcohol and MS are both genetic and environmental. Our loved ones and support groups can easily see the outer layer but underneath there is more. Understanding ourselves is difficult but together we can become more WHOLE than just the ugly pieces that fills us. We journey for ALL THAT IS POSSIBLE! Love ❤️ all parts deserve HEALING. Be well friends.

[carolek572 CommunityAmbassador]

Do you have a hobby or pastime, Chefejj ? I quilt and it has pulled me out of my funk many times. Keep Smiling

[Mollyabigail]

I hear you, Erik. I do. Most likely, I have secondary progressive too. Everyone has good suggestions here. May I add another? Jesus is a good answer. Know that I will be praying for you.Short story - Last night, I opened a cedar lined closet to put away a washed blanket. The closet was "chaos." I tossed the blanket inside, closed the door and sobbed for 4-5 minutes. The old me would have climbed into that closet & set it straight! Now, I can hardly walk the length of my house. Funk? Yes, I understand a funk!

But I got to my bedroom & saw my sign next to my bed. (picture above) I started reading my Bible again this morning. We gotta have faith. Jesus is the answer. Blessings to you.

Isaiah 41:10