side pain.

[Momjules]

I read this morning about someone with side pain.

I have had intense side pain for 11 years

I take hydrpmorphone every day with disapam for my spasms in my legs or sometimes it travels through my whole body

Someone today said they have side pain.

Do they know why and what causes it?

My doctor said it’s from a lesion on my spine that must be trapping a nerve. As my pain is there I can sometimes feel it coming from my spine where the lesion is

only way out is back surgery on my spinal cord?

I can’t do that. One sneeze from the doctor and I’m paralyzed.

It’s a 24/7 pain that I hate so bad.

I have heart failure and diabetes so my options are somewhat limited.

Does anyone have any advice? Thank you!

Would the person who has side pain please explain more about it?

Thank you!

[lbenmaor]

I am so sorry this is happening to you. Prayers are going out!

Leslie

[Momjules in reply to lbenmaor]

thank you so very much!

Blessings to you and your family

[CatsandCars]

I've never had that problem, but it sounds really terrible to live with. I am very sorry you're going through such pain.

[ahrogers]

Sounds like it's possibly what is referred to as MS hug where the muscles in your chest or sides spasm. Talk to your doctor about antispasmodic medications. Not sure if there is a nerve block that can be done depending which nerve is effecting the area.

Do you already see a pain specialist? If not, that would be a good start.

[Momjules]

good morning

I also get the ms hug

My side pain never ends. I’ve had four nerve blocks which hasn’t helped.

I have a nerve stuck somewhere.

My only hope is back surgery which I’m not taking a chance on.

All my doctors say the same thing messing with my back.

I’ve gone to therapy over this with no help.

Now no one you my side.

[Frances_B]

As someone else has mentioned - it could be a somewhat lopsided version of an MS hug or a couple of specific muscles that have some spasticity affecting them. Spinal lesions don't press on nerves that exit the spine and people with spinal lesions don't feel pain in the actual lesion itself - the effect of lesions is changing/ reducing the signals that pass along nerves within the lesion. Remember that lesions are scarred and stripped nerves, they are not "bulging" sorts of "scar tissue" which could pinch nerves.

medicalnewstoday.com/articl...

You might do well to ask for some further investigations to see if you have a disc pinching a nerve, or a bony growth on a part of your vertebrae where the nerve goes outwards from the spine, or some other similar non-MS related cause. If those are ruled out as a cause of your pain then it's worth talking further to your neurologist about any medication options which might ease spasticity or muscles spasms or neuropathic pain problems which might be causing the pain.

There are many people suffering things they don't have to put up with because they assume it's all due to their MS, and lazy doctors too often take the easy excuse of blaming MS when they shouldn't.

[Momjules]

good morning

I’ve had my side pain through eleven years and four neurologists. All believe my lesion is hitting a nerve somewhere.

Are they all right?

Only opening my back will tell

Yes there are other things wrong with my back, but I can feel this pain travel around to this spot on my back.

Thank you for your answer!

[Dan_NY]

Good morning. I have pain in my side, ribs, abs etc.. Not DX with MS but hang around as symptoms of mine can overlap. Ive seen a litany of doctors and so far not one can explain this. The closest guess is some type of intracostal neuralgia, cause unknown . The spinal surgeon I saw said my spine is the cause and surgery would repair. he then said he woudlnt do the surgery. I did not have good feelings about his hypothesis and did not pursue. He didnt present me with anything substantial to back his claim and given my other symptoms he said were not caused by the spine, it made more sense that something else was going on.

The other item of interest is I am dx with non radial axial spondyloarthrtitis with peripheral involvement. This condition is known to cause chest pains, though the locations of my pain are contrary to whats in the literature. I have confused 3 sponydloarthritis docs who clearly stated the pain is not from the condition they dx me with. (???) I am starting taltz soon and the doc told me not to count on this to remove the chest pains but then added you never know.

Do you see a rheumatologist? If so, I would mention this pain to them. If not maybe go. Also you can get the opinion of a spinal surgeon, and not neccessarily get the surgery. The doc may say emphatically NO not from spinal issues. If its not bad for you to see one, it doesnt seem it could hurt.

If your condition is anything like mine, I wouldn't wish this on anyone. The constant nagging at times debilitating pain drives me bat shit crazy.

[Greentime]

Sounds terrible, I feel for you.

[Momjules in reply to Greentime]

Thank you soo much!!

They say keep moving so I try.

Blessings to you and your family