New to this community, DX in 2017, RRMS - My MSAA Community

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New to this community, DX in 2017, RRMS

Katreetree profile image
23 Replies

Hello I am new here! I was dx in 2017 and have been on Gilyena and a few other things for some minor symptoms. Recently seem to have developed spasticity, and a variety of increased other fun things so I was poking around online trying to find forums!

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Katreetree profile image
Katreetree
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23 Replies
Kit10 profile image
Kit10

Hello and welcome!

lbenmaor profile image
lbenmaor

Welcome to our Team!

Leslie

kdali profile image
kdali

Welcome!

CatsandCars profile image
CatsandCars

Congrats on finding what I think is an amazing group. I only joined six months ago, but I'm so happy to be here! Sorry to hear your spasticity is getting worse; I'm with you there. It's not fun to basically wake up and have a new symptom when you didn't have it yesterday. What happened there? Why? What does it mean? 🤔 I don't have the answer, but as a group there are always people who have been through it and are willing to help you deal with it! 😊

Helpmeup profile image
Helpmeup

Welcome Katreetree! M.S. seems to be the gift that keeps on giving 😜. Every day is a new adventure full of surprises! Sorry to hear you're dealing with some new issues. This is a great group of folks with lots of knowledge and a vast amount of experience. Glad you found us!

Elizt3 profile image
Elizt3

Welcome. Glad you found us!

kerry0915 profile image
kerry0915

Welcome This is a great group of friends. See how I say friends and not patients like us. We all support each other and share what is happening in out lives.

sashaming1 profile image
sashaming1

Welcome, you can learn a lot here.

Cwright170994 profile image
Cwright170994

If you ask your Dr about medication to help your spasticity, they'll help you.Was given my clinically definite diagnosis of RRMS in Nov 2016. I remember getting started on baclofen a few years ago when I mentioned at my annual neurology appt that my legs were spasming so much at night that they'd keep me awake. He prescribed me 10mg baclofen twice a day at first, but when I mentioned to him I often needed to take one during the afternoons and another after I had gone to bed, he changed the instructions as such. I am sleeping so much better now.

Greentime profile image
Greentime

I also think this is a great group of people! My neurologist says "more of" symptoms you have had is different from new symptoms. Will you see your neurologist about the new spasticity?

Scout4x4 profile image
Scout4x4

I would let my Dr know and see if any lesions have affected that area of your brain. If not it is a meditation related issue. Welcome to the group!!!

lbenmaor profile image
lbenmaor

Welcome to our team!

Leslie

Peruzzot profile image
Peruzzot

Welcome to the group.

Writter profile image
Writter

the same. I came back recently to this group, for learning new things about MS

Welcome good caring folks here and lots of good information

Tazmanian profile image
Tazmanian

Welcome

AquaZumbaFan profile image
AquaZumbaFan

At the risk of sounding repetitive.. I totally agree with the group and feel that a lot of people on this forum have had experience with all sorts of things and often many good suggestions. I’ve had MS since 2001 and I am learning new stuff about it often on this site- welcome!

Sweetheartonvdayl profile image
Sweetheartonvdayl

Hi Katrertree🙂li

Wecome to this amazing group of friends. You’ ll get lots of people here with the same sx your are experiencing. Thats why its important to share (so you dont think you are going 🤪crazy!)

🙏❤️Lisa💕

Sweetheartonvdayl profile image
Sweetheartonvdayl in reply toSweetheartonvdayl

Glad you found us! You really need to call your neuro for an increase in baclophen-i take 20mg 3x/day.

Xvettech profile image
Xvettech

hi and welcome!

carolek572 profile image
carolek572CommunityAmbassador

Welcome to the forum, Katreetree ! Many members in this forum have posted about spasticity. You can find their posts by putting the word ‘spasticity’ in the search box in the upper left hand. You can also go to the website mymsaa.org and get more information. I look forward to hearing more from you! In the meantime, Keep Smiling! :-D

MSFlea profile image
MSFlea

Welcome!! I just found this forum last month when I was diagnosed. Looked at a few, but this is the most welcoming and positive group of people I have found! Hope you enjoy it here too! Sorry to hear you are developing spasticity! I have a touch in my left leg and don't like it one bit!🧡

hairbrain4 profile image
hairbrain4

Welcome! This is a great place for information, for a good laugh, or to vent.

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