Posts - My MSAA Community | HealthUnlocked

My MSAA Community

9,019 members • 20,711 posts

All posts for March 2023

Calling Former & Current Aubagio Users

FWIW, I started Aubagio 14 mg April 15, 2022. So, it's been nearly one year since I started this tx. I had been self-injecting Avonex (1997) since I was dx...

FWIW, I started Aubagio 14 mg April 15, 2022. So, it's been nearly one year sin...

•1 year ago

irregularity

My wife with MS goes 6 sometimes 7 days between bowel movements. Any suggestions on how to correct this. She does take a daily stool softener and has tried by...

My wife with MS goes 6 sometimes 7 days between bowel movements. Any suggestions...

•1 year ago

Little laughter 😂

Good morning looking 👀 like more snow ❄️ and wind 💨 today and tomorrow. Everyone is ready for spring but we can use the moisture to offset drought 🤞🏼 Still...

Good morning looking 👀 like more snow ❄️ and wind 💨 today and tomorrow. Everyo...

•1 year ago

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Odd Question

Can nerve pathways damaged by MS send false signals back to the brain? I know damaged pathways struggle receiving signals, but can they send lies? For years...

Can nerve pathways damaged by MS send false signals back to the brain? I know da...

•1 year ago

24 Mar 2023 Your advice needed

G'day, my ms family. Today my physio politely informed me that I can not use a cane for stability. So of course, I need your advice on a good stand-up...

G'day, my ms family. Today my physio politely informed me that I can not use a...

•1 year ago

Little laughter 😂

Well little more snow last night and this morning is coming down, so much for spring 🤷‍♂️ of course it’s only March. The exhaust cover outside for stove has...

Well little more snow last night and this morning is coming down, so much for sp...

•1 year ago

Dr appt updates

Saw my pulmonologist on Tues. “Why haven’t you been using your Cpap?” Me: “Sometimes I feel claustrophobic and it’s hard to breathe. I also have had shortness...

Saw my pulmonologist on Tues. “Why haven’t you been using your Cpap?” Me: “Somet...

•1 year ago

Update: I'm..... PREGNANT

Hi all, Last time I shared a post was in February 2022 and wanted to update ya'll. Here's the previous post:...

Hi all, Last time I shared a post was in February 2022 and wanted to update ya'...

•1 year ago

Little laughter 🤭

Good morning a little skiff of snow ❄️. Dealing with headaches again, what a pain 🥴. Looking 👀 like a late spring this year but I guess it’s just March...

Good morning a little skiff of snow ❄️. Dealing with headaches again, what a pa...

•1 year ago

my new grand baby- #4

Clara, all smiles!!! My girl, she is 6 weeks old now. I just had to share;) I mean really, happy is a good thing!!! My daughter in law is beautiful, and such a...

Clara, all smiles!!! My girl, she is 6 weeks old now. I just had to share;) I me...

•1 year ago

Paxlovid and MS

My husband was diagnosed with Covid on Sunday night and is taking Paxlovid. I’m wondering if there are people in the group who have taken Paxlovid for Covid...

My husband was diagnosed with Covid on Sunday night and is taking Paxlovid. I’m ...

•1 year ago

Here we go a little laughter 😂

Good morning everyone hoping for this to post🤞🏼 We had a couple inches of snow ❄️ this morning, great spring weather 😂 Have several friends just 70 miles...

Good morning everyone hoping for this to post🤞🏼 We had a couple inches of snow...

•1 year ago

Little laughter 🤭

Haven’t been able to post? So I’m given it another try, will see 🤷‍♂️

Haven’t been able to post? So I’m given it another try, will see 🤷‍♂️

•1 year ago

how long from symptoms to diagnosis?

Hi, I’m new here. Honestly, all of my symptoms are consistent with MS and I’m awaiting MRI. My most recent flare was last month and before that was 3.5 years...

Hi, I’m new here. Honestly, all of my symptoms are consistent with MS and I’m ...

•1 year ago

21 Mar 23 YOU have a mission

G'day, my Relapsing Remitting ms (RRms) family. As always I hope YOU had a great night's sleep last night. At least better than mine. I do know what was...

G'day, my Relapsing Remitting ms (RRms) family. As always I hope YOU had a gr...

•1 year ago

Hidden Disabilities Sunflower

Just heard about this today. A small article in this months Travel & Leisure. A free subscription from Fetch Rewards (an app you earn points in for scanning...

Just heard about this today. A small article in this months Travel & Leisure. A...

•1 year ago

weird place for a MS hug

Hello MS family, I pray that all are doing as well as they could. Its spring time. I know hot weather does not do the body good. In my case winter nor summer...

Hello MS family, I pray that all are doing as well as they could. Its spring ti...

•1 year ago

thank you all for well wishes

went well a little nervous at first with new infusion site but went smoothly if long day, thanks all lots going on again probably be less attentive again for a...

went well a little nervous at first with new infusion site but went smoothly if ...

•1 year ago

Finally!

Getting my Ocrevus infusion right now!

Getting my Ocrevus infusion right now!

•1 year ago

Webinar: “Family Planning and Living with MS”

During MS Awareness Month, MSAA is releasing all new programs that follow our theme: “Life with MS: Different Stages of the Journey.” On March 22, at 8:00 PM...

During MS Awareness Month, MSAA is releasing all new programs that follow our th...

Partner•1 year ago

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St. Patrick’s Party

It is a bit late for this, but I want to share this party picture! I’m with one of my friends. Lots of good food and fun. Of course I got all dressed up (as...

It is a bit late for this, but I want to share this party picture! I’m with one ...

•1 year ago

Old post

Does anyone remember an old post about air traffic controllers and pilots? It was very funny and I've been trying to find it but can't remember who posted it....

Does anyone remember an old post about air traffic controllers and pilots? It w...

•1 year ago

Can anyone give us an update on Kenu?

It's one thing for him to skip out on us because he wants to. It's another thing entirely if they're still blocking him. I hope he and Rozy are okay.

It's one thing for him to skip out on us because he wants to. It's another thin...

•1 year ago

My children aren't speaking to me tonight

Nah, it’s nothing like that. See, I have this incredibly bizarre linen closet that was built into an old stairwell going up. The steps are still there, but...

Nah, it’s nothing like that. See, I have this incredibly bizarre linen closet t...

•1 year ago

Belated thank yous

Thank you everyone for the birthday wishes back in August. It’s been a rough, bumpy road since I had Covid last June (fortunately it was 2 days after returning...

Thank you everyone for the birthday wishes back in August. It’s been a rough, bu...

•1 year ago

19 Mar 2023 I guess the world is not designed for people like us

Good Sunday or Monday to YOU all my beloved ms family. Now, now do not read the title and get all negative and hide in your dark corner and weep. Think...

Good Sunday or Monday to YOU all my beloved ms family. Now, now do not read t...

•1 year ago

ms symptoms??

I have had facial numbness started on my left side in July 2022 now also affect my right side of face and lips and front of tongue. This is daily but off and...

I have had facial numbness started on my left side in July 2022 now also affect ...

•1 year ago

MS & divorce

hello everyone! This is a non-medical related question and more of a life question: do you think that while acquiring a divorce lawyer you get what you pay...

hello everyone! This is a non-medical related question and more of a life quest...

•1 year ago

The search for a diagnosis…

So, finally got the results from my Lumbar Puncture, the hospital lost them, and they are a little confusing. It showed no bands, which is good, right? However...

So, finally got the results from my Lumbar Puncture, the hospital lost them, and...

•1 year ago

In the best Irish Jokes the Irishman is cleverer than the Englishman...

Paddy is in London looking for work. He goes for a job as a labourer on a building site. The foreman asks him, "Do you know the difference between a girder and...

Paddy is in London looking for work. He goes for a job as a labourer on a buildi...

•1 year ago

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