19 Mar 2023 I guess the world is not d... - My MSAA Community

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19 Mar 2023 I guess the world is not designed for people like us

RoyceNewton profile image
14 Replies

Good Sunday or Monday to YOU all my beloved ms family. Now, now do not read the title and get all negative and hide in your dark corner and weep. Think three times about it. Ask yourself "What can I do to make this SUIT me, my needs, my ms. There is something and it is your job to find it. Nobody is going to find it for YOU, like ms, this is up to YOU and only YOU because YOU are the one it mostly impacts upon. YOU, are the one who has to live with it 24 hours a day, 365 Days a year, and one extra day on leap years. Do YOU get the hint, are your eyes opening? This is your very own ms, we are all a little different and this is your version.

Take your time. Look at your situation. What can YOU do to make it easier for YOU? It might be something like parking next to a ramp so YOU do not have to step over a curb. Using a trolley in the shops to get around. Even using a scooter if they have one. I have found that this online shopping is very convenient. The shop does all the walking around and I limit my impulse buying. Yes, I am weak and my credit cards show just how weak I am.

The world may not be designed exactly for your ms, BUT YOU can find a way to make it work for YOU. Try hard, make the effort and live your absolute best life. Whatever that may regardless of the changes it forces on YOU.

Be kind to yourself, live your best and do not be scared too much.

Royce

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RoyceNewton profile image
RoyceNewton
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14 Replies
GrmaK profile image
GrmaK

Well said!! Thank you for your kind, uplifting attitude this day!!

Kimberly

starlight5 profile image
starlight5

Oh, I really wish there was a dislike option available.

Royce, remarks like this are so off-putting. Are they really necessary?

"the world is not designed for people like us"

"don't get negative and hide in your dark corner and weep"

"do not be scared too much"

Your suggestions regarding ramps, scooters, online shopping, etc. are helpful to some but seriously, think before you post...

kwhompus profile image
kwhompus in reply to starlight5

You are much nicer with your comments than I wanted to be.

tompumo profile image
tompumo in reply to kwhompus

I would put it a different way - MS sucks. But there's nothing I can do to change it. So, my only choice is to learn how to best live with it. Go to support groups and meet others with the same disease. And learn how to change my life so I can be the 'new me'. I've lost a lot of friends, but those I haven't lost are real friends. And I've made some new ones, who have MS or know someone who does. The new me is still a good person.

RoyceNewton profile image
RoyceNewton in reply to tompumo

very well put and continued good luck and good life.

RoyceNewton profile image
RoyceNewton in reply to starlight5

Thank you, I re read the post and do not understand your hostility. Did you read the whole post?

twooldcrows profile image
twooldcrows

said it all ...yes we can do our way ...

NorasMom profile image
NorasMom

Absolutely, Royce! When we're so used to working for a living or taking care of a family, it's very hard to change the mindset to looking after ourselves. I've found so many shortcuts now that have made my life so much easier, but it took a while.

RoyceNewton profile image
RoyceNewton in reply to NorasMom

everything takes a little time.

PWilli profile image
PWilli

Thanks for placing things in in perspective. I hope you have a wonderful day.

Pam

RoyceNewton profile image
RoyceNewton

Thank you, and I hope your day and all your days are great for YOU.

kwhompus profile image
kwhompus

Are you talking yourself through a hard time? If you are ,be brave, seek advice, reach out to someone who knows what they're talking about. Help is out there for you ROYCE. It has become obvious that these are YOUR concerns and this how you manage them.Remember YOU are not alone.

RoyceNewton profile image
RoyceNewton in reply to kwhompus

WOW, it took you that long to work that out, and sorry nobody can help me but me. I have worked that out of 20+ years.

stepsforNeeC profile image
stepsforNeeC

I hear you my brother - peace and blessings . Enjoy life. Blessings NeeC

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