weird place for a MS hug

[LissaH]

Hello MS family, I pray that all are doing as well as they could. Its spring time. I know hot weather does not do the body good. In my case winter nor summer does my body good because I am affected by both hot and cold.

Well my weird question is does anyone have their MS hugs in other places other then their mid section? I feel like my hug in around my heart. Its not painful just feel like a very tight squeeze. I've been to so many doctors and took so many test and they all come back negative. I'm out of breathe, have to sit just taking a few steps. Its crazy. It may last a day or so then poof its gone like it never happened. I wont get it for a long time but it just weird the way it pops up and gone the next. Doctors see how I'm out of breathe but the heart monitor reads everything is normal. By the time I come back for a follow up a day or two later. Its like I never had any issues at all.

I have never so far have had a MS hug in my mid section, but the way everyone describe it its much like what I feel around my heart area. I was just wondering if any one else have the same issue or feel the same MS hug in other places.

Enjoy the rest of your day,

LJ 🧡

[falalalala]

I felt mine from my upper chest to just above my waist.While it was uncomfortable, it was nothing like Copaxone.

That dropped me to the floor with way more tightness in my chest and difficulty breathing.

[mrsmike9 in reply to falalalala]

Me, too.

[falalalala in reply to mrsmike9]

Copaxone?

[mrsmike9 in reply to falalalala]

When I was on that, which wasn't long, was not when I had "the hug". At least I don't think so. But the position of mine was the same as yours. I remember thinking, the must be the "hug" I've heard about, so I didn't panic but breathed slowly until it went away. That was the only one I had.

[falalalala in reply to mrsmike9]

Oh,I am glad it stopped after one for you. the hug for me felt like someone squeezing me but the Copaxone reaction felt much worse.

[LissaH in reply to mrsmike9]

Man I hope that it doesn't happen to you again. that is scary.

[LissaH in reply to falalalala]

wow sorry to hear that. yes mines get tight like someone is holding my heart in their hand and just squeezing it. Makes it hard to breathe sometimes. (well more like out of breath). I pray that that will not happen to you again.

[falalalala in reply to LissaH]

I haven't in a long time.

I hope yours stop.

[LissaH in reply to falalalala]

thank you it doesn't happen often but when it does it has only lasted maybe a few mins. The first time it lasted a week that's when i went to every heart doctor you can name and they couldn't find anything. the next thing it went away as if it never happened.

[GrmaK]

That is me to a “T”. I have not been diagnosed yet, but this is one of the many symptoms I have had lately. Well, for the last 5 years or so. I can’t keep my O2 sats up, but they tell me all is well. How can it be? So frustrating.

Good luck!!

Kimberly

[LissaH in reply to GrmaK]

wow sorry to hear I hope you find some relief

[goatgal]

I'm never sure if some of the weird sensations I experience are MS, but I assume they are since they are relatively fleeting. I experience a tightness or stiffening along the tops of my feet and thighs, or in the calf muscles. They last only minutes to hours, then disappear. They are uncomfortable but not painful though I do get random shooting pains at other moments.

[LissaH in reply to goatgal]

I also get those I was told that they were spams, hope things get better for you.

[goatgal in reply to LissaH]

You are kind, I appreciate your response. At almost 83, I've pretty much learned to live in and with my weird symptoms and feel oh so lucky that I can still get around, take care of myself, my dog and my gardens and live independently.

[Elizt3]

have you been evaluated for G.I. problems? I ask this because I’ve had a troubling MS hug now for over two years. I was evaluated for both cardiac as well as G.I. problems. Cardiac was clear. But I had an upper endoscopy that showed a number of problems. Still not sure if the symptoms I have are MS hug or G.I. related.

[309Ygi in reply to Elizt3]

to heal one must drink what great for us but taste not so much . Alovara juice . 6 oz 2 day on empty tummy . No coffee or milk . ) juicing a green drinks and carrot juice .. no meat you can Google chipsa immunology green drinks . If you want to heal this is a great way . We eat potatoes cabbage, watermelon . Oatmeal . I know all you speak of and this has helped me. My head lesions are smaller

[Amore55 in reply to 309Ygi]

It’s very interesting that you have head lesions which are getting smaller. I had an MRI in December 2022 and my multiple head lesions were completely gone! They can be absorbed into the cerebrospinal fluid in the brain. The neurologist said that this is what happened to mine.

[LissaH in reply to Elizt3]

Im not sure either. Sorry your going through that. I hope they find out whats causing it and get you some help.

[309Ygi]

hello beautiful !! I get them all over from hips to shoulders . And ya it makes you feel like bad . Weird but I say go to your chiropractor . It sounds like a miss placed rib . Or have someone massage down and out fingers like a rake in between the ribs and rake all the way from sternum to spine . Hope that makes sense !

[ahrogers]

I get muscle spasms in a variety of places, including the muscles in the rib cage. Glad they checked your heart just to be sure.

[LissaH in reply to ahrogers]

thank you they told me I was a walking mystery 🧐🤔 lol

[Mollyabigail]

LissaH, that's a bit scary at first, huh? Gosh. At least your heart is ok. My right ribs have hurt steadily for 2 years now, and doctors dismiss it or chalk it up to scoliosis, which I do not have. So I stopped telling them about it and just DEAL with it. But if the pain is around your heart, that's another story. Sorry I cannot relate, but keep an eye on that! Hope you feel better.

[GrmaK in reply to Mollyabigail]

Mollyabigail- don’t you wonder what the heck is up with these health professionals? I have also had the rib pain, tightening in the chest, and problems with oxygen and I get dismissed as well. Sometimes I wonder if they just want the harder cases to just go away. I get tired of being dismissed. I was also told I had scoliosis, but they aren’t able to show me that. Hmmm. I hope this doesn’t last 25 years like some. Good thing for all of you, I may go crazy otherwise😄

Kimberly

[Mollyabigail in reply to GrmaK]

Don't go crazy! Do you have any answers yet? I chalk the dismissals up to being rural, & not having much choice of neurologists. (although a few ER docs also dismissed it too) . It is a 3-4 hour trip to an M.S. clinic in Birmingham, but maybe if/when I retire, that could be a feasible trip! Just going by what Dr. Boster says on YouTube, the specialists spend much more time with patients. Blessings to you!

[LissaH in reply to Mollyabigail]

thank you, its not really a pain just pressure. it weird but it doesn't hurt me. I hope you find relief.

[hairbrain4]

I get a spasm that starts at the bottom of my sternum & it works its way up to the top of my neck making my head feel as if it's going to be pinched off. I found if I swallow a drink of water when it happens the spasm eases off. I don't know if it's an MS hug but it happened about once or twice a year. Nobody has been able to tell me what it is either.

[LissaH in reply to hairbrain4]

wow thats a little scary. I'm glad its only happened 2x and I pray it will never happen again. That has to me a crazy feeling. wow again.

[LissaH]

Thanks everyone for sharing. I can't believe all the different MS hugs we all have. If only non MSers could truly understand what we feel and go through. Sadly they never will, not even the doctors we seek for help and understanding if they are not dealing with MS themselves.

I hope everyone will have a blessed day and stay safe. So glad we have each other to talk about these things with. It makes life so much easier when you have others who are going through the same things or close to it. I don't know were I would be if it wasn't for my MS family. I hope we are some how showing support for the month of March for Multiple Sclerosis. I've been wearing Orange and my MS t-shirts.

STAY STRONG FAMILY. 🙂🧡

LJ