Update: I'm..... PREGNANT: Hi all, Last... - My MSAA Community

My MSAA Community

9,444 membersβ€’21,232 posts

Update: I'm..... PREGNANT

lcms1 profile image
lcms1
β€’30 Replies

Hi all,

Last time I shared a post was in February 2022 and wanted to update ya'll. Here's the previous post: healthunlocked.com/mymsaa/p...

Well, wanted to share some exciting news from that previous tremulously sad post.. I'm pregnant! I'm 18 weeks! 😁 We're having a... BOY 😍😍😍😍

So far, I have felt great, minus some nausea in the first trimester but not as bad as what some women experience - totally right when they say pregnancy hormones put a safety bubble around you. I'm sure the third trimester will rear it's ugly head and make me swallow my words lol But at this point, I feel good. No issues or symptoms with my MS. I had an appt with my neurologist last week and I checked out just fine. I told her that they should put these hormones in a bottle and give to MS patients. She updated me that the other two girls who were getting off Gilenya at the same time as me in 2021 and who also miscarried are now mothers. So it was in fact Gilenya being the cause of our miscarriages. She informed me that at the neurology center they no longer prescribe Gilenya to women in their childbearing years after our cases. The risk of serious relapse getting off Gilenya is VERY high. She also said only 1 out of her 9 most recent patient pregnancies, had relapsed after giving birth. She relapsed 7 months postpartum. Anyways, she told me after I give birth to watch for MS signs and if I notice anything to schedule a steroid infusion right away. I would just have to "pump and dump" for two hours after being infused since I want to breastfeed.

Long story short, pregnant and doing well (feeling his movements in my belly now) and hope each of you are are doing as well as you're able given what has been thrown in our laps. Love to all ❀️

Written by
lcms1 profile image
lcms1
To view profiles and participate in discussions please or .
Read more about...
30 Replies
β€’
falalalala profile image
falalalala

Congratulations!

NorasMom profile image
NorasMom

Oh, congratulations! May the next few years be absolutely wonderful for you.

mrsmike profile image
mrsmike

Congratulations! What great news. Stay well and keep us posted on your progress.πŸ§ΈπŸ«„πŸ§‘β€πŸΌ

Kit10 profile image
Kit10

Congratulations!πŸ‘Ό

jimeka profile image
jimeka

So happy for you and a little boy. Something to look forward to. What’s your due date? Hope your ms behaves, keep in touch and let us know how you are both doing, blessings Jimeka πŸ€—

lcms1 profile image
lcms1β€’ in reply tojimeka

August 23rd ☺️

jimeka profile image
jimekaβ€’ in reply tolcms1

πŸ‘ thank you

Xvettech profile image
Xvettech

great news! Congratulations!

Kenu profile image
Kenu

Congratulations πŸ₯° Hopefully everything goes well πŸ™πŸ‘πŸΌπŸ˜‰

starlight5 profile image
starlight5

Congratulations!πŸΌπŸ‘ΆπŸΌ

DM0329 profile image
DM0329

Congrats! Blessings. πŸ˜€πŸ™πŸ˜‡πŸ€ž

Humbrd profile image
Humbrd

Congratulations! 🍼 🌹

Amore55 profile image
Amore55

Wonderful news! Happy celebrating πŸ₯³

carolek572 profile image
carolek572CommunityAmbassador

Congratulations, lcms1

Lynn2202 profile image
Lynn2202

Congratulations. Happy Times ahead xx

Elizt3 profile image
Elizt3

Congratulations! So happy for you😁

Graip76 profile image
Graip76

Congratulations! Wonderful and beautiful news!! 😊❀️

Brindisi1 profile image
Brindisi1

What a blessing. Prayers for good pregnancy, delivery & healthy happy baby.

Is warning on the drugs website now?

lcms1 profile image
lcms1β€’ in reply toBrindisi1

Thank you!

You know I'm not sure? I know they have a pregnancy registry if you get pregnant while on Gilenya so they can monitor you. I was off Gilenya for 5 months before trying to concieve and had lingering effects. I think the other two girls were off Gilenya for 3-4 months before trying. Gilenya states you only need 2 months for your system to be clear of Gilenya.. but everybody is different. I just think there hasn't been enough research with Gilenya and pregnancy nor do they know long time effects so we're lab mice for them.

bxrmom profile image
bxrmom

Congrats! So happy for you!

Mollyabigail profile image
Mollyabigail

Aw, congratulations! Boys are so much fun, if you do not count stepping on Legos at night in the dark! When are you due? Please keep us posted!

lcms1 profile image
lcms1β€’ in reply toMollyabigail

August 23rd πŸ₯°

mrsmike9 profile image
mrsmike9

Absolutely wonderful! So happy for you!!

Tazmanian profile image
Tazmanian

Congratulations!

Workerbea profile image
Workerbea

Congratulations! Wonderful news and positive thoughts being sent your way! ❀️ πŸ™ πŸ‘

hairbrain4 profile image
hairbrain4

Congrats! Prayers that everything stays stable!

kdali profile image
kdali

Congrats! πŸŽ‰πŸ₯° I'm glad to hear you are feeling well!

Fancy59 profile image
Fancy59CommunityAmbassador

Congratulations! Take care and pamper yourself regularly to ensure a healthy baby and a smooth pregnancy!

twooldcrows profile image
twooldcrows

wow this is great ...CONGRATULATIONS ...WOW... this is wonderful....

BlanketTime1 profile image
BlanketTime1

that's wonderful news!πŸ₯‚πŸ™Œ

Not what you're looking for?

You may also like...

I'm new here

My name is Alice Nyberg. I was diagnosed in 1994 with MS. I have been on Betaseron and Gilenya....
alleynyberg profile image
β€’

Next Step - Lab Results

I recieved a call yesterday from my new Neuro's nurse at the MS Center. My Gallon of blood test...
cassielynn71 profile image
β€’

Matters of the Heart

Ladies, I am directing this painful experience with you, because I am truly on such a 2020...
stepsforNeeC profile image
β€’

Gilenya help

Update. Got a call today from Novartis. They got my paperwork. But, apparently you have to go...
Kath55 profile image
β€’

Update and Adventure Buddy!

Just an update, and frustration vent (pardon me for venting, but not many places I can do that!)...
MSFlea profile image
β€’

Moderation team

See all
johnMSAA profile image
johnMSAAPartner

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.