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My MSAA Community

9,019 members • 20,711 posts

All posts for September 2021

Wedding Vows and Infusion treatments

I have a family wedding on Oct 2 my next infusion is Oct 5, should I be worried? Fully vaccinated late August. Wedding is in NH I live in Mass, my NH family is...

I have a family wedding on Oct 2 my next infusion is Oct 5, should I be worried?...

•3 years ago

Rollator-Walk!

I had a cheallenging walk outside this a.m. I used a different kind of rollator but it got me up and down the hill. Ginny drove by and asked if I needed...

I had a cheallenging walk outside this a.m. I used a different kind of rollato...

•3 years ago

My plan 21 Sep 2021 2

Live my life to the absolute fullest. Make mistakes, learn from them and try hard not to do them again. Of course, knowing that I will but being very aware...

Live my life to the absolute fullest. Make mistakes, learn from them and try h...

•3 years ago

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I am sorry that you had to join our family 21 Sep 2021

Yes, it is true I personally am very sorry that "YOU" had to join this dysfunctional family, That b being the case, welcome. We have "YOU" now, "YOU",...

Yes, it is true I personally am very sorry that "YOU" had to join this dysfuncti...

•3 years ago

lonely people 21 Sep 2021

•3 years ago

Recipes 😜

Enjoy your day 🤣👍😉Ken 🐾🐾

Enjoy your day 🤣👍😉Ken 🐾🐾

•3 years ago

NEW WEBINAR for Couples and Care Partners

For everyone on our My MSAA Community who is living with MS and involved with a partner, registration is open for the following MSAA Webinar: "Healthy...

For everyone on our My MSAA Community who is living with MS and involved with a ...

Partner•3 years ago

Attack

Hi very stressful two days and left leg just died on me, dragging it. As I recall we have to wait 24 hours to be sure it’s an ms attack? Sorry I’ve had it for...

Hi very stressful two days and left leg just died on me, dragging it. As I recal...

•3 years ago

WARNING ⚠️

Have a great week ahead 👍🙏Ken🐾🐾

Have a great week ahead 👍🙏Ken🐾🐾

•3 years ago

YOU 20 Sep 2021

"YOU" are a worthwhile Homo Sapien. YOUR life is worth living and "YOU" are valuable. Do not be angry. Adapt and manage your ms for it is mostly unique...

"YOU" are a worthwhile Homo Sapien. YOUR life is worth living and "YOU" are va...

•3 years ago

Orphaned M.S. Patient

Ever since my neurologist moved on to exclusively pediatric neurology, orphaned is how I have been feeling. I'd had my last appointment with my...

Ever since my neurologist moved on to exclusively pediatric neurology, ...

•3 years ago

it goes without saying 19 Sep 20251

Hello, my dear lonely person and everybody else. LOVE YOURSELF and actually LIKE "YOU" as well. It goes without saying. we spend a lot of time wondering...

Hello, my dear lonely person and everybody else. LOVE YOURSELF and actually LI...

•3 years ago

My latest prayer shawl

This one was more difficult and I might not do it again. It is supposed to have fringe and I made the mistake of washing it and putting it in the dryer and the...

This one was more difficult and I might not do it again. It is supposed to have ...

•3 years ago

Hi Everyone!

My name is Meme. (That's what my grandchildren call me.) I was diagnosed with RRMS in 2009 at the age of 55. At that time, my husband and I were raising our 2...

My name is Meme. (That's what my grandchildren call me.) I was diagnosed with RR...

•3 years ago

Lonely person on another day 18 Sep 2021

look for the beauty around "YOU". Enjoy the wonder of simple things. Look really hard for things to lift "YOU", never to tear "YOU" down. Find a reason...

look for the beauty around "YOU". Enjoy the wonder of simple things. Look r...

•3 years ago

MS and Hip replacement? anything I should know?

I finally made peace with the fact that I need to get a hip replacement. It's limiting my ability to do what I want more than MS. I'd love to hear from anybody...

I finally made peace with the fact that I need to get a hip replacement. It's li...

•3 years ago

Any suggestions on how to work on getting my legs up on the bed? Sometimes it’s just not possible without help.

Greetings everyone and I just published another book on my experiences with MS when taking Ocrevus.

Greetings everyone and I just published another book on my experiences with MS w...

•3 years ago

Lonely person, I remembered you 17 Sep 2021

G'Day to "YOU". How do "YOU" feel today? Special, a complete stranger sent "YOU a message of love and wished "YOU" a good day. How special, yes "YOU"...

G'Day to "YOU". How do "YOU" feel today? Special, a complete stranger sent "...

•3 years ago

Laugh of the day ☺️

Have a fabulous day 👍😉🤗 Ken 🐾🐾

Have a fabulous day 👍😉🤗 Ken 🐾🐾

•3 years ago

Yom Kippur

I hope my Jewish Family has a strong holiday of atonement. Leslie

I hope my Jewish Family has a strong holiday of atonement. Leslie

•3 years ago

Hey lonely person 16 Sep 2021

Hello my dear lonely ms Sister or brother. I thought it was important today to remind "YOU" that I am thinking of "YOU". I will try hard to write it every...

Hello my dear lonely ms Sister or brother. I thought it was important today to...

•3 years ago

Laugh of the day ☺️

Have a great day 👍😉 Ken 🐾🐾🐾🐾

Have a great day 👍😉 Ken 🐾🐾🐾🐾

•3 years ago

My Dr Visit

Yesterday was my annual appt with my MS dr. I see her and NP once a year. My background diagnosed March 2018 at 56 years old. MRIs showed years of lesions...

Yesterday was my annual appt with my MS dr. I see her and NP once a year. My bac...

•3 years ago

Hey lonely person 15 Sep 2021

Just thinking of "YOU". Have a nice day today, be well, be content. I will always spare "YOU" a thought and wish the best for "YOU". Royce

Just thinking of "YOU". Have a nice day today, be well, be content. I will a...

•3 years ago

Your ms is here for another day and 15Aug 2021

G'day ms family, love to all and hope last night was good and today is better. Our ms is with us another day, it seems to go on forever, yes it actually...

G'day ms family, love to all and hope last night was good and today is better. ...

•3 years ago

Good Morning ☀️

Sometimes I wonder 🤪😜Ken🐾🐾

Sometimes I wonder 🤪😜Ken🐾🐾

•3 years ago

sucussful ocrevus

had a successful ocrevus 2 hour treatment yesterday,no problems,i was running 1 month behind no problems.my husband had his conference with his heart valve...

had a successful ocrevus 2 hour treatment yesterday,no problems,i was running 1 ...

•3 years ago

map of 76 autoimmune diseases

just an interesting read: https://www.scientificamerican.com/article/the-terrible-toll-of-76-autoimmune-diseases/

just an interesting read: https://www.scientificamerican.com/article/the-terribl...

•3 years ago

How must it be for you 14 Seo 2021 2

Something to consider. We are all on this rock together, floating in space, kilometres (miles) from our closest Star, even further from the second-closest....

Something to consider. We are all on this rock together, floating in space, ki...

•3 years ago

it takes an effort 14 Sep 20214 2

Family, back from the vampires. Not so bad only took two or three vials and no pain. I really dislike needles after all these years, I would never make an...

Family, back from the vampires. Not so bad only took two or three vials and no...

•3 years ago

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