MS and Hip replacement? anything I should know?

[anaishunter]

I finally made peace with the fact that I need to get a hip replacement. It's limiting my ability to do what I want more than MS.

I'd love to hear from anybody who's gone through it? I have 3 friends who've done hip replacements (my neighbor had 2 hip and 2 knee replacements). Looking at input on MS + hip replacement.

Collecting info now:

- saw hip surgeon back in March. I was still in denial then, but he's ready to take me on

- meeting with my neuro in Oct to understand when should I schedule - right after or before Ocrevus and anything else.

- I don't mind a 6+ to a year recovery process. I can discipline myself.

- I want to understand whether I'll fully be able to do yoga after hip replacement

(already checked: I have a horse, and one of my friends was back on her horse after 6 months of hip replacement)

Thank you for any insights!

[Humbrd]

Best of luck if you decide to do it. I have not had the replacement but, It sounds like with your positive thoughts going into it you'll be back on your horse and doing yoga soon.

[bxrmom]

They have come so far with surgeries now a days. I think that as long as you follow your surgeons directions and do PT, you will be good.

Keep us updated.

[CalfeeChick CommunityAmbassador]

I had left hip replaced three maybe four years ago. They were aware of my MS and my need for my medicines they did give me of course pain medicine and coordination with my MS medicines which they charge me an arm and a leg. I was only in the hospital overnight. I had no problems regarding MS/rehabilitation. I was pretty much back on my feet with no assistance within nine weeks. Best to you on your surgery, let us know how you are doing, please 😊

[anaishunter in reply to CalfeeChick]

thank you for sharing your experience

[CalfeeChick CommunityAmbassador]

Something I forgot to mention in earlier post. Start strengthening your Biceps and Triceps now. It will help you getting out of bed or a chair. If you have a walker put it backwards over your toilet if you don't have safety bars in your bathroom. The walker will be of great assistance to you. I had 2 walkers. I left one in the bathroom and used the other to get around the house. Another helpful thing is to not have any loose rugs around. You could trip so easily even when you are using a walker or cane. Even now, I keep the walker in the bathroom because I get up at night and it's there if I need it.

[Ali_B62]

No personal experience of hip replacement but in my experience you can do what you make up your mind to achieve even if adjustments may have to be made to some movement. Work with physical therapists if possible. Good luck with it all!🥰

[BettysMom]

I had my left hip replaced almost 3 years ago. I had physical therapy for about 3 months before and 3 months after the surgery. Full rehabilitation takes a lot longer than that.

[erash]

Wishing you well and success with the surgery 👍

[BlanketTime1]

i'm never sure if i should respond to these, seeing as i'm a resident of limboland, but i did have a hip replacement and have had 2 neuros say, 'transverse myelitis... possible ms.' i'm mostly writing b/c i waited, too.

i was terrified of a relapse post surgery. i'm not on disease modifying drugs and since steroids are the root of my double avascular hip necrosis, i now just sort of cross my fingers when they occur.

i'm sooooo happy i finally got my hip replaced! i did it before covid, so i don't have any advice about that, but my hip was bone on bone by the time i did it and no dizziness, ataxia, dystonia even, nerve pain, eye trouble, numbness was as bad as that hip pain! i could barely function and i couldn't sleep b/c the hip was so bad.

the day of the surgery, they have you walk after and climb steps before releasing you from hospital. yes, they were careful with me, since they knew about my neurological issues, but i couldn't believe it. who is in less pain right after surgery???

it was wonderful. i was angry with myself for postponing it so long. i was lucky that my ortho used an at home rehab person, so i didn't have to leave the house for physio, but within a week i lowered my meds and was going up and down flights of stairs. when i cooked this massive meal, my mum was worried at first and then said, 'it's like you didn't have an operation!' and it was, except i was free of hip pain and back to my baseline.

i had what is called a 'posterior' incision, where they cut along the side of the hip. there are other incision locations, so i would check with the ortho about which they use. it's probably in the packet they give you w/ all the medical clearances they give you.

if you have someone to stay with you that first day, make sure all docs know what's happening (and you have to get clearance from everyone before the ortho operates, so all docs will know what's happening) and do your physio, it'll be like you never had it done.

i hope this helps and i'm excited for you not to have to deal with horrible hip pain soon!🤗

[anaishunter in reply to BlanketTime1]

thank you for all the feedback. All good to hear!

[pamgarner]

my sister 68 years old and her husband same age have had their hips replaced,they do not have ms,but they both said easy peazy,now they sent phusical theripist to your home for 6 weeks and you must walk,that would be tough for me with ms.it was 6 weeks before they could take any day trip, best to you.they both said they do not know why they waited,so much better

[Brindisi1]

I had both done. Latest 2019. The first was posterior incision whichhas more position restrictions. The anterior is supposed to be less restriction. The last one no dmt. Copaxone before. Can do yoga now but took a year for some positions. urge caution for some positions initially. Need to discuss with your PT & common sense. Yes it is a major surgery made routine. Be careful until you are really healed. Don't want to undo it because then big problems. Your body still healing even though functional. Lots of modified positions. I am doing modified for osteoporosis. Still beneficial. Yes pt before to strengthen you . Prayers for successful surgery & recovery

[anaishunter in reply to Brindisi1]

thank you for the info. I'm ok with a lengthy recovery as long as I will still be able to do what I enjoy after. Surgery is not scheduled yet. Still have to talk to neuro and make up my mind. (I just don't want to deal with it...)

[twooldcrows]

wow it sounds like you will be just fine after the surgery ...happy thoughts and being happy the whole time thinking about your yoga....love and happiness...