Hi Everyone!

[Spirit67]

My name is Meme. (That's what my grandchildren call me.) I was diagnosed with RRMS in 2009 at the age of 55. At that time, my husband and I were raising our 2 grandchildren, ages 5 and 8. It was a real challenge taking care of 2 small children and coping with symptoms of MS! But I survived. I'm now 67 years old. In a couple months, my husband and I will finally be empty nesters, but my caregiver duties continue. My husband was diagnosed with CIDP 4 months ago and is in a wheelchair. Seems a little ironic, as I always thought he'd be pushing me around in a wheelchair and not the other way around!

[Humbrd]

Bravo to you! Your strength is inspiring. I'm sure you never thought that you were going to be the caregiver for both your grandchildren and your husband. That's very commendable raising your grandchildren. I too was diagnosed at 55 a few years ago. And surprisingly my son's wife has just decided to leave him and their two children. So I will be helping my son with the girls ages five and seven. I hope I can be as strong as you have been.

[Spirit67 in reply to Humbrd]

I have put faith in the fact that God never gives us more than we can handle. It has gotten me through a lot of tough and challenging times. I pray you have the strength to endure what God has put before you.

[Humbrd in reply to Spirit67]

Thank you, I believe that also. Life keeps throwing curve balls. But somehow everything seems to work out. Although I have to admit I'm very worried about my son as he is heartbroken.

[BlanketTime1]

welcome! and thanks for sharing with us.🤗

[cljones]

I also was diagnosed when I was 55. It's really tough when you have a progressive form like I have. I'm already using a walker and a wheelchair when I have to go further distances. It's good that you're able to take care of your husband. Mine has to take care of me. Stay strong keep up the fight.

[pamgarner]

i also have a sick husband and ms,it is amazing to me where we pull physical and mental strength from.i know right now i am physically stronger than my husband,i told him to watch his step,i will rap him with my cane! tee-hee🤪

[Spirit67 in reply to pamgarner]

I do feel helpless at times. Like yesterday when my husband got too close to the edge of the bed and fell out on the floor. I couldn't get him up by myself, but thank God for great neighbors who came to our rescue!

[pamgarner in reply to Spirit67]

amen for kind people

[Neworleanslady]

You can use his wheelchair as your walker when you’re pushing him 😃

[Spirit67 in reply to Neworleanslady]

When going to Walmart, I sometimes am lucky enough to grab a random buggy to use as my "crutch" There are no buggy corals close to the handicap parking spaces, so people just leave their buggy parked between the Handicap signs...also guilty.

[Neworleanslady in reply to Spirit67]

Same 😃

[mrsmike9]

Bravo, you! It sounds super tiring so I'm sorry about that.

[Spirit67 in reply to mrsmike9]

I live the same day over and over again every day. The routine itself can be very exhausting!

[rjoneslaw]

welcome

[Spirit67]

Life just isn't fair sometimes. My husband and I finally get our grandkids raised and on their own, and 2 weeks after becoming empty nesters, I'm sitting in a Hospice House watching the love of my life slip away from me. But I know God is with me!

[Spirit67]

My husband passed away in October 2021. I had my previous Ocrevus infusion just a couple weeks before he passed. I was so stressed by his passing, that I don't think the infusion even had an effect on me. I don't get my next infusion until mid April, but I have been feeling so fatigued that some days I don't even get out of bed. I'm home alone now, so what's the point. I've had several issues with vision and MS HUGS in the past month. I am surprised - not really - of how many people with MS , who are on Ocrevus, start having issues about 2 months out from their next infusion. Can't neurologist ban together and get insurance companies to approve this medication for 5 month intervals?? Everyone I've talked to has this issue with Ocrevus! I guess we all just need to switch to a different treatment. Got any GOOD recommendations? Enjoy your day 😌