My Dr Visit

[NanaCC]

Yesterday was my annual appt with my MS dr. I see her and NP once a year. My background diagnosed March 2018 at 56 years old. MRIs showed years of lesions things I obviously ignored. RRMS diagnosis started Ocrevus right away worked well until April 2021 had a bad relapse new lesions on my spine, noticeable weakness right leg. Ocrevus 5 month intervals started this year due to crap gap. Next dose is October 5th 2nd 5 month interval dose. So far not feeling gap like I use to. I am more tired these days but that is manageable. End of intro- dr tells me if I have another relapse she will stop Ocevus. Stupid me never asked to what. Have any of you stopped Ocrevus? Why? And what meds do you take instead? Thank you and peace

[MaMere2]

I took three Ocrevus treatments and was unable to continue because I had exacerbation of symptoms each time which just got worse each time. I take Mayzent now. It's a daily pill. I started it back in May. I'm doing fine. No side effects anymore. I had several in the beginning that didn't last very long. Hopefully, you will be able to stay on the Ocrevus! There are alternatives. I chose Mayzent because of how it works with the immune system.

[BlanketTime1]

i don't have answers as i'm in limboland and not on any disease modifying drugs, but i just wanted to say i'm sorry you're going through this. though i'm not dx'ed, i pay attention to the meds since every healthcare worker meets me and says, 'ms, right?' also, if i saw a different dr i might've been dx'ed per criteria... long story.

anyway, i remember getting excited when ocrevus came out, so i can't imagine how excited you were. i'm sorry it doesn't seem to be working for you. there are other meds people have been on since the late 90's, so it's not like you're out of options, but ocrevus was advertised like the answer to prayers, so i'm sure it's scary and stressful.

does your dr. have a patient portal? if so, you can either sign up on your own or you call in and they send you a link to join. that way you can get an answer before you go back... waiting is the worst (says the woman in perpetual limboland😜) and if nothing else, you can have your research done when you do go back.