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All posts for February 2020

An open letter that may help

This is an email I had sent to a very frightened young women (23) I had met at my neurologists office. MS is affecting her optic nerve. Dear Michele, I am...

This is an email I had sent to a very frightened young women (23) I had met at ...

1575

•4 years ago

9 Replies

Food for thought, blue print for action.

❤️❤️❤️

TexasLawman

•4 years ago

5 Replies

Post 597 Decisions 11 Feb 2020

Decisions, decisions. “YOU” have a chronic incurable progressive illness, now and at this point in your life “YOU” have a lot of decisions to make. I will...

Decisions, decisions. “YOU” have a chronic incurable progressive illness, now ...

RoyceNewton

•4 years ago

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MS

I have had Multiple Sclerosis since 2006 I’m 38 years old I really want to meet other people who have MS

I have had Multiple Sclerosis since 2006 I’m 38 years old I really want to meet ...

Happytra

•4 years ago

13 Replies

Mayzent and High BP

I'm taking Lopressor 200 mg for High BP... have SPMS and my Dr is recommending Mayzent... Any ideas since this med is suppose to cause High BP,

I'm taking Lopressor 200 mg for High BP... have SPMS and my Dr is recommending M...

pasmokey

•4 years ago

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Unnumbered post MY apologies

Nobody upset me, which I would rather nobody started doing. My apologies are a good way to remind myself that I am not an expert on anything and that I...

Nobody upset me, which I would rather nobody started doing. My apologies are a...

RoyceNewton

•4 years ago

1 Reply

Main question I have

My main question I have right now After only having the mri and not being seen by the neurologist yet to try any treatments is, Do the treatments do anything...

My main question I have right now After only having the mri and not being seen...

Hidden

•4 years ago

13 Replies

Neuro appointment update

I saw my neuro today. He confirmed metronidazole was the cause for the crazy nerve pain I was experiencing. He said it may take a few weeks to get it fully out...

I saw my neuro today. He confirmed metronidazole was the cause for the crazy ner...

StacyHayward

•4 years ago

6 Replies

I am sorry again

I seem to be making alot more unintended mistakes than usual, and not picking them up in proofreading. I really do apologize for this. It is never my...

I seem to be making alot more unintended mistakes than usual, and not picking th...

RoyceNewton

•4 years ago

13 Replies

Post 596 The waiting Game 10 Feb 2020

Okay perhaps a little mean of me. It is not a game to everybody. It is to me as I am quite cynical when I want o be, sorry I will they to stop it. No...

Okay perhaps a little mean of me. It is not a game to everybody. It is to me...

RoyceNewton

•4 years ago

3 Replies

Husband as Caregiver

Hi Friends-I have a question re: Social Security disabilty benefits or social security benefits. My hubby lost his job after Thanksgiving last year and I’m...

Hi Friends-I have a question re: Social Security disabilty benefits or social se...

nicoly3467

•4 years ago

13 Replies

Nosey Rosey wants to know.

What is everyone's favorite perfume? Warm Wishes, Leslie

lbenmaor

•4 years ago

32 Replies

Total anxiety!

I'm supposed to be out in 3 wks. I thought I had a place to go. Turns out, nope, that fell through. I have ppl looking for places for me, and someone looking...

I'm supposed to be out in 3 wks. I thought I had a place to go. Turns out, nope,...

Jesmcd2

CommunityAmbassador•4 years ago

15 Replies

The waiting....

Hello. 52 yrs. Old. I thought I had been reasonably healthy all my life, working and living. After a weekend of a "stomach bug"...I recovered from to awake...

Hello. 52 yrs. Old. I thought I had been reasonably healthy all my life, workin...

Hidden

•4 years ago

20 Replies

Hee hee

Everything

TexasLawman

•4 years ago

6 Replies

Post 595 Get serious and information 16 Feb 2020.

Get serious, “YOU” and I have a chronic, incurable, progressive illness. Do “YOU” understand what that means? It means if your Magnetic Resonance...

Get serious, “YOU” and I have a chronic, incurable, progressive illness. Do “Y...

RoyceNewton

•4 years ago

9 Replies

Unnumbered post DMT, YES I am on it 9 Feb 2020

I am sorry I thought I had made this clear. I am on Disease-Modifying Therapy)DMT). I have been on it as soon as I could get it twenty years ago and have...

I am sorry I thought I had made this clear. I am on Disease-Modifying Therapy)...

RoyceNewton

•4 years ago

9 Replies

I am angry

MS isn’t going to stop. My is in a play and I couldn’t go because I was light headed and dizzy and my l gs gel lol ke lead.

MS isn’t going to stop. My is in a play and I couldn’t go because I was light he...

TexasLawman

•4 years ago

5 Replies

Unnumbered post 20+years in the game 8 Feb 2020

I have had ms for over twenty years. Not sure how long exactly, will make an effort and work it out one day, maybe. I have always been told I have the...

I have had ms for over twenty years. Not sure how long exactly, will make an e...

RoyceNewton

•4 years ago

17 Replies

Post 594 The uncertainties of our ms life 7 Feb 2020

Relapsing-Remitting ms (RRms) is not predictable. Not true, over time “YOU” and I will get worse, that is at least certain. Perhaps knowing this and...

Relapsing-Remitting ms (RRms) is not predictable. Not true, over time “YOU” an...

RoyceNewton

•4 years ago

13 Replies

Roller Coaster Ride

Hey Everyone! I’ve been reading lots of your posts but posting little of my own. Time for an update. The puzzle is the first 2000 piece one I’ve ever done!...

Hey Everyone! I’ve been reading lots of your posts but posting little of my ow...

StacyHayward

•4 years ago

10 Replies

I survived!!

Dang that hurt and hurts. Even more than my knee replacement! I’ll survive and be better soon. PT to start very soon. Have exercises to start today. One of...

Dang that hurt and hurts. Even more than my knee replacement! I’ll survive and ...

CalfeeChick

CommunityAmbassador•4 years ago

20 Replies

Unnumbered post YOU 6 Feb 2020

YOU my ms Sister or BROTHER can live with this illness. Cope with all its indignities and nasty surprises. Each and every day for years and years "YOU" can...

YOU my ms Sister or BROTHER can live with this illness. Cope with all its indi...

RoyceNewton

•4 years ago

3 Replies

MS....⤵️....Downturn.🙁😬😫

Hello family. It's Fancy. I've had a rough few weeks going on on this end. My MS flared something awful. I experienced Seven Falls in 10 days. I have no energy...

Hello family. It's Fancy. I've had a rough few weeks going on on this end. My MS...

Fancy1959

•4 years ago

63 Replies

Latest quilt finish

Don’t look too closely! I did this all free hand on my domestic sewing machine, rather than the long arm machine. There are lots of wobbles, but it felt great...

Don’t look too closely! I did this all free hand on my domestic sewing machine, ...

greaterexp

•4 years ago

28 Replies

For Crochet Enthusiasts or Twisted Minds

I saw this picture this morning leading to a tutorial on how to make it. I thought about making one and just using it to embarrass my family, but it would take...

I saw this picture this morning leading to a tutorial on how to make it. I thoug...

greaterexp

•4 years ago

16 Replies

Pros cons tecfidera

Thoughts on tecfidera? DMT I am leaning toward but I was also considering tysabri.

Thoughts on tecfidera? DMT I am leaning toward but I was also considering tysabr...

kandykone1

•4 years ago

26 Replies

Dealing with MS as a sibling

Hello, I am the part-time care provider for my sister who has MS. I was curious if there are any other sibling's dealing with a family member with MS? I feel...

Hello, I am the part-time care provider for my sister who has MS. I was curious ...

GrowthMotivator

•4 years ago

8 Replies

Unnumbered post Together we are stronger 5 Feb 2019

Together we are stronger. 20+ years I have lived with this disease and I most certainly did NOT do it alone. At first, I asked questions, I learned. I...

Together we are stronger. 20+ years I have lived with this disease and I most...

RoyceNewton

•4 years ago

8 Replies

Last day of antibiotics

Well I hope that this is it for the antibiotics. A total of 17 days. Yesterday my throat was still a little red. My glands are not swollen but I have a little...

Well I hope that this is it for the antibiotics. A total of 17 days. Yesterday m...

Turtlepie

•4 years ago

14 Replies

Posts - My MSAA Community | HealthUnlocked

My MSAA Community

All posts for February 2020

An open letter that may help

Food for thought, blue print for action.

Post 597 Decisions 11 Feb 2020

MS

Mayzent and High BP

Unnumbered post MY apologies

Main question I have

Neuro appointment update

I am sorry again

Post 596 The waiting Game 10 Feb 2020

Husband as Caregiver

Nosey Rosey wants to know.

Total anxiety!

The waiting....

Hee hee

Post 595 Get serious and information 16 Feb 2020.

Unnumbered post DMT, YES I am on it 9 Feb 2020

I am angry

Unnumbered post 20+years in the game 8 Feb 2020

Post 594 The uncertainties of our ms life 7 Feb 2020

Roller Coaster Ride

I survived!!

Unnumbered post YOU 6 Feb 2020

MS....⤵️....Downturn.🙁😬😫

Latest quilt finish

For Crochet Enthusiasts or Twisted Minds

Pros cons tecfidera

Dealing with MS as a sibling

Unnumbered post Together we are stronger 5 Feb 2019

Last day of antibiotics

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