Roller Coaster Ride: Hey Everyone! I’ve... - My MSAA Community

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Roller Coaster Ride

StacyHayward profile image
10 Replies

Hey Everyone!

I’ve been reading lots of your posts but posting little of my own. Time for an update.

The puzzle is the first 2000 piece one I’ve ever done! Lots of fun.

It’s been a crazy few weeks. On one hand, my MS has been doing pretty well. On the other hand, things have been wild!

About two weeks ago I had bloodwork and a CT scan done and was told I have colitis. Not sure what type or anything since I don’t see a GI until the end of February. But I’m the meantime I was put on the antibiotic metronidazole. Ugh! It was awful. I was so sick even with an anti nausea pill. After one day I spent an entire Saturday trying to change to a different antibiotic. All they would do was change the anti nausea pill. On top of that I had a major head cold.

I struggled through Sunday but by Monday I had a new problem. Every ringing phone, dog bark, loud sound, heavy footstep etc causes shock waves through my head and down my arms. It was like being electrocuted over and over. I rushed back to the doctor who triggered an attack by simply opening the door. He said he’d never seen anything like it before and he pulled me off the new meds. I also couldn’t touch anything electronic like my phone without the same thing happening.

In retrospect, it was probably the perfect storm of MS, colitis, head cold, new meds and old meds working together but it was excruciating.

I’ve taken the week off work and see my neuro Monday. Mostly I’m fighting being lightheaded at this point but it took nearly three days for sound to no longer be an issue.

I hope it never happens again!

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StacyHayward profile image
StacyHayward
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10 Replies
jimeka profile image
jimeka

Oh Stacy that sounds awful and very scary. I hope that it settles down soon for you. It’s good to hear from you and the puzzle you did looks amazing. Well done, Blessings Jimeka 🤗 if you have the time, let us know how you get on, thanks.

Morllyn profile image
Morllyn

Wow, sounds awful! I hope every thing gets better quickly.

greaterexp profile image
greaterexp

What a struggle you've been through! I do hope you are finally mending and that you will get some answers about the colitis.

DM0329 profile image
DM0329

Wow! That puzzle looks amazing! What an accomplishment! :)

kycmary profile image
kycmary

Stacy you have been through it I'm praying for you blessings Mary

erash profile image
erash

Hope you are feeling better soon and wishing you peace and quiet until this craziness resolves 🙏

bxrmom profile image
bxrmom

I'm so sorry to hear what you have been going through StacyHayward Glad your doc took you off the meds to help things stop for you. I hope you get some answers when you go in for your appt. Keep us updated when you can.

Gentle hugs your way,

Jessie

mrsmike9 profile image
mrsmike9

Holy cow! How horrible! In August 2018 I was diagnosed with collagenous colitis. In my mind it was worse than my MS. I lost 20 pounds in 10 days (and I'm not overweight). I thought I was going to die. I couldn't walk from one end of my house to the other without getting faint.

Best of luck and I hope you get to feeling soon!

rjoneslaw profile image
rjoneslaw

kool

twooldcrows profile image
twooldcrows

so sorry for the messes the doctors have put you thru and on top of that a cold ...wow....what a warrior ...love the puzzle ...that is what i like to do now is put puzzles together i use to do them a lot but over the years have slowed down on them and now back to putting together ...i know what you mean it can be a up and down type of life so what ever helps to slow it down a little ...works for me ...take care till they fight out what is going on ...again so sorry ...love and much happiness and enjoy the puzzles....

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